Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reaction
0

6 posts in this topic

So I am trying to deal with my celiac. I am usually pretty careful and good about what I eat. However when I do get "glutened" the reaction can be mild or super harsh!! I am just trying to get a rough idea of how long on average reactions tend to last.

0

Share this post


Link to post
Share on other sites


Ads by Google:

So I am trying to deal with my celiac. I am usually pretty careful and good about what I eat. However when I do get "glutened" the reaction can be mild or super harsh!! I am just trying to get a rough idea of how long on average reactions tend to last.

I tend to have a skin reaction now. My last one lasted 5 weeks. I so far haven't been glutened since then.

0

Share this post


Link to post
Share on other sites

So I am trying to deal with my celiac. I am usually pretty careful and good about what I eat. However when I do get "glutened" the reaction can be mild or super harsh!! I am just trying to get a rough idea of how long on average reactions tend to last.

It's hard to answer your question because there are so many variables. Your own reaction changes each time. It depends on how much gluten you ingested, how much damage/inflamation you have in your system, hormones, and a variety of other things.

You could have a reaction that lasts hours, days, or weeks. All would be considered "normal" reactions.

Generally, as time goes on without gluten getting into your system, your "fighting cells" rest up and are ready to wage war on any gluten that does gets in. Your reaction would be stronger.

1

Share this post


Link to post
Share on other sites

My reactions tend to last around 6 days, first the digestive /pain starts then the sleeplessness and the anxiety/irritablity, then the fatigue sets in. Lastly I usually get a rash (DH on my body)with the itch of coarse.

1

Share this post


Link to post
Share on other sites

This is going to vary greatly depending on the person. But I feel significantly shitty for about 36 - 48 hours. And return to 100% normalcy after about a week

0

Share this post


Link to post
Share on other sites




My reactions last 3 and a half weeks I'm sorry to tell you. It starts with pain, a very specific place on my abdomen, my eyes feel heavy, almost feel i could sleep anywhere, like i'm dragging my body around. My sinus's and post nasal drip go insane like I've stepped into all the allergens in the world and inhaled. I get slightly constipated and then the other extreme with cramping, headaches, backache. This goes on for a week and a half (The gastro problems) and then the headaches, backaches, brain fog, dead body, sleepiness, emotional rollercoaster stuff lasts for three and a half weeks.

I'm sure it won't last as long for you, i'm insanely sensitive, and still recovering after a year and a bit too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,132
    • Total Posts
      919,522
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • It was a warm summer afternoon, my wife and I decided to go to the park to have a short excursion, taking our boy together. He likes to play in the park because there are some public entertainment equipments and many kids like to play in there.

      Upon arriving at the park, my boy played with his little partners and we started to detect metals. When we focused on treasure hunting, there came some visitors and most of them were very young. One adult asked "hey man, what were you seeking for?" I told him that we were seeking money and they became more curious, and some of them even join us and help us to dig. The story is not finished in here.
      By dinner time, we left the park and picked up a restaurant to eat. After we sat down, I recognize the waitress is the mother of one of the young boys who helped us to dig in the afternoon. So I talked with her, "Did your boy ask the metal detector for you?" She answered with curiosity “how did you know that?" I told him the story in the afternoon. She said she would buy a metal detector for her son for his next birthday.
      My blog
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined