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Friends Purposely Glutening Me!


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31 replies to this topic

#1 Victoria6102

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Posted 06 March 2012 - 02:24 PM

So I have some friends, who don't quite understand Celiac. The other day they were eating cake for a party and one of my friends said " If I were you, I would break eating gluten free just to eat this cake." I said, "NO you wouldnt', if you had celiac, you would understand the consequences of eating that piece of cake!". My other friend said "Yeah, right, you've probably eaten gluten recently and not even known you did!" At this point I just walked away. The second friend has been saying that a lot lately. "I bet you have eaten gluten lately.", while giving strange looks to my other friends and winking. I've heard her talking about putting gluten in my food. I have been gluten free for over a year but still don't feel much better and lately my symptoms have started becoming almost exactly like before I started eating gluten. I am afraid that my friends or atleast one of them has done something to my food on a trip ( I go on many trips with my friends because we are in the same youth group at church). I have a trip coming up this weekend, and it's 10 day trip to Canada. I'm so scared that they are going to do something to my food. I am preparing all of my food ahead of time and putting it in containers to freeze, and reheat whenever I need to for the trip. They could easily open up one of my containers and do something when I'm not there! They seem like they just have to prove they are right that I am making up Celiac and that even if they believe I have Celiac, that I am exaggerating it. I am NOT exaggerating! Obviously I have very ignorant friends or else they wouldn't tell me I should eat a piece of cake!! AHHHH! Why are people in this world so ignorant?!?! Anyway, I have explained it to them multiple times, about cross-contaminatin, what happens to me if I eat gluten, how easily I can get glutened....but they don't believe me! I've printed out information and given it to them, given them as many examples as I could! Sometimes I feel like I want to ditch my friends and find new ones, except I'm stuck with these people and have to get along with them somehow. But I'm doing all I can! I don't bring it up unless someone offers me glutenous food and I have to decline. Or unless I'm eating and someone says my chicken looks like dog turds or my cookies taste like dirt. And then I defend myself and my food. lol....but seriously, how do you handle friends like this? And how can I make sure they don't gluten me on this trip? PLEASE HELP!!!!!!
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#2 kareng

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Posted 06 March 2012 - 02:34 PM

Your a teenager, right? Have you told your parents or the leaders of this youth group? These are not your friends, they are criminals who are assaulting you. I know you want to go but if you cannot go safely, you shouldn't go. If you knew they might be putting arsenic in your food, would you say nothing and go? If you have one of those peanut allergies where you could die within minutes of eating peanuts, & they were going to put peanut in your food, would you go? Would your parents allow this?

Didn't you come on here about this before? Or was this happening to another girl? If you came on before, why haven't the youth leaders or your parents put a stop to this?
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#3 Victoria6102

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Posted 06 March 2012 - 02:43 PM

Yes, I'm a teenager! I did post about my friends being rude to me about celiac before, it was actually about this same trip last year. But they have never actually threatened or talked about putting gluten in my food! I am scared. But it's my last year to be able to go and I have a friend who said she'll watch out for me to make sure noone will do it. But of course, I'm still scared, I can't puppyguard the fridge all week. Yes, I talked to my youth pastor. It has gotten slightly better. But also as you can see, in some ways worse. :P Also the same friend who said she'd watch out for me said some things today......another girl in my church has a video of me doing something embarrassing....not bad at all, just embarrassing. And she threatened to post it on Google plus. I told her not to. And this friend who said she will protect me said "Send me the video, (to the girl who took the video) what is she going to do , smother you with whole wheat bread? Oh, yeah, that kind of torture only works on her! ha ha ha" I stood up for myself and everyone was like freaking out on me....whatever...all im saying is these people one time say "Ill help you" but then they are ignorant enough to confuse the fact that whole wheat bread has just as much gluten as regular bread,when they are trying to insult me. They apologized but even though I forgave them I can't help but worry about what people really think and are going to do, if they tell me something different!
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#4 bartfull

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Posted 06 March 2012 - 02:46 PM

Talk to the PARENTS of these kids. Explain that if they do this you will have them ARRESTED for attempted poisoning. And that after that you will be talking to a LAWYER. Mention this to your youth pastor too - it is HIS responsibility to keep you safe on this trip and if you have to threaten HIM with a lawyer too, well so be it.
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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#5 GottaSki

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Posted 06 March 2012 - 02:50 PM

You really need to talk to your youth group leaders -- are they aware of your dietary restrictions?

If you were my daughter and we had already talked with the leaders and you still wanted to go on the trip - I would use a food sealer to seal your previously prepared meals -- seal broken -- don't eat it.

This really is a clear case of bullying...I'd bet there are some in your group that understand what you are telling them about the harm gluten can cause you, but are going along with the bully?

I know it is hard to let go of people that have been in your life for a long time, but you need to stop calling them your friends. Friends do not hurt each other for laughs.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#6 kareng

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Posted 06 March 2012 - 02:56 PM

DO your parents know? Maybe if the parents insist to the youth leaders, they will be more watchful.

Here's what I would do if I were you and determined to go. Make sure you have some safe & filling things in your purse or suitcase. Packets of nuts, packets of peanut butter, Lara bars, fruit snacks, etc. Things that can't be tampered with or if they are, you would know someone opened them. A jar of nuts doesn't work because it will be open in your suitcase. Make sense? I found these little "lunchable" type meals called Go Picnic & you would know if someone opens the box if you can find them.

Then, the food you are bringing: I would get some stickers or tape. You will have to try at home a few days ahead to make sure the stickers stay stuck to the food containers for a few days. Might have to try a few different kinds. The point is to put many stickers or wrap duct tape around and around really tight across the seal of the food so that you will see if the plastic container is opened. Or you could find someone with one of those "seal-a-meal" things. You put your sandwich or chili in the plastic and it vacuum seals it. It has to be cut to open. Wrap cheese or sandwich very neatly in foil, then wrap duct tape around it 3 times. If you have whole fruits or carrot sticks, rinse them good firts or put in a baggie & give it the tape treatment.

See where I'm going with this? If we can't trust anyone, we will at least know when they tried to open the food. there are some really fun duct tape out there like leopard print & hot pink!
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Someone told me I was delusional.  I almost fell off my unicorn.

 

 

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#7 Victoria6102

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Posted 06 March 2012 - 02:57 PM

That's a good idea! How do you seal your food? :) And thank you Bartfull. :) You're right, I shouldn't be calling them my friends. I have one friend who always sticks up for me, always tries my food and says good things about it, she doesn't make fun of me. I have one other friend who believes me and understands. The rest, you're right, they kind of follow this one person who leads this. They tell me to "Lighten up" when I get upset about the things they say. They tell me I need to stop being so edgy. I told them, they can't use the excuse that I overreact or need to lighten up, just to make fun of me! (by the way i don't overreact i usually laugh it off. might i say the person who leads this has healthproblems of her own but i have never made fun of her for how she looks because of it)
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#8 kareng

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Posted 06 March 2012 - 03:02 PM

A food sealer is like this. You were posting while I was. I think if you wrap duct tape around several times really tight, they can't tamper with it without you knowing. Duct tape sticks to my frozen plastic containers.

http://www.bing.com/...lmart&FORM=HURE
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#9 kareng

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Posted 06 March 2012 - 03:06 PM

leads this has healthproblems of her own but i have never made fun of her for how she looks because of it)



Maybe you should pull her aside without all the others. Ask why she makes fun of your health problems when you don't make fun of hers? Or if you are a bit afraid of that, I guess you could ask the youth counselor to be there to.
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#10 GottaSki

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Posted 06 March 2012 - 03:12 PM

There is a kitchen appliance that has plastic bags that vacuum seal...but I like KarenG's idea of getting some fun duct tape -- Just put whatever meal in a ziplock and then put an extra seal of fun duct tape -- I've seen the patterns like zebra or cheetah or bright colors at craft stores as well as home improvement stores...the tape seems like the simplest route...especially because you can carry it in your bag to seal something on the road...like if you buy a bag of gluten-free snacks and eat part, just tape it up again...seal tampered with -- don't eat it.

The bully will tire of messing with your food if it is difficult to get to and move on.

I know it is difficult -- but if the topic of gluten free comes up around these "friends" try changing the subject or directing the conversation away from gluten-free...this is old news guys -- I can only eat gluten-free and I'm done talking about it...let's talk about something else then make a nice comment about one of your friends...you like their haircut -- heard they were doing well in sports, etc. Again...takes practice to change the subject away from yourself, but it is a great skill to develop as a young person.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#11 dani nero

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Posted 06 March 2012 - 10:02 PM

might i say the person who leads this has healthproblems of her own but i have never made fun of her for how she looks because of it)


She wouldn't be bullying you if she didn't have problems of her own that made her feel bad about herself. She wants to mask her problems, and being hard on others is how she copes. I'm not defending her but explaining what pushes her to be a bully.
Seal your food like the others suggested, and don't let the bully's problem become yours. You know when a fly flies by we just wave at it so it would stop bothering us, but then completely forget that the fly ever existed, because who would spend time thinking about why the fly is buzzing around? These so called friends are just flies haha :-) You don't need to spend hours of your life thinking about them because then you'd be missing out on what you should really be doing, which is having a good time.
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#12 UKGail

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Posted 07 March 2012 - 02:33 AM

I remember belatedly reading your last posts about this topic, and not liking it then. To see you coming back a year later with the problems getting worse rather than better is even more concerning.

Other posters have given you some really good advice about ways to protect your food, and techniques to deflect the uwanted attention, and I have nothing to add to them.

What I do wish to say is that as a mother who works in a school and with our local church group which also organises trips away, I am OUTRAGED that this behaviour and the pastor/organisors and your parents are not taking firm steps to put a permanent stop to this outright bullying.

If the behaviour has not stopped now and has indeed worsened, even after you have talked to the leaders previously, I would be seriously considering whether this is a group with which you wish to be involved. Of course, you may be living in a small community where there is not much choice available, in which case your choice is whether to continue to carry on with your church activities or not. You may also be attending the same school as these unpleasant people. This is a rock and a hard place, but life is sometimes like that. You may find however that there are nicer people elsewhere with whom to spend your time.

I advise having another talk with both your parents and the pastor/youth group leader prior to the trip. Ideally your parents should also attend the meeting with the pastor to support you, and also to emphasise the serious nature of the bad behaviour. It is bullying, and any tampering with your food is some form of criminal assault. The trip leader is legally responsible for your health and safety while you are in his/her care. If you are made sick during the trip by the actions of some of the other participants, and he/she was warned in advance that such behaviour was likely, then you or your parents could take some legal action against him/her or against the Church for negligence. Your parents could point this out to the leader in the meeting. Then, in a pre-trip briefing to the participants, the pastor should mention to all that you need to bring your own food with you for medical reasons, and that this food is not to be touched by anyone else. He does not need to make a song or dance about this, but it does put the others on notice that they cannot rely on leadership indifference to their behaviour.

What you are suffering is not normal behaviour and you really need to find some assistance in getting it stopped or getting away from it. I cannot tell you how upset I am at the situation find yourself in.

I wish you all the best, and would like to give you a big hug for moral support.
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#13 rgarton

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Posted 07 March 2012 - 02:39 AM

This is awful! I can't believe they are doing this! You shouldn't have to think about how to make your food "friend proof" jeeez! Talk to your parents, talk to their parents and your youth leader, tell them your concerns and tell them what they have suggested doing and how it will effect you. It is not fair of you to go through this, and like you said your not making fun of her health concerns, because your not a bully! If they did succesfully gluten you, you have been poisoned by your so called friends, and i think that is the last straw! Tell them you will file a complaint against the people who poison you, get them kicked out of youth club for poisoning someone else... simple! Good luck sweetie.
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#14 Austin Guy

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Posted 07 March 2012 - 04:53 AM

Your friends must know someone with a food allergy or they must have heard of a peanut allergy. Ask how they would feel if you snuck peanuts into the food of someone with this allergy.

Here is an analogy that also must help. Describe how a fish gets oxygen. Water passes through the gills and the fish gets oxygen from that water. What would happen if the gills lost surface area - you can mimic that by showing your fingers spread apart and then closing them back together. This is the same as the villi in your intestine flattening and losing surface area. Less food passes through and you can't absorb what you need and you get sick.

Don't know if this makes sense, but I hope it helps.
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Self-diagnosed gluten intolerant May 10, 2011 after going gluten free May 8.
Allergic to cat dander, salmon, nuts, lots of airborne pollens and mold.
Soy intolerance August 2011
Dairy and egg intolerance November 2011
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#15 IrishHeart

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Posted 07 March 2012 - 05:17 AM

What disturbs me the most is.... this is a RELIGIOUS youth group??
No evidence of "loving kindness for your neighbors" here :rolleyes:

You shouldn't feel scared to be with "friends". You shouldn't have to worry that they are poisoning you while you sleep. And you really shouldn't have to put your food under lock and key. That's just nuts.

Where is the youth minister in all this? :angry:
He should put a stop to this baloney right now.
And dismiss the bullies from the group.

Sorry, sweetie, but it seems to me that you need to find a better group of friends.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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