Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Why Am I Losing Strength?
0

21 posts in this topic

Yesterday was the first day of 2012 which I cycled as the snow has melted away :-) It went great, the whether was nice and I really enjoyed it because paddling was not a challenge. I know however that if I keep on cycling.. let's say one-hour rides once every two days, I will be getting weaker and weaker until I'm not able to push on the paddles anymore (by the middle of week 2), and cycling even on straight roads will become a struggle, as if the bicycle is refusing to move forward. I would then stop cycling all together for more than a week or two. After that I notice that my bicycle can be pushed forward with ease again.

From what I know, the more one exercises the stronger they get. So obviously I'm either lacking supplements or not stretching enough. Anyone else have this problem, and how did you solve it?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you had this checked out by a doctor? Yes, your muscles SHOULD get stronger. Muscles that become weak from exercise can indicate a number of illnesses that are NOT related to celiac. Many people with celiac develop other auto-immune diseases....so if you haven't had this particular problem evaluated, I would highly recommend that you do so. This could be a serious matter.

Alternatively, you may have either pernicious anemia or iron anemia, which would exhaust your muscles because they're not getting enough oxygen. Have you been tested for low Vitamin B-12 and iron? If not, this would be a good place to start.

0

Share this post


Link to post
Share on other sites

Being hypothyroid does that to me. I don't recover from exercise properly.

0

Share this post


Link to post
Share on other sites

Thanks both of you for the input. I haven't been checked yet, still waiting for appointment, but I did have thyroid checked two years ago I think, and it was fine. I would say it might be b12 / iron since I'm getting these sores at the corners of mouth.

I got myself some all-round supplements a few days ago. It was all the pharmacist could provide until I see the doc.

0

Share this post


Link to post
Share on other sites

It's quite possible that you're unable to absorb supplements right now, so you may find that the supplement the pharmacist gave you won't help at all. For some of us, we need to get our iron intravenously and either B-12 injections or sublingual tablets. The sublingual tablets are really inexpensive, so you might just try picking some up. If it's a B-12 problem, you'll see almost immediate improvement.

0

Share this post


Link to post
Share on other sites




It's quite possible that you're unable to absorb supplements right now, so you may find that the supplement the pharmacist gave you won't help at all. For some of us, we need to get our iron intravenously and either B-12 injections or sublingual tablets. The sublingual tablets are really inexpensive, so you might just try picking some up. If it's a B-12 problem, you'll see almost immediate improvement.

Thanks for your advice Rosetapper xoxo :-)

0

Share this post


Link to post
Share on other sites

You're welcome! But, please, see a doctor if you can--the muscle weakness you describe is very worrisome.

0

Share this post


Link to post
Share on other sites

Hey, you're not on a cholesterol-lowering drug are you?

0

Share this post


Link to post
Share on other sites

I will see a doctor. It can take a while as the health-care here is as fast as a turtle unless someone is dying.

Nope, I don't take any drugs. The only thing I used to take was birth-control for the amenorrhea which I stopped two months ago.

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that it takes so long to see a doctor. When you attempt to get an appointment, please stress that you're experiencing muscle weakness upon exertion that worsens the more you exercise. Hopefully, they'll wake up and schedule an appointment soon.

Good luck! And please let us know what happens, okay?

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that it takes so long to see a doctor. When you attempt to get an appointment, please stress that you're experiencing muscle weakness upon exertion that worsens the more you exercise. Hopefully, they'll wake up and schedule an appointment soon.

Good luck! And please let us know what happens, okay?

Thanks for the support, and will let you know :-) Xoxoxoxo

0

Share this post


Link to post
Share on other sites

A new question popped i my head, for anyone with experience in this.. whether it's my thyroid or lack of iron/b12.. should I be taking easy when I'm experiencing muscle fatigue or can I go on doing as I please on my bicycle :-D

0

Share this post


Link to post
Share on other sites

A new question popped i my head, for anyone with experience in this.. whether it's my thyroid or lack of iron/b12.. should I be taking easy when I'm experiencing muscle fatigue or can I go on doing as I please on my bicycle :-D

I don't know. I think that's a question for your doctor. :unsure: One thing to keep in mind is that sports injuries are much more common when people are extremely fatigued.

0

Share this post


Link to post
Share on other sites

I can understand the healthcare being slow. It's a pain in the rear.

However, if you do eventually get tested for coeliacs, don't forget to start eating gluten again before you do, so that it will show up in your tests that indeed your body cannot handle the gluten. I hope though that the reason you're losing strength isn't bad and can be easily fixed :)

0

Share this post


Link to post
Share on other sites

I would say it might be b12 / iron since I'm getting these sores at the corners of mouth.

Sores at the corners of my mouth went away when I stopped using toothpaste and mouthwash. I checked with my dental hygienist and she said it was really the brushing, not the polish, that cleans teeth. 2 years, 2 more hygienists and 2 dentists (we moved) have all confirmed that my teeth are fine (I floss 1x/day and brush 2x/day).

Not that it couldn't also be b12/iron issues, just that this helped me a lot! Full disclosure: I am consistently, barely below normal levels for my iron (have been since childhood).

Good luck!

On exercise, check out the greenling post with lots of responses on this sports/fitness forum about starting workouts again - consensus is that we recovering celiacs may need more rest days than we used to for our muscles/bodies to recover. So think about bicycling but perhaps not as many days a week as you would have 'once upon a time' - see how that goes.

0

Share this post


Link to post
Share on other sites

Sores at the corners of my mouth went away when I stopped using toothpaste and mouthwash. I checked with my dental hygienist and she said it was really the brushing, not the polish, that cleans teeth. 2 years, 2 more hygienists and 2 dentists (we moved) have all confirmed that my teeth are fine (I floss 1x/day and brush 2x/day).

Not that it couldn't also be b12/iron issues, just that this helped me a lot! Full disclosure: I am consistently, barely below normal levels for my iron (have been since childhood).

Good luck!

On exercise, check out the greenling post with lots of responses on this sports/fitness forum about starting workouts again - consensus is that we recovering celiacs may need more rest days than we used to for our muscles/bodies to recover. So think about bicycling but perhaps not as many days a week as you would have 'once upon a time' - see how that goes.

Hi Babysteps :-) Thanks for the recommendations!

0

Share this post


Link to post
Share on other sites

Have you been glutened recently? My husband found that after diagnosis and a gluten free diet he became much stronger despite thinking that he had no symptoms before diagnosis. I also became much stronger, but I had so many symptoms that it could easily have just been from being sick. He was on a business trip recently and suspects that he got a fair amount of accidental gluten consumption. Then he noticed that he was weaker. This has lasted a few weeks for him.

0

Share this post


Link to post
Share on other sites

I can understand the healthcare being slow. It's a pain in the rear.

However, if you do eventually get tested for coeliacs, don't forget to start eating gluten again before you do, so that it will show up in your tests that indeed your body cannot handle the gluten. I hope though that the reason you're losing strength isn't bad and can be easily fixed :)

Sorry about the misfire, folks. I'm a little ADD and my computer and connection are too slow.

I must disagree with both of these statements.

I caution anyone with possible celiac disease who has been gluten free for 2 months, especially those who have been gluten-free for 6 months, against gluten challenges. Your immune system will likely be hair trigger, greatly more able to respond more powerfully, and very angry. You can easily get a new autoimmune disease very quickly, and you may not be able to recover from it. This means you could permanently lose the functioning of an organ, or take many years to recover only partially. This means that the most likely organs to be the next target of your immune system are your brain or your endocrine system. I'm speaking from my own experience, as well as from listening to a gluten intolerant doctor who has written for celiac.com, who has more than 20 years of clinical experience specializing in gluten intolerance, and my own primary care MD, who has the same length of experience specializing in gluten intolerance, and who has it herself, as well as 4 years of thousands of email correspondences with thousands of other celiacs on another forum.

I also disagree that losing strength can be easily fixed. I have always loved bicycling, and fantasized about bicycle racing in the olympics as a 5 year old. I never competed, but became an aggressive amateur. I was diagnosed with celiac 4.5 years ago. As I stated on the second thread on this forum, if I push it or cycle more than 1 hour and 15 minutes, I can be wiped out and unable to do much for 1 to 3 days. I had a Great Plains Labs organic acids urine test, and one of their recommendations was alpha ketoglutarate. I take L-Arginine Alpha KetoGlutarate an hour before bicycling, then a large shake before riding, and I can get away with pushing it a little for an hour and 10 minutes, but still cannot handle bicycling for 2 days in a row. Apparently I have an impaired krebbs cycle (getting energy into cells). In 2010, I was up to riding 5 days a week again. However, last year I did not do so well, and ended by only cycling 1 or 2 days a week. Live blood cell analysis this year revealed a huge red blood cell oxidation problem, in addition to the hemolytic anemia which I have been aware of for 14 years, which is continuing to abate. My doctor spent 4 hours writing an email to me regarding mitochondrial energy problem help, in which she recommended 11 new supplements, some of which I have not gotten yet, due to verifying gluten-free status. I don't consider this easy.

1

Share this post


Link to post
Share on other sites

Dani,

I should mention also that I have exhausted adrenals and need to take thyroid, despite normal thyroid labs, or I can easily "crash".

0

Share this post


Link to post
Share on other sites

Hi Dani –

I am a gymnast and can totally relate to the constant "should I keep going, or stop" type questions. I recently started talking methyl b12 lozenges (after my serum b12 came back low) and have noticed a HUGE difference in my muscle strength. I mean, like night and day difference! I don't have much advice as far as recovery goes because I still haven't figured it out myself, but I do suggest that you follow your body and stop... especially since you're still recovering from celiac/gluten intolerance! Or....

It seems like it would make sense to shorten the amount of time you cycle each day... or even if you do decide to go for an hour one day, you could try going for 10 min the next... just to get out, you know? That works for me sometimes. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,113
    • Total Posts
      919,443
  • Topics

  • Posts

    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,150
    • Most Online
      1,763

    Newest Member
    Ayryil
    Joined