Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Why Am I Losing Strength?
0

21 posts in this topic

Yesterday was the first day of 2012 which I cycled as the snow has melted away :-) It went great, the whether was nice and I really enjoyed it because paddling was not a challenge. I know however that if I keep on cycling.. let's say one-hour rides once every two days, I will be getting weaker and weaker until I'm not able to push on the paddles anymore (by the middle of week 2), and cycling even on straight roads will become a struggle, as if the bicycle is refusing to move forward. I would then stop cycling all together for more than a week or two. After that I notice that my bicycle can be pushed forward with ease again.

From what I know, the more one exercises the stronger they get. So obviously I'm either lacking supplements or not stretching enough. Anyone else have this problem, and how did you solve it?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you had this checked out by a doctor? Yes, your muscles SHOULD get stronger. Muscles that become weak from exercise can indicate a number of illnesses that are NOT related to celiac. Many people with celiac develop other auto-immune diseases....so if you haven't had this particular problem evaluated, I would highly recommend that you do so. This could be a serious matter.

Alternatively, you may have either pernicious anemia or iron anemia, which would exhaust your muscles because they're not getting enough oxygen. Have you been tested for low Vitamin B-12 and iron? If not, this would be a good place to start.

0

Share this post


Link to post
Share on other sites

Being hypothyroid does that to me. I don't recover from exercise properly.

0

Share this post


Link to post
Share on other sites

Thanks both of you for the input. I haven't been checked yet, still waiting for appointment, but I did have thyroid checked two years ago I think, and it was fine. I would say it might be b12 / iron since I'm getting these sores at the corners of mouth.

I got myself some all-round supplements a few days ago. It was all the pharmacist could provide until I see the doc.

0

Share this post


Link to post
Share on other sites

It's quite possible that you're unable to absorb supplements right now, so you may find that the supplement the pharmacist gave you won't help at all. For some of us, we need to get our iron intravenously and either B-12 injections or sublingual tablets. The sublingual tablets are really inexpensive, so you might just try picking some up. If it's a B-12 problem, you'll see almost immediate improvement.

0

Share this post


Link to post
Share on other sites




It's quite possible that you're unable to absorb supplements right now, so you may find that the supplement the pharmacist gave you won't help at all. For some of us, we need to get our iron intravenously and either B-12 injections or sublingual tablets. The sublingual tablets are really inexpensive, so you might just try picking some up. If it's a B-12 problem, you'll see almost immediate improvement.

Thanks for your advice Rosetapper xoxo :-)

0

Share this post


Link to post
Share on other sites

You're welcome! But, please, see a doctor if you can--the muscle weakness you describe is very worrisome.

0

Share this post


Link to post
Share on other sites

Hey, you're not on a cholesterol-lowering drug are you?

0

Share this post


Link to post
Share on other sites

I will see a doctor. It can take a while as the health-care here is as fast as a turtle unless someone is dying.

Nope, I don't take any drugs. The only thing I used to take was birth-control for the amenorrhea which I stopped two months ago.

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that it takes so long to see a doctor. When you attempt to get an appointment, please stress that you're experiencing muscle weakness upon exertion that worsens the more you exercise. Hopefully, they'll wake up and schedule an appointment soon.

Good luck! And please let us know what happens, okay?

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that it takes so long to see a doctor. When you attempt to get an appointment, please stress that you're experiencing muscle weakness upon exertion that worsens the more you exercise. Hopefully, they'll wake up and schedule an appointment soon.

Good luck! And please let us know what happens, okay?

Thanks for the support, and will let you know :-) Xoxoxoxo

0

Share this post


Link to post
Share on other sites

A new question popped i my head, for anyone with experience in this.. whether it's my thyroid or lack of iron/b12.. should I be taking easy when I'm experiencing muscle fatigue or can I go on doing as I please on my bicycle :-D

0

Share this post


Link to post
Share on other sites

A new question popped i my head, for anyone with experience in this.. whether it's my thyroid or lack of iron/b12.. should I be taking easy when I'm experiencing muscle fatigue or can I go on doing as I please on my bicycle :-D

I don't know. I think that's a question for your doctor. :unsure: One thing to keep in mind is that sports injuries are much more common when people are extremely fatigued.

0

Share this post


Link to post
Share on other sites

I can understand the healthcare being slow. It's a pain in the rear.

However, if you do eventually get tested for coeliacs, don't forget to start eating gluten again before you do, so that it will show up in your tests that indeed your body cannot handle the gluten. I hope though that the reason you're losing strength isn't bad and can be easily fixed :)

0

Share this post


Link to post
Share on other sites

I would say it might be b12 / iron since I'm getting these sores at the corners of mouth.

Sores at the corners of my mouth went away when I stopped using toothpaste and mouthwash. I checked with my dental hygienist and she said it was really the brushing, not the polish, that cleans teeth. 2 years, 2 more hygienists and 2 dentists (we moved) have all confirmed that my teeth are fine (I floss 1x/day and brush 2x/day).

Not that it couldn't also be b12/iron issues, just that this helped me a lot! Full disclosure: I am consistently, barely below normal levels for my iron (have been since childhood).

Good luck!

On exercise, check out the greenling post with lots of responses on this sports/fitness forum about starting workouts again - consensus is that we recovering celiacs may need more rest days than we used to for our muscles/bodies to recover. So think about bicycling but perhaps not as many days a week as you would have 'once upon a time' - see how that goes.

0

Share this post


Link to post
Share on other sites

Sores at the corners of my mouth went away when I stopped using toothpaste and mouthwash. I checked with my dental hygienist and she said it was really the brushing, not the polish, that cleans teeth. 2 years, 2 more hygienists and 2 dentists (we moved) have all confirmed that my teeth are fine (I floss 1x/day and brush 2x/day).

Not that it couldn't also be b12/iron issues, just that this helped me a lot! Full disclosure: I am consistently, barely below normal levels for my iron (have been since childhood).

Good luck!

On exercise, check out the greenling post with lots of responses on this sports/fitness forum about starting workouts again - consensus is that we recovering celiacs may need more rest days than we used to for our muscles/bodies to recover. So think about bicycling but perhaps not as many days a week as you would have 'once upon a time' - see how that goes.

Hi Babysteps :-) Thanks for the recommendations!

0

Share this post


Link to post
Share on other sites

Have you been glutened recently? My husband found that after diagnosis and a gluten free diet he became much stronger despite thinking that he had no symptoms before diagnosis. I also became much stronger, but I had so many symptoms that it could easily have just been from being sick. He was on a business trip recently and suspects that he got a fair amount of accidental gluten consumption. Then he noticed that he was weaker. This has lasted a few weeks for him.

0

Share this post


Link to post
Share on other sites

I can understand the healthcare being slow. It's a pain in the rear.

However, if you do eventually get tested for coeliacs, don't forget to start eating gluten again before you do, so that it will show up in your tests that indeed your body cannot handle the gluten. I hope though that the reason you're losing strength isn't bad and can be easily fixed :)

Sorry about the misfire, folks. I'm a little ADD and my computer and connection are too slow.

I must disagree with both of these statements.

I caution anyone with possible celiac disease who has been gluten free for 2 months, especially those who have been gluten-free for 6 months, against gluten challenges. Your immune system will likely be hair trigger, greatly more able to respond more powerfully, and very angry. You can easily get a new autoimmune disease very quickly, and you may not be able to recover from it. This means you could permanently lose the functioning of an organ, or take many years to recover only partially. This means that the most likely organs to be the next target of your immune system are your brain or your endocrine system. I'm speaking from my own experience, as well as from listening to a gluten intolerant doctor who has written for celiac.com, who has more than 20 years of clinical experience specializing in gluten intolerance, and my own primary care MD, who has the same length of experience specializing in gluten intolerance, and who has it herself, as well as 4 years of thousands of email correspondences with thousands of other celiacs on another forum.

I also disagree that losing strength can be easily fixed. I have always loved bicycling, and fantasized about bicycle racing in the olympics as a 5 year old. I never competed, but became an aggressive amateur. I was diagnosed with celiac 4.5 years ago. As I stated on the second thread on this forum, if I push it or cycle more than 1 hour and 15 minutes, I can be wiped out and unable to do much for 1 to 3 days. I had a Great Plains Labs organic acids urine test, and one of their recommendations was alpha ketoglutarate. I take L-Arginine Alpha KetoGlutarate an hour before bicycling, then a large shake before riding, and I can get away with pushing it a little for an hour and 10 minutes, but still cannot handle bicycling for 2 days in a row. Apparently I have an impaired krebbs cycle (getting energy into cells). In 2010, I was up to riding 5 days a week again. However, last year I did not do so well, and ended by only cycling 1 or 2 days a week. Live blood cell analysis this year revealed a huge red blood cell oxidation problem, in addition to the hemolytic anemia which I have been aware of for 14 years, which is continuing to abate. My doctor spent 4 hours writing an email to me regarding mitochondrial energy problem help, in which she recommended 11 new supplements, some of which I have not gotten yet, due to verifying gluten-free status. I don't consider this easy.

1

Share this post


Link to post
Share on other sites

Dani,

I should mention also that I have exhausted adrenals and need to take thyroid, despite normal thyroid labs, or I can easily "crash".

0

Share this post


Link to post
Share on other sites

Hi Dani –

I am a gymnast and can totally relate to the constant "should I keep going, or stop" type questions. I recently started talking methyl b12 lozenges (after my serum b12 came back low) and have noticed a HUGE difference in my muscle strength. I mean, like night and day difference! I don't have much advice as far as recovery goes because I still haven't figured it out myself, but I do suggest that you follow your body and stop... especially since you're still recovering from celiac/gluten intolerance! Or....

It seems like it would make sense to shorten the amount of time you cycle each day... or even if you do decide to go for an hour one day, you could try going for 10 min the next... just to get out, you know? That works for me sometimes. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined