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Feeling Yucky
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My new years motto was stop whining since I finally found out why I was feeling poorly, but I can't help feeling so yucky with anxiety, headaches, gasses, and busted sinuses every day. When on earth am I going to get well :-( I'm tired of feeling anxious, and oh my god I'm so over the mind-fog. I just want to focus, put my mind into something productive and just get on with my life. On top of all the foods I've eliminated, seems that even more are going out the window until there is nothing but meat and veggies left. It sucks to have to cook yummy sauces, pasta, and potatoes for my husband while I eat a bloody salad :-( I miss cheese, and I miss eggs and creamy lasagnas. BLah

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Could I still be detoxing from soy and lactose?? When should I decide if more foods are to be eliminated

I don't know what to do. I have a deadline tomorrow and I can't think. My house is so bloody messy and gets dusty faster than I can think. Everything is disgusting

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I feel your pain! I have kept a good spirit throughout the process, but for me its has seemed three steps forward and one back, which is frustrating me.

I personally took the route of eating only a few things that I knew were safe for me... eggs, chicken, non-gassy veggies... then adding in something else, one item at a time. If there was no reaction, I added another. If there was a reaction, I waited at least a week before trying another new item.

And yet, my body is changing, now rejecting things that were ok a month ago! Joke is on me.

But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

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Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

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But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

Thanks for the comforting. I woke up feeling just a little foggy, but then the anxiety decided to kick in and I felt devastated. I'm starting from 0 and eliminated everything today. Hubs will have to eat up everything!

Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

Thanks for the tip Molly. I'm in the middle of changing clinics so I'm on my own for a while. I'm taking supplements which include everything at the moment. Don't know how effective that is.

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Gosh that sounds so much like me. I'm trying Failsafe diet at the moment, which means I have lentils, rice, and brussels sprouts coming out of my ears. :lol: My Dr. thinks part of the issue may be perimenopausal migraines. Ugh, yuck. I want my brain back, please.

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I agree with the other posters. Find a simple safe diet and then add things one per week. Keep a food/symptom journal so that you can track things back. If you keep to simple unprocessed foods it is easier to figure out. Keep track of brands too whenever you can. You will get back to a variety of foods before too long. It is challenging and requires discipline, but it's worth it to get yourself a safe diet.

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Yes, I started the diet yesterday, and I've been keeping a journal for three weeks now. I just needed to vent yesterday because everything was piling up and I felt useless. In case anyone might be wondering I managed to keep with my deadline today :-)

I'm on meat and veggies now, and I'm using olive oil and unfiltered apple cider vinegar. Nothing else. I'm not sure if it's necessary to exclude fruits though.

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You can always add fruits back if you start feeling better.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
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