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Feeling Yucky
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My new years motto was stop whining since I finally found out why I was feeling poorly, but I can't help feeling so yucky with anxiety, headaches, gasses, and busted sinuses every day. When on earth am I going to get well :-( I'm tired of feeling anxious, and oh my god I'm so over the mind-fog. I just want to focus, put my mind into something productive and just get on with my life. On top of all the foods I've eliminated, seems that even more are going out the window until there is nothing but meat and veggies left. It sucks to have to cook yummy sauces, pasta, and potatoes for my husband while I eat a bloody salad :-( I miss cheese, and I miss eggs and creamy lasagnas. BLah

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Could I still be detoxing from soy and lactose?? When should I decide if more foods are to be eliminated

I don't know what to do. I have a deadline tomorrow and I can't think. My house is so bloody messy and gets dusty faster than I can think. Everything is disgusting

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I feel your pain! I have kept a good spirit throughout the process, but for me its has seemed three steps forward and one back, which is frustrating me.

I personally took the route of eating only a few things that I knew were safe for me... eggs, chicken, non-gassy veggies... then adding in something else, one item at a time. If there was no reaction, I added another. If there was a reaction, I waited at least a week before trying another new item.

And yet, my body is changing, now rejecting things that were ok a month ago! Joke is on me.

But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

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Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

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But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

Thanks for the comforting. I woke up feeling just a little foggy, but then the anxiety decided to kick in and I felt devastated. I'm starting from 0 and eliminated everything today. Hubs will have to eat up everything!

Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

Thanks for the tip Molly. I'm in the middle of changing clinics so I'm on my own for a while. I'm taking supplements which include everything at the moment. Don't know how effective that is.

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Gosh that sounds so much like me. I'm trying Failsafe diet at the moment, which means I have lentils, rice, and brussels sprouts coming out of my ears. :lol: My Dr. thinks part of the issue may be perimenopausal migraines. Ugh, yuck. I want my brain back, please.

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I agree with the other posters. Find a simple safe diet and then add things one per week. Keep a food/symptom journal so that you can track things back. If you keep to simple unprocessed foods it is easier to figure out. Keep track of brands too whenever you can. You will get back to a variety of foods before too long. It is challenging and requires discipline, but it's worth it to get yourself a safe diet.

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Yes, I started the diet yesterday, and I've been keeping a journal for three weeks now. I just needed to vent yesterday because everything was piling up and I felt useless. In case anyone might be wondering I managed to keep with my deadline today :-)

I'm on meat and veggies now, and I'm using olive oil and unfiltered apple cider vinegar. Nothing else. I'm not sure if it's necessary to exclude fruits though.

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You can always add fruits back if you start feeling better.

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    • Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
    • Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!)  After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
    • If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes  Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
    • You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
    • I'm sorry you've been having such a rough time.  I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction.  A lot of people will react quite severely to even a tiny bit of gluten.  That's why there is so much on here about avoiding cross contamination.  Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat.  Your body will punish you for it.  :/  In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection.  Comfort foods, like broths and soups and smoothies.  You might want to avoid lactose for a few months too.  Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now.   And remember healing takes time.  So does learning the gluten free lifestyle.  Expect some setbacks occasionally.  You WILL get better!
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