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Los Angeles Pediatric Gi / Celiac Specialist
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We searched for a long time to find a great doctor in Southern California. For anyone within driving distance of Los Angeles, we highly recommend:

Dr. Michelle Pietzak, M.D.

Childrens Hospital Los Angeles

Gastroenterology & Nutrition

(323) 669-2181

4650 Sunset Blvd

Los Angeles, CA 90027

www.chla.org

Dr. Pietzak (aka "Dr. Pizza" to our girls) was awesome with us and the children. We (finally) feel like we're in good hands.

Also, I asked for a recommendation for an adult GI and have heard Dr. Lori Yam in Tarzana is quite good. She is at San Fernando Valley Gastro.

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I'm glad you found a good doctor in Dr. Pietzak. I just had a bit of a frustrating conversation with her scheduler and was told that she only sees confirmed celiacs. Since I have celiac, my son has a lot of symptoms but tested negative on blood work I wanted to see an expert in the area. Unfortunately Dr. Piezak doesn't want to see people like us!

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I also had numerous frustrating conversations with scheduling there. In fact, I still have very frustrating conversations with scheduling there. She sees patients on Thursdays. Keep calling. Be persistant. The schedulers are inconsistent, I promise you that!!!!!! My guess is that you will get your wish if you keep calling...that was my experience!

Also, another poster saw someone else in the group and had an excellent experience!

Hang in there!

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Thank you! Maybe I'll try again. I have my boys scheduled down in San Diego with someone from the UCSD Celiac center so I think they should be in good hands. I just want to get them in as soon as possible. Maybe I'll just nag the schedulers at both places every day for a week and see whether I get an appointment or banned from the practice. =)

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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