Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Not Yet Diagnosed


jessimarie3

Recommended Posts

jessimarie3 Rookie

Hello,

I was diagnosed with IBS in middle school (I am now 21) and never really improved. When I started college my doctor asked me to try a dairy free diet when help a lot until recently. 5 months ago I began to feel worse and my stomach cramps I used to have came back and I frequently was nauseous and had indigestion. I went to see my doctor again he believed it was just IBS related and asked if I have taken out dairy from my diet (which I did years before and was a little bothered that he didn't remember)and he suggested that I should try a gluten free diet along with taking stomach acid reducers. After 4 weeks on my new diet I felt pretty good. I no longer needed to take the stomach acid reducers to manage my nausea and heartburn and didn't have stomach cramps as often. I had a follow up appointment scheduled two weeks later I began eating gluten again and asked for an antibody test. When I ate gluten again I began to get nauseous and had my heartburn again. My stomach cramps would knock the wind out of me and I had a new symptoms such as achy joints the chills. My doctor thought I had Celiac's disease but did not suggest further testing, he instead told me he would order the antibody test I wanted but if it came back negative it doesn't mean that I am not sensitive to gluten or if my symptoms are even gluten related.

I'm feeling a bit discouraged and was wondering if anyone had any advice for me and what to do next.

Thank you

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ukdan Rookie

Celiac is very difficult to diagnose and the tests are notoriously unreliable. This is why if the tests do come back negative they tend to suggest taking out gluten anyway to see if you feel any benefit. It sounds like you have felt better without gluten so it looks like you are at least gluten sensitive.

The only difference between sensitivity and celiac is damage to the intenstines but the answer is the same (gluten free diet). If you want to be sure you could ask for an endoscopy but you would have to carry on eating gluten until the test to be sure. I am only being tested at the moment to be certain that there aren't any other underlying problems but intend to come straight back off it once I have had the tests as I was like you and felt better when I wasn't eating it.

At the end of the day trust your own body as many are happy to act 'as if' without having an official diagnosis.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    2. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    3. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    4. - trents replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Julie Riordan posted a topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,489
    • Most Online (within 30 mins)
      7,748

    Ronnieb8675
    Newest Member
    Ronnieb8675
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
×
×
  • Create New...