Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Old Hag Syndrome / Sleep Paralysis
0

28 posts in this topic

Someone just reminded me of something that used to happen to me before going gluten-free. It would be interesting to find out if other Celiacs have experienced this. My son who is also Celiac has also experienced it. I used to get episodes of what is called "Old Hag Syndrome". I am attaching a link that explains it. It is also called "Seep Paralysis". I just had the thought that maybe it was caused by Celiac because it has not happened to me since. It is a very scary situation where you wake up and cannot move a muscle - you hear and see and smell but cannot move. It feels like something or someone is holding you down and you try to yell out but can't. It only lasts a few seconds but it is very scary. Has anyone else experienced this syndrome?

Old Hag Syndrome

0

Share this post


Link to post
Share on other sites


Ads by Google:

All though interesting, very interesting, I don't see a connection to Celiac Disease. :)

0

Share this post


Link to post
Share on other sites

Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point.

This odd state of sleep so interested me, I actually wrote a novel based on it...and a possible reason for it (no, not supernatural). I'll be putting the finishing touches on my novel later this month. It's a good thing I didn't think there was a connection to celiac--that would have been a very boring novel!

0

Share this post


Link to post
Share on other sites

I had this happen to me a couple of mornings in a row, long before I became aware of celiac. It is a totally scary experience. I was alone in the house at the time, my mom was in hospital dying of cancer, and I have never talked to anyone about it. It has never happened again. I put it down to a combination of meds I was taking, and stopped taking the recently added one... :unsure:

0

Share this post


Link to post
Share on other sites

I used to have that all the time. It got so bad at one point that I was afraid to go to sleep and would stay up all night. I attributed it going away to my research on the subject and trying to turn it into lucid dreams. I didn't fight it like I had been doing. It is an interesting phenomenon.

0

Share this post


Link to post
Share on other sites




I had that a lot as a child and young adult. Not recently that I know of. Gluten is not an issue for me.

0

Share this post


Link to post
Share on other sites

Have any of you who have experienced more than one episode of sleep paralysis ever had a polysomnogram and Multiple Sleep Latency Test (MSLT)? I have celiac and narcolepsy and often experience sleep paralysis, which can be a symptom of narcolepsy.

0

Share this post


Link to post
Share on other sites

Interesting. I used to get Old Hag, also, usually when taking afternoon naps, but not so much anymore. Not sure if it was gluten-related, though.

0

Share this post


Link to post
Share on other sites

I have this sometimes, combined with poor sleep for pretty much my whole life. I had this last night in fact, and it lasted for about 10-30 seconds.

I am sensitive to both gluten and milk and have just started a diet, but haven't seen any change to this yet (sleep quality seems a bit better though -- I dream more the last week than I usually do in a month).

I have been speculating this could be related to gluten and/or casein sensitivity in some way as narcolepsy is associated with autoimmune reactions to the orexin system (critical component in the regulation of sleep, wakefulness and REM). Haven't seen any research investigating this though.

0

Share this post


Link to post
Share on other sites

yes! this has happened to me many times, it took a lot of explaining to my husband (who thought i was possessed). it is very scary but after knowing what it is it's not so bad, you can almost 'train' yourself not to freak out.

0

Share this post


Link to post
Share on other sites

i searched and found this thread- because i had this paralysis THIS MORNING!!!!! i believe it could be gluten related-> as SOME Celiacs get Narcolepsy & Apnea-> so i ASSUME that Sleep Paralysis and other sleep disorders could be caused by gluten.

im a little nervous tho- because i only had these episodes about 5 times maybe- on and off from Mid 90s to around 2005... all pre Celiac DX and pre-gluten free. so WHY this morning???? i know its *possible* that im getting too much through <20ppm gluten free junk food or cross contamination... BUT enough to bring on symptoms that i havent felt in YEARS????

0

Share this post


Link to post
Share on other sites

this also happens to people without celiac disease, it is a not so common sleep disorder.

0

Share this post


Link to post
Share on other sites

I never knew there was a name for this! I've experienced this several times in the past and I remember telling my step-dad what happened and he called me crazy. :lol: Thankfully, I haven't experienced anything like this since I went gluten-free a year ago.

Personally don't think there is a connection to Coeliac disease but it is interesting.

0

Share this post


Link to post
Share on other sites

I had this happen as a child and totally forgot about until it happened once about a month ago. Sure hope it doesn't happen again, very disturbing.

0

Share this post


Link to post
Share on other sites

I'm currently 21, and during the ages of 13-16, this syndrome plagued me. I just found out about my gluten sensitivity/ possible celiac about 1 month ago. I suspect Ice had it for several years, by looking back at all of my symptoms. I don't know how they'd be connected, but I know eating gluten can cause neurological symptoms. Sleep paralysis is easily the most terrifying think that's ever happened to me- I'm sorry for anyone that has to go through that.

0

Share this post


Link to post
Share on other sites

Omg! The same thing happened to me since I was around twelve. My doctor thought it may be linked to my bladder condition, interstitial cystitis (which was caused by my food sensitivities i was unaware of). According to my doctor, it is more common with those who have insomnia, wake excessively or fail to go through normal stages of sleep. I woke sometimes sixteen times a night to go to the bathroom. It's kinda a chicken and egg kinda thing for me, idk which came first but they are definitely related.

0

Share this post


Link to post
Share on other sites

I'm pretty sure this has happened to me, but I wake so slowly that it's never frightened me, as I don't wake and immediately try to move. I have never had it happen on a day where an alarm is waking me, so not sure really.

I'm pretty sure it's related to the hormones that regulate sleep. The body releases mild paralytic hormones that are designed to keep you from sleepwalking, it's theorized that a deficiency in these contributes to somnambulism. Too much and you get temporary waking paralysis.

0

Share this post


Link to post
Share on other sites

wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.

1

Share this post


Link to post
Share on other sites

I have suffered from sleep paralysis. I don't know if it's connected to celiac. I've only been gluten-free for two months now, but I have not experience sleep paralysis in those two months. However it only happened to me once or twice a year.

0

Share this post


Link to post
Share on other sites

This happened to me sometimes but has not happened since going gluten free.

0

Share this post


Link to post
Share on other sites

I have had sleep paralysis since I was 5. and it happend at least once a month. I would get so scared that I would stay up at night which would make it more likley to happen but when I went Gluten-Free it didn't really happen. I think there might be a connection.

0

Share this post


Link to post
Share on other sites

  :blink: I had an incident last night.

 

First time in years. Ugh, shivers as i think about it. I was like "is this what i think it is?". :unsure:

0

Share this post


Link to post
Share on other sites

Sorry Shadow :(

 

Hope you have a restful night tonight - scary stuff.

0

Share this post


Link to post
Share on other sites

I've never had this happen to me until my recent hospital visits related to celiac disease. It is now a recurring thing despite being gluten-free for nearly two weeks. It's very scary and I'm finding that I'm totally sleep disturbed since this has all been going on. I've been awake the majority of nights for days on end after gluten attacks. I feel like I'm in a nightmare sequence. I'm awake with panic and shortness of breath truly afraid that if I fall asleep that I will die. When I finally start to dose, the paralysis sets in while I'm still awake. it's very scary.

0

Share this post


Link to post
Share on other sites

Yes, I have had this happen a number of times in my life. It is terrifying!

 

I didn't read the link you posted, but one thing I have read in the past (and that has helped me avoid this) is that it occurs more frequently when you sleep on your back. I have no idea why this is the case, but changing your sleep position might help. I'm not a back sleeper usually, but every time it has happened to me that I can recall, I was sleeping on my back at the time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,095
    • Total Posts
      920,332
  • Topics

  • Posts

    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
    • I sit in an ice bath after a long training (running or riding).  It speeds my recovery, I swear!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,132
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined