Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Old Hag Syndrome / Sleep Paralysis


nb-canada

Recommended Posts

Celiac Ninja Enthusiast

I've had this a few times, Chiropractor and I thought it might be related to my scoliosis. Vertebrae and or muscle cramp disrupting the neck or something.

 

Later I learned, it does happen on my back every time, it's part of the melatonin in the base of the brain over producing. Not sure why or how, could be food allergies. Since I've gone gluten-free I no longer have these sleep paralysis episodes.

 

It is very frightening. Couldn't breath or move, only thing I could move is the scm muscles in my neck, slowly turn my head right and left and got out of it. That's why I thought it was a muscle spasm in the base of my neck or a vertebrae out, once I started moving it I could get out of it.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

This is what Sleep Paralysis (Old Hag Syndrome) is:

 

https://en.wikipedia.org/wiki/Sleep_paralysis

 

Colleen

Link to comment
Share on other sites
Waitingindreams Enthusiast

I've experienced this more times than I can count. It's always really scary! The worst part is that sometimes I will have dreams that I'm in water and I'll actually hold my breath in my sleep, and wake up gasping for air. That seems to happen a lot less often since I switched to a much healthier diet and started healing. (I was tested for sleep apnea, they said I don't have it)

 

The most recent episode happened this past Monday. I don't work Mondays, so I was home alone at my boyfriend's house while he was at work. I was watching a movie on his bed and I passed out - I was just feeling really tired. This was around 1-2PM. I was half awake (eyes half open, couldn't really move) and was lying on my side facing the doorway to his room. To my knowledge, everything looked as it should - it was daylight, his room looked the same, was just partially awake. Suddenly, my bf barged in to the room like he usually does and walked right over to me. I thought it was weird, because he told me he wasn't coming home for lunch. First he walked past me to check the air conditioner, then he came over to me to wake me up. He put his fingers on my neck to check my pulse, because he could tell I was in that half awake state. He asked me if I was okay and tried to wake me up. I didn't believe it was really him, so I was struggling to wake up. I tried to kick/slap him with my arms to see if I hit solid leg to prove that it was really him and I wasn't dreaming. I *hit* solid leg, or so I thought. When I eventually fully woke up, I realized that I was alone and that he never came home to check on me. I texted him to double check (it was so real) and he confirmed he had not come home. I do count this as sleep paralysis, because I was partially awake, not fully asleep, and I was really trying to wake myself up. Even though it could have been much more terrifying, it was really disturbing...it was so realistic but yet I still knew it wasn't him and tried to prove it, and somehow my brain tricked me into thinking I hit solid leg and that he -was- really there. So freaky. 

Link to comment
Share on other sites
  • 4 years later...
Ginniee Newbie
On 3/13/2012 at 10:03 PM, nb-canada said:

Someone just reminded me of something that used to happen to me before going gluten-free. It would be interesting to find out if other Celiacs have experienced this. My son who is also Celiac has also experienced it. I used to get episodes of what is called "Old Hag Syndrome". I am attaching a link that explains it. It is also called "Seep Paralysis". I just had the thought that maybe it was caused by Celiac because it has not happened to me since. It is a very scary situation where you wake up and cannot move a muscle - you hear and see and smell but cannot move. It feels like something or someone is holding you down and you try to yell out but can't. It only lasts a few seconds but it is very scary. Has anyone else experienced this syndrome?

Old Hag Syndrome

Yes I have! But mind last for 2-3 hours til I can fully move. But 100 mg of benedryl works wonders. My theory is that gluten causes CNS swelling somehow due to a rush of mast cells releasing huge amounts of histamine... and the result is the paralysis.  I am determined to figure out how the neural pathway is affected! 

 

Link to comment
Share on other sites
Ginniee Newbie
On 5/24/2014 at 12:45 AM, across said:

Yes, I have had this happen a number of times in my life. It is terrifying!

 

I didn't read the link you posted, but one thing I have read in the past (and that has helped me avoid this) is that it occurs more frequently when you sleep on your back. I have no idea why this is the case, but changing your sleep position might help. I'm not a back sleeper usually, but every time it has happened to me that I can recall, I was sleeping on my back at the time.

Yes! My full paralysis only happens on my back and if I sleep on my side it only happens to half my body- the side I am sleeping on.  It will take me 2-3 hours to come “out if it”. But I take 3-4 Benadryl pills (or liquid) and boom! It’s liike it relieves the CNS inflammation somewhere and speeds up my ability to move to like 1/2 hour.  Still tryin to figure out why it helps me- the neural pathway.... 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,174
    • Most Online (within 30 mins)
      7,748

    Art34
    Newest Member
    Art34
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
×
×
  • Create New...