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Struggling To Lose Weight...
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I was diagnosed with Celiac disease on January 25, 2011. I had been losing a lot of weight, fast. Once going gluten-free, and my innards began to heal, I put it back on. And then some, like 15 pounds MORE than I started with BEFORE I lost weight being ill. I was stuck on the whole "I have Celiacs now, it's going to be impossible to lose the weight, etc. etc. etc..." and I lived with that for about 4 months. I was unhappy how I looked, hated looking into a mirror. Lost my confidence.

Then, I realised something. Celiac disease did not take away my body's ability to lose weight. I gave up. Even though I have Celiac disease this same formula holds: Calories in < calories burned. Less input, more output. I gave up eating gluten-free bread, it is more calories than the wheat crap I ate before. Ditto pastas. I eat a slice of bread maybe once a week now. I started online Weight Watchers. I walk, use my exercise bike, play with my dogs in the back yard. I clean my house more vigorously. And, I am losing weight now. Being Celiac didn't stop me from losing weight, THINKING that I couldn't lose weight because I had Celiac's kept me from losing it.

Just a thought. Hope it helps someone get over what I was going though, which is what I call the Celiac Weight Dilemma. Commercially prepared gluten-free foods are high in calories. If you eat them, you need to burn them.

I now eat tons of fresh fruit, veggies, veggie and chicken stir fries, some beef (lean), and can now evern eat dairy products.

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Dee777, you have made my evening. I have been feeling SO DOWN. This is JUST the encouragement that I needed. I am going through the *same thing* *right now*. I have put on about 15 lbs, and can't seem to take it off. I recently switched back to ( I used to be vegetarian a looooong time ago ) juicing on a daily bases and am struggling to get exercise in regularly. I have been avoiding all processed gluten-free foods.......except Udis White Bread. Its killer, I love it with tomatoes or avocados or cinnamon sugar. Its the one thing I've been having a hard time letting go of. ( don't worry! I will! )

While I'm noticing a great difference in how I feel,( and how my painful Gluten attacks are shortening,!) I do feel extremely disheartened by the weight gain.

I will try harder to persevere thanks to you. ;)

Thank you so much.

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are you doing weight watchers on line or going to a meeting? I want to try weight watchers, but wasn't sure if it was adaptable to the gluten free diet, i made a post on here about it but no one replied :( If you have good weight watchers experience, i would love to know!

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Kaki,

I can't speak specifically from experience of WW and Celiac, but I have done WW before I had (or knew) celiac and was thinking of returning. There are no specific foods either required or forbidden by WW's terrific point system. You will find it very flexible and I'd encourage you to try it.

Best of luck. Also, I'm thinking my hypothyroidism is keeping about 20 pounds on that I'd like to lose. Hopfully when we reach a good med level I will start to lose it.

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The only danger with WW (like with any other diet) is that you become obsessed with food. If you actually follow the point recommendation, you will be eating way less than your body needs (thus the losing weight part), but that's all that you'll end up thinking about. I don't remember the exact number, but 97% (or more) end up regaining all that they've lost, and then some, when they stop doing Weight Watchers. I lost 15 pounds, but then gained 35, and turned into a binger for the first time in my whole life. It's taking a LONG time to get over that. So be cautious.

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The only danger with WW (like with any other diet) is that you become obsessed with food. If you actually follow the point recommendation, you will be eating way less than your body needs (thus the losing weight part), but that's all that you'll end up thinking about. I don't remember the exact number, but 97% (or more) end up regaining all that they've lost, and then some, when they stop doing Weight Watchers. I lost 15 pounds, but then gained 35, and turned into a binger for the first time in my whole life. It's taking a LONG time to get over that. So be cautious.

Sunny I am so glad you brought up the part about obsessing over foods. I gained 35 lbs while on chemo the last 18 months (who does that, gain weight on chemo, uggghh). I was in a very rigid food program and all I did was think about food/binging. Now I am just working on eating better and avoiding the junk foods. I agree that the "gluten friendly" foods are frequently high in fats and sugars. Thanks again.

Fran

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This post is so helpful. I was just diagnosed yesterday. This gives me hope and some ideas of what to do and what not to do. These forums are so helpful. I seriously don't know what I would do without them. :)

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I never could lose on WW. I loved Atkins before they diagnosed my celiac disease as gallbladder and removed it. Now I am just doing a basic ketogenic diet. Cannot consume that much fat.

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I too am also having the weight gain issue. I get so excited when I find my favorite foods in the gluten free version that I keep eating pasta, brownies, etc. I am also hypoglycemic and Hypothyroid as well so those 2 along with Celiac isn't helping the weight issue. I wonder have any of you guys checked into Body by Vi ??? I ordered the shake mix because it does say Gluten free but I am unsure about the add in flavors and supplements. All of my research Just shows info on the shake mix. Im going to start the shakes Monday so if any of you Seasoned Celiacs know anything about this program id love some input. I have the DH, the raw/white tongue, stomach reactions, depression etc so I am thinking these shakes may give me a little help in letting my intestines heal :)

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Thank you for sharing this! I got a lot of encouragement from your story!

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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