Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Wish Me Luck!


ukdan

Recommended Posts

ukdan Rookie

So after what feels like two long months my endo/colonoscopy is tomorrow and to be honest I can't wait!

This challenge alone has been enough to convince me that gluten obviously doesn't agree with me and I fully intend to remove every trace of it whatever the results.

I'm not really seeking advice, more just sharing my experience for anyone in the same boat and wondering whether to test or not. For me it has been rough but also for my peace of mind I also wanted to make sure there is nothing more sinister going on.

Is it wrong to be hoping it to be coeliac?! I know its not fun sometimes but I'm quite prepared for going gluten free again with the advice I've picked up on here and looking forward to getting my life and health back on track!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



youwillrise Rookie

I kinda feel the same way. I'm hoping it's celiac because I can make lifestyle changes and be in control...and eventhough ill always have celiac (IF I do have it, I mean), it makes a difference knowing that I can do something to reduce the crazy symptoms and actually feel good. of course, i'd rather not have any disease, but if I'm gonna have one...I wish it to be one that I can fix and if I can't "fix" it...id like to be in control of it.

Best wishes with your endoscopy...hope all goes well! I'm still in the blood testing phase. I've been thinking of the possibility of an endoscopy...it scares me. Haha. I'm such a wuss. I'm not sure ill have the GUTS to do it...

Yeah, I know...cheeeesy.

Link to comment
Share on other sites
Ninja Contributor

I'm right there with you

Link to comment
Share on other sites
ukdan Rookie

I definitely understand what you mean youwillrise about control which is probably why I'm hoping for celiac/gluten sensitivity rather than anything else!

I had my blood test earlier in the week, my doc has been very understanding and arranged all the tests around the same time to limit the inconvenience so in theory I'll get all my answers in one go. Will let you know what happens!

Link to comment
Share on other sites
tennisman Contributor

I think it's wrong to hope you have Coeliac disease because it really is a horrible disease but I can understand why you want it so you can find out what's wrong and get better :) Good luck !

Link to comment
Share on other sites
Bubba's Mom Enthusiast

I understand wanting the Dx. It lets you put a name to your health issues..and gives you a treatment plan. Much better to know and control it, rather than go through years of ill health, lots of useless tests, and the opinions that you are a hypochondriac.

The scope isn't a bad test to have. You don't feel a thing.

Good luck!

Link to comment
Share on other sites
ravenwoodglass Mentor

Good luck with the scope. I hope you get some answers but do keep in mind that false negatives are fairly common so do try the diet strictly after your scope is done. You don't need to wait for the results.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ukdan Rookie

The scopes went fine and the gluten free diet (take 2) has started! The doc said it all looked clear but took biopsies to look at 'just in case' *rolls eyes*.

Will see if they say the same when they actually look at the biopsies properly, although apparently that may not be for another month- the wonders of the NHS!

Link to comment
Share on other sites
youwillrise Rookie

Glad to hear! Here's to you and your health. ; )

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,185
    • Most Online (within 30 mins)
      7,748

    Shelleyb
    Newest Member
    Shelleyb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
×
×
  • Create New...