A reallllly important point that the leader of my celiac support group pointed out to me - feeling super depressed, frustrated, and hopeless are total red flags that you've been glutened. When I joined the support group it was because I was feeling all of those things and very scared. Turned out I was definitely being cross contaminated. Even the most minute amounts affect me. I am sorry your family isn't very supportive :/ In my experience it is best to focus on you and getting yourself healthy and happy and with time they will see the improvement in you. If you are celiac and and not 100% avoiding all gluten and cross contamination then it is very likely for you to still feel cruddy. Do you live in a gluten-free household? This is very important. I had to kick my roommate out because he just couldn't follow the guidelines to keep me safe. Also, do you check any shampoos, lotions, makeups, etc.? I read a poorly misinformed book when I first was diagnosed that said if you're not eating it, that it doesn't matter - BS! I have gotten sick from mascara that had wheat in it, shampoo, even hairpsray. You ingest small amounts of those products and they build up and you react. Not everybody reacts to the small amounts but it sounds like you probably do.
It can feel so frustrating to be surrounded by people that don't understand. I highly recommend joining a local support group. If found mine through the Celiac Sprue Association website. I have learned so much from them and through the group have even found a few amazing restuarants that I can eat out at! We share recipes, stories, and rants about family and friends that just don't "get it". I also got into some inexpensive counseling so that I have somewhere to go each week and talk about me and my experiences and frustrations. I highly recommend that.
Stick to your guns and give your family some time. My dad is the most old - school skeptical man on earth. He thought this was some fad diet or made up thing. It has taken me 10 months of being gluten free and him seing HUGE changes in my life, heatlh and behavior. I could NOT believe it when he actually accepted a celiac brochure from me a couple of weeks ago and was even more in dismay when I received a call from him that he is now being tested for celiac Never give up hope!
You WILL be okay. It will be hard. And it will be easy. It will get frustrating, then you will find hope. You will find an amazing restuarant you can eat at then you will cross contaminate yourself on accident. Its a learning experience but it does get easier all the time. Its a roller coaster! The best advice I was given was to really focus on getting myself as healthy as possible so that if I DO happen to get glutened, my body is super strong and healthy to fight it. Best wishes to you and keep your chin up
I have tried to make my house gluten-free ... replaced pots, pans, cutting boards, etc. I didn't replace things like plates or silverware. I checked all my personal care products and just realized last week that my cat's food - which I thought was gluten-free - actually isn't (which is a problem because he likes to rub himself on my face ...) so I'm in the process now of changing his food.
Most people do seem to think it's a fad diet. I have a relative who's now asked a couple of times, "So when someone stops eating gluten and then eats it again, they get sick?" And I have to explain again, "ONLY if they are already gluten-intolerant!" Why would I just eliminate all of my favorite foods for no reason so that when I eat them in the future, I would get sick?
I guess part of the confusion is that I didn't seem
sick, and if you're young and you look healthy, people assume you are.
But, you'll all be happy to know that I've patched things up with my mom and hopefully things will be uphill from here ...