Can Dh Disappear For Years And Then Come Back?
Posted 19 March 2012 - 10:58 AM
Fast forward to last November and I was having bloating after almost every meal, occasional D and occasional itchy bumps, mostly on my ankles and legs. They itched worse at night and sometimes I would find random bruises from scratching so hard during the night. I didn't know enough to connect the skin issues to gluten, but I went gluten-free based on things I had read and my GI symptoms. I have been gluten-free for about 3 months. The gluten-free diet seems to be working, as most of my GI symptoms are gone. Like many new to the diet I am still learning. I think I may have DH but am not sure - I get tiny, itchy bumps that no amount of lotion, cream, etc. will help, and then after a few days or a week they go away. I am still having them even since going gluten-free but I realize I could be getting CC'd or they could be triggered by iodine or something else. I am not sure if I have DH, but I wonder if it is at all possible that the breakout I had many years ago was also DH and it went into "hiding" until last fall? This seems crazy to me, but got me thinking maybe I have been having some reactions to gluten for longer than I realize. Has anyone known DH to do this?
Posted 19 March 2012 - 11:02 PM
I think most people with DH will say that they had a variety of skin issues off and on before DH really took hold. Many of these disappeared or got better on a gluten free diet.
So were the other issues DH?
I've got to the point where I don't think the labels matter particularly. If it responds to a gluten free diet it's coeliac/DH, in my opinion.
If it doesn't respond then it's either not a coeliac related condition, or one isn't on a strict enough diet.
Your blisters sound simlar to blisters I used to get, but no longer get on a gluten free diet, so maybe they were coeliac related.
Posted 20 March 2012 - 02:57 AM
Maybe there are some who are cured of DH, but of course they will not have any further interest in the web site and we won´t hear from them. But i would like very much like to hear their story, so if you are one of them please, please let us know.
Posted 20 March 2012 - 05:20 AM
Posted 21 March 2012 - 03:09 AM
Yes, DH can disappear (without going gluten-free) and then return. Happened to my father.
So interesting to know that this has happened to others. I am so curious if that's what I had back then...looking at the photos of DH makes me think it was.
Thanks for the replies!
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users