Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Vs Gluten Intolerance
0

8 posts in this topic

Hi! I know this question may seem dumb but I just want to make sure that I understand right. I have been reading every gluten/celiac book I can get my hands on and searching the internet and still am not *sure*.

DD (2.5) has gluten tolerance I am fairly certain, however, her panel and biopsy were negative for celiac. (she had been off gluten for a week with one and two weeks with one, I know, results aren't for sure accurate because of this)

So my question is, Can she have bone loss, malnutrition, "failure to thrive", huge belly, teeth problems, etc---and it "just" be gluten tolerance?

Just want to make sure that gluten tolerance can cause these major side effects as well.

She has other problems as well like:

-chronic yeast infections

-irritability

-weak

-developmental delays

-horrible night/nap sweats

-bathroom "issues"

-allergy eyes- poor color

-Overall just doesn't feel "good"

and a few others that I am sure I am forgetting.

She goes to the Pediatric orthopedic Friday since her leg has taken so long to heal, is crocked, and still hurts her so much. Keep her in your prayers please and thanks again for all the help. I am very grateful to have access to this form.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Poor girl. I'm not sure of all the ins and outs, but I do know that some considere gluten intolerance to be a spectrum disorder and also that she could still be Celiac with negative tests especially considering her age.

0

Share this post


Link to post
Share on other sites

Hi Rachel,

I'll dig up an article and get back to you on this. In the meantime, I'm thinking of you and sending prayers your way!

0

Share this post


Link to post
Share on other sites

thanks for the reply:) I really REALLY believe her hair has grown SO SO SO much in the past month (gluten free) And her stomach is so much smaller. On another note, she is constipated today!? what in the world? she use to be the opposite?!!?

0

Share this post


Link to post
Share on other sites




thanks for the reply:) I really REALLY believe her hair has grown SO SO SO much in the past month (gluten free) And her stomach is so much smaller. On another note, she is constipated today!? what in the world? she use to be the opposite?!!?

Keep in mind that kids are kids and things happen that won't always be related to gluten. Constipation happens a lot when you're dehydrated or even low on fluid in your body. It could be something she ate (too much cheese or something). Up her water intake a few ounces a day and see what it does.

Honestly, I think that if the constipation were a result of being glutened, you would have other symptoms. If she's making progress and this popped up out of nowhere, it's probably something minor.

0

Share this post


Link to post
Share on other sites

My 3yo is Gluten Intolerant. She was diagnosed based on symptoms-anemia, malnutrition, vomiting, irritability, slow growth, etc. This was before 12 months and her main source of nutrition was breastmilk! All of these symptoms slowly went away once she was gluten-free. Anyway, I spoke with someone at the lab that does all of the genetic testing and she told me (2 yrs ago) that the test just aren't good enough yet to rely on the results in little ones. So, we don't know if she has an allergy, intolerance or Celiac. It doesn't matter to me since I know she's healthy without gluten and sick as a dog with gluten in her diet! Our ped. agrees and won't even allow us to gluten her up for a biopsy! So, until SHE wants to know what it really is....we're happy with her current dx! Good luck mama! It's tough in the beginning but it does get easier :

Oh, your question.......after a discussion with our ped., yes, it can be "just" GI.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,310
  • Topics

  • Posts

    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined