Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hashimoto's
0

23 posts in this topic

I recently had my TSH level tested and is is apparently fine. Are any additional or different tests needed if the problem is Hashimoto's rather than straightforward hypothyroidism?

Thanks for any help you can give.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hashimoto's is handled like any other hypothryroidism. My endocrinologist runs T4 and T3 along with the TSH though. If you're only getting TSH and still having hypo symptoms you may need more testing.

0

Share this post


Link to post
Share on other sites

Thank you. I'll ask my doctor exactly what was tested. I am getting tireder and tireder and all the symptoms match.

0

Share this post


Link to post
Share on other sites

TO check for hashimoto's you specifically need to get antibodies tested. TPO and your thyroid antigloubin (i think the 2nd one is called that). You also should get a full thyroid panel that consists of tsh, t3, ft3, f4, ft3, and the antibodies. Iron and vit D are important too.

0

Share this post


Link to post
Share on other sites

thyroid antigloubin

Anti-thyroglobulin. ;)

I'm not meaning to be a pest, by the way. I just thought I'd put the right name in the thread so India can ask for the test from her Dr. I know them all too well because I have Hashi's. :( It doesn't matter much though. There is nothing to be done for thyroid autoimmunity other than give thyroid hormones and watch it like any other hypothyroid condition.

0

Share this post


Link to post
Share on other sites




Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x

0

Share this post


Link to post
Share on other sites

Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.

0

Share this post


Link to post
Share on other sites

I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)

0

Share this post


Link to post
Share on other sites

I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)

No, I don't feel normal. I've been having chronic migraines and cognitive problems since my Hashimoto's got bad almost two years ago. But natural thyroid at least keeps the hypo- symptoms at bay.

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.

0

Share this post


Link to post
Share on other sites

My mother has Hashimoto's and although I have had every test under the sun for my thyroid, there has never been an conclusion as to the similar symptoms which I experienced. I can say however that when I am ill or something bothers me in my diet I can have everything from fatigue to a severe goiter. As I recently had these problems within the last couple of months I too was slightly low in vitamin d. Vitamin d being low can really make you feel miserable but a lot of times I will have hormonal problems right before I come down with something or am recovering, or even fighting off a cold and not having any other symptoms. In the process of fighting off an illness a lot of times I get symptoms that clearly are problematic but that show no abnormal levels in bloodwork. Further testing revealed no other problems but interestingly I have had some bad strains of bacteria in my system which causes my antibodies to attack my throat and thyroid, due to a hightened immune response. It is a reoccuring problem I have but sometimes I don't even realize I'm sick. It's quite easy for me to get infections and bacteria can build up without my knowing. Although you may have Hashimoto's if all bloodwork is inconclusive, I would recommend checking bacteria levels, infection, and def get plenty of sunshine. It makes a big difference. I take a supplement called ther-biotic detoxification support by klaire labs which counters the bad bacteria in your system by replacing it with good. My dietician or nutritionalist recommended it to me. That too is always helpful in preventing any buildup. I find that everything in my life is a result of some sort of nutritional problem. My problems have resolved on their own, next to sunshine, and preventing bacteria buildup. But i am no doctor and I do not know your situation. There are also other diseases, autoimmune, etc. that may cause thyroid problems and similar symptoms.

0

Share this post


Link to post
Share on other sites

Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x

Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.

I agree with Skylark. It is important, once you are being treated for hypothyroid, to have them test your actual thyroid hormones. They should run the Free T3 and Free T4 tests along with TSH. TSH alone is not the way to adjust thyroid meds, it doesn't reveal much about your thyroid function if you are being treated with supplementary hormone.

"Normal" TSH could be too high for you.

0

Share this post


Link to post
Share on other sites

Actually there is SOMETHING you can do when you have hashi's (besides treating your disease with thyroid meds) you can go gluten-free. gluten-free can stop the autoimmune attack on your thyroid. If you have hashi's you most likely shuld be gluten-free.

Also taking supplements can help, iodine has controversy, i take it, and sellenium is know to bring down antibodies.

0

Share this post


Link to post
Share on other sites

and YES your tsh can be normal and you can still be suffering thyroid disease. The antibodies will tell you if you have hashimoto's , which is the autoimmune diseae attached to hypo thyroid:(

0

Share this post


Link to post
Share on other sites

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.

Thanks for the kind words. :) You have my sympathy as well. Cognitive problems are no fun at all.

0

Share this post


Link to post
Share on other sites

Hi all,

I was diagnosed with Hashi's a year ago. Was quite freaked out, as you can imagine. Did tons of research, but not much hopeful info. Anyway, I went gluten and dairy free, started with supplements, improved my lifestyle. My antibodies started going down in count and the last few tests they were pretty much gone! No medication, by the way, although my doc wanted me to start those if things didn't improve.

Yes. I believe gluten has something to do with it (read some reference to a study about it).

I really hontestly believe Hashi's can be cured or controlled naturally. Just have to find naturopath doctor. I have some references if you are in Chicago.

I lot of icky symptoms are gone, such as tiredness, being cold all the time, difficulty getting out of bed, cloudy thinking, etc. Even my acne disappeared :)

By the way, my doc also told me that Hashimoto's can be affected by other imbalances, such as low iron and adrenal fatigue. etc (which is what I had). So you kinda have to check for a bunch of things and balance all systems in order to achieve faster recovery.

If you want to know more about my experience, feel free to ask...

I wish you all the best and quickest recovery.

0

Share this post


Link to post
Share on other sites

Absolutely get the testing for autoimmune thyroid- I had always had normal TSH tests, but once learning I had celiac my GI ran the more complete thyroid panel (T3, T4 etc) in addition to the testing for autoimmune thyroid. I am normal on all of the above tests, but it is a great thing to know that and go on making myself healthy. It is such useful information.

Good luck!

0

Share this post


Link to post
Share on other sites

They can also do a fine-needle biopsy and look at the cells to see if Hashi's exists. I never got tested for that but had a partial thyroidectomy to remove some large nodules, and it was when they looked under the microscope that they saw the Hashimoto cells... and thyroid cancer. So, no thyroid for me anymore, but at least I know I have Hashimoto's (in addition to Celiac) so I have some awareness on what's causing my tiredness, brain fog, etc.

Get the AB test and if you suspect that's what it is, ask for the fine needle biopsy too. They only take out a few cells with a needle they insert into your neck.

Good luck!

0

Share this post


Link to post
Share on other sites

They can also do a fine-needle biopsy and look at the cells to see if Hashi's exists. I never got tested for that but had a partial thyroidectomy to remove some large nodules, and it was when they looked under the microscope that they saw the Hashimoto cells... and thyroid cancer. So, no thyroid for me anymore, but at least I know I have Hashimoto's (in addition to Celiac) so I have some awareness on what's causing my tiredness, brain fog, etc.

Get the AB test and if you suspect that's what it is, ask for the fine needle biopsy too. They only take out a few cells with a needle they insert into your neck.

Good luck!

There is no need to have a needle biopsy to check for Hashi's as the blood testing for antibodies will tell you that. The biopsy was used to diagnose before the antibody tests were developed. They usually do the needle biopsy if you have nodules.

0

Share this post


Link to post
Share on other sites

Hi all,

I was diagnosed with Hashi's a year ago. Was quite freaked out, as you can imagine. Did tons of research, but not much hopeful info. Anyway, I went gluten and dairy free, started with supplements, improved my lifestyle. My antibodies started going down in count and the last few tests they were pretty much gone! No medication, by the way, although my doc wanted me to start those if things didn't improve.

Yes. I believe gluten has something to do with it (read some reference to a study about it).

I really hontestly believe Hashi's can be cured or controlled naturally. Just have to find naturopath doctor. I have some references if you are in Chicago.

I lot of icky symptoms are gone, such as tiredness, being cold all the time, difficulty getting out of bed, cloudy thinking, etc. Even my acne disappeared :)

By the way, my doc also told me that Hashimoto's can be affected by other imbalances, such as low iron and adrenal fatigue. etc (which is what I had). So you kinda have to check for a bunch of things and balance all systems in order to achieve faster recovery.

If you want to know more about my experience, feel free to ask...

I wish you all the best and quickest recovery.

Some people can control their Hashi's without replacement hormone but those are few and far between. For many of us that went many years without a diagnosis, too much damage has been done and that cannot be reversed. Besides, it isn't medication that you take, just replacement hormone that you don't make enough of. There are natural thyroid supplements also, which work very well.

0

Share this post


Link to post
Share on other sites

I am having thyroid issues as well (very low fT3). I've been gluten-free for about 7 years now (am celiac) and had thyroid antibodies tested - 34, subclinical. My ND feels like my thyroid issues are likely Hashi's since I am celiac, and said that it's not surprising antibodies would be low since I eat gluten-free/autoimmune friendly. Since the majority of hyop cases are due to Hashi's, I'm inclined to believe her... anyone had any experience with this, subclinical antibodies but Hashi's?

0

Share this post


Link to post
Share on other sites

I recently had my TSH level tested and is is apparently fine. Are any additional or different tests needed if the problem is Hashimoto's rather than straightforward hypothyroidism?

Thanks for any help you can give.

I wish I had known about Celiac BEFORE Hashimoto's. I had my thyroid removed because I could not stop the autoimmune attack on my thyroid. My TSH was always NORMAL even right before I had my thyroid removed. My symptoms were all related to the auto-immune attack - I felt sick and had cognitive problems. I wonder if I had gone gluten free before I had my thyroid removed if I could have kept my thyroid. When it was removed the biopsy showed that my body had pretty well chewed it up! I don't think that the symptoms you have from Hashimoto's are limited to symptoms of low thyroid. For about 6 months I felt spectacularly awful and it was due to inflammation - probably of my thyroid and my gut. I did have to push my doctor to get me the tests and referrals I needed - it was a process, after every test that showed I was 'normal' and 'healthy' I felt like I had to start over with OK, I get it I don't have "X" diagnosis but I STILL FEEL CRAPPY! What next? Perseverance paid off...I got my dx for Hashimoto's and Celiac and although I still get glutened I am getting better! Hang in there - and keep pushing your doc.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined