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Hashimoto's


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22 replies to this topic

#1 India

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Posted 26 March 2012 - 11:12 AM

I recently had my TSH level tested and is is apparently fine. Are any additional or different tests needed if the problem is Hashimoto's rather than straightforward hypothyroidism?

Thanks for any help you can give.
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

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#2 Skylark

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Posted 26 March 2012 - 11:44 AM

Hashimoto's is handled like any other hypothryroidism. My endocrinologist runs T4 and T3 along with the TSH though. If you're only getting TSH and still having hypo symptoms you may need more testing.
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#3 India

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Posted 26 March 2012 - 11:48 AM

Thank you. I'll ask my doctor exactly what was tested. I am getting tireder and tireder and all the symptoms match.
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#4 gem75

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Posted 26 March 2012 - 11:56 AM

TO check for hashimoto's you specifically need to get antibodies tested. TPO and your thyroid antigloubin (i think the 2nd one is called that). You also should get a full thyroid panel that consists of tsh, t3, ft3, f4, ft3, and the antibodies. Iron and vit D are important too.
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#5 Skylark

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Posted 26 March 2012 - 12:19 PM

thyroid antigloubin

Anti-thyroglobulin. ;)

I'm not meaning to be a pest, by the way. I just thought I'd put the right name in the thread so India can ask for the test from her Dr. I know them all too well because I have Hashi's. :( It doesn't matter much though. There is nothing to be done for thyroid autoimmunity other than give thyroid hormones and watch it like any other hypothyroid condition.
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#6 India

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Posted 26 March 2012 - 01:27 PM

Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#7 Skylark

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Posted 26 March 2012 - 01:41 PM

Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.
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#8 India

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Posted 26 March 2012 - 01:45 PM

I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#9 Skylark

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Posted 26 March 2012 - 01:52 PM

I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)

No, I don't feel normal. I've been having chronic migraines and cognitive problems since my Hashimoto's got bad almost two years ago. But natural thyroid at least keeps the hypo- symptoms at bay.
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#10 India

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Posted 26 March 2012 - 02:07 PM

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#11 NutritionalCeliac

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Posted 26 March 2012 - 03:39 PM

My mother has Hashimoto's and although I have had every test under the sun for my thyroid, there has never been an conclusion as to the similar symptoms which I experienced. I can say however that when I am ill or something bothers me in my diet I can have everything from fatigue to a severe goiter. As I recently had these problems within the last couple of months I too was slightly low in vitamin d. Vitamin d being low can really make you feel miserable but a lot of times I will have hormonal problems right before I come down with something or am recovering, or even fighting off a cold and not having any other symptoms. In the process of fighting off an illness a lot of times I get symptoms that clearly are problematic but that show no abnormal levels in bloodwork. Further testing revealed no other problems but interestingly I have had some bad strains of bacteria in my system which causes my antibodies to attack my throat and thyroid, due to a hightened immune response. It is a reoccuring problem I have but sometimes I don't even realize I'm sick. It's quite easy for me to get infections and bacteria can build up without my knowing. Although you may have Hashimoto's if all bloodwork is inconclusive, I would recommend checking bacteria levels, infection, and def get plenty of sunshine. It makes a big difference. I take a supplement called ther-biotic detoxification support by klaire labs which counters the bad bacteria in your system by replacing it with good. My dietician or nutritionalist recommended it to me. That too is always helpful in preventing any buildup. I find that everything in my life is a result of some sort of nutritional problem. My problems have resolved on their own, next to sunshine, and preventing bacteria buildup. But i am no doctor and I do not know your situation. There are also other diseases, autoimmune, etc. that may cause thyroid problems and similar symptoms.
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#12 beachbirdie

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Posted 26 March 2012 - 03:52 PM

Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x



Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.



I agree with Skylark. It is important, once you are being treated for hypothyroid, to have them test your actual thyroid hormones. They should run the Free T3 and Free T4 tests along with TSH. TSH alone is not the way to adjust thyroid meds, it doesn't reveal much about your thyroid function if you are being treated with supplementary hormone.

"Normal" TSH could be too high for you.
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#13 gem75

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Posted 26 March 2012 - 04:04 PM

Actually there is SOMETHING you can do when you have hashi's (besides treating your disease with thyroid meds) you can go gluten-free. gluten-free can stop the autoimmune attack on your thyroid. If you have hashi's you most likely shuld be gluten-free.
Also taking supplements can help, iodine has controversy, i take it, and sellenium is know to bring down antibodies.
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#14 gem75

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Posted 26 March 2012 - 04:08 PM

and YES your tsh can be normal and you can still be suffering thyroid disease. The antibodies will tell you if you have hashimoto's , which is the autoimmune diseae attached to hypo thyroid:(
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#15 Skylark

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Posted 26 March 2012 - 10:20 PM

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.

Thanks for the kind words. :) You have my sympathy as well. Cognitive problems are no fun at all.
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