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Dh And Sores On Gums
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47 posts in this topic

I think I'd quit the oral antibiotics. I'm not sure where you read about the gum infections (never a problem for me) but even if true if you're gluten-free I'd think that would go away.

richard

My mind was out of it sorry. I read that gum infections are associated with prolonged use of birth control pills not celiac. I took them as medication for 25 years before finding out I could have celiac.

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Sorry, no, my daughter and I have never used an anti-fungal mouthwash. My daughter tried many different kinds of canker sore medications with varying results. During chemo, I used a type of mouthwash that is prescribed for the condition (it wasn't thrush). In the end, I lost all of the mucosal lining in my mouth and on my gums...and one by one the crowns on my teeth popped off and had to be re-cemented. Obviously, this won't happen to you....and I think it sounds as though your mouth is beginning to heal. It may be that you're sensitive to a common food in addition to gluten. My daughter swears that hers are triggered by citrus fruits.

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Sorry, no, my daughter and I have never used an anti-fungal mouthwash. My daughter tried many different kinds of canker sore medications with varying results. During chemo, I used a type of mouthwash that is prescribed for the condition (it wasn't thrush). In the end, I lost all of the mucosal lining in my mouth and on my gums...and one by one the crowns on my teeth popped off and had to be re-cemented. Obviously, this won't happen to you....and I think it sounds as though your mouth is beginning to heal. It may be that you're sensitive to a common food in addition to gluten. My daughter swears that hers are triggered by citrus fruits.

You use that mouth wash for you immunity condition? That sounds like a horrible experience. Sorry to hear that xoxoxo

I had added citrus back into my diet just a day before the swelling and ate it again on the next days while it was getting worse. This might be the cause.

I was never sensitive to clementines or any citrus before going on the gluten free diet. What exactly is happening, and why is this happening? I was ok before all this! I've been told by members here that the sensitivity can be temporary right? Meaning I can probably add them safely in a few months?

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A number of people on this forum would disagree with me, but I believe Dr. Vikki Petersen, who wrote a book on gluten intolerance. She claims that the immune system can become confused while it is healing from gluten intolerance and begins mistaking other, non-gluten-containing foods for gluten (cross-reactivity). She has stated that it takes a minimum of three months of avoiding the food before the body will stop mis-identifying it as gluten; however, sometimes a person is never able to tolerate the food again. This happened to me with gluten-free flours and rice. I removed all grains, flours, and rice from my diet for six months, and now I no longer react to them. Before, it had really felt as though I'd ingested gluten because my body reacted exactly as it would to gluten. So....although there is no medical "evidence" that cross-reactivity can occur, I personally believe that it does.

As your body heals, your immune system is in a heightened state of alert...so you may have to keep a food journal to identify foods that your body has perhaps mistaken for gluten.

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A number of people on this forum would disagree with me, but I believe Dr. Vikki Petersen, who wrote a book on gluten intolerance. She claims that the immune system can become confused while it is healing from gluten intolerance and begins mistaking other, non-gluten-containing foods for gluten (cross-reactivity). She has stated that it takes a minimum of three months of avoiding the food before the body will stop mis-identifying it as gluten; however, sometimes a person is never able to tolerate the food again. This happened to me with gluten-free flours and rice. I removed all grains, flours, and rice from my diet for six months, and now I no longer react to them. Before, it had really felt as though I'd ingested gluten because my body reacted exactly as it would to gluten. So....although there is no medical "evidence" that cross-reactivity can occur, I personally believe that it does.

As your body heals, your immune system is in a heightened state of alert...so you may have to keep a food journal to identify foods that your body has perhaps mistaken for gluten.

I am keeping a food journal. Thanks rosetapper and everyone who has been giving me advice. You're very amazing because nothing is pushing you to help the clueless ones on these forums but you always do :-)

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Google Image search for CANKER SORES.

I had these with DH & GI & nerve issues when the gluten intake was at the highest.

Let us know if it looks like canker sores or otherwise.

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BTW The lesions in my nostrils looked very similar to the canker sores in my mouth.

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Both confused immunity from other foods and reactions to Salicylate make sense. I've been eating plenty of avocados and fish as I love them together, then having clementines (tangerines) for desert, and then a nice salad with plenty of tomatoes and pepper/basil/oregano/basil/apple cider vinegar dressing for dinner.. Everything I've been eating is high on Salicylate.

Of course there is no way of finding out which problem it really is because the symptoms are present in both situations, but at least the solution is simple, eliminating the foods. I think I'll just go outside in the garden and start eating grass with my bunny because that's all I'll be able to eat soon.

I'm sure I've been gluten-free, yet yesterday the mini-lesions showed up on my finger again and I'm constipated. There could not have been any CC because there isn't any gluten in the house and I rarely ever eat out or buy ready food nowadays. My husband washes his mouth and mustache the moment he walks into the house.

No explanation other than my immunity having broken fuses.

A little update about the dentist visit today: The Doc wasn't sure what it was but she said that whatever it was it looked like it has started healing. She also told me it could have been an allergy or the mouth wash so I have to avoid those too now.

Problem is this leaves so little on the menu for me now ;-(

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Well, at least you have somewhere to start.

You can develop allergies to meds at any time, same with foods.

When you go gluten-free your body starts resetting, healing - for lack of better terms. The first 6 months are really a free-for-all. Anything can and will (apparently) happen.

The good new is sals are cumulative. Bad news is sals are cumulative. And having a problem with a few doesn't mean you have a problem with all. And it may not be permanent.

Dont get discouraged. You'll get there.

I do find one autoimmune eruption triggers another, or illness triggers another reaction. Seems common, so don't be surprised about a finger spot showing up. I think the term is "let it ride" at this point.

Intermittent bowel changes are common in the beginning. Your body is changing, your diet is changing. Plus, having something going in in your mouth is likely, IMO, to affect digestion. That's how it works with babies, anyway :).

At least you don't have an infection. That's good news?

Also, gluten can hang around on surfaces for a long time, and in cracks and crevices. Soap and water is sufficient to remove it but you may want to replace scratched food service items like cutting boards and storage containers -and colanders are notoriously permanently contaminated.

I know, another thing to deal with. Go have a grass martini??

If you need a good no- sal, gluten-free lotion for your rash I use Vanicream. I don't know if it is sold in Sweden.

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Well, at least you have somewhere to start.

You can develop allergies to meds at any time, same with foods.

When you go gluten-free your body starts resetting, healing - for lack of better terms. The first 6 months are really a free-for-all. Anything can and will (apparently) happen.

The good new is sals are cumulative. Bad news is sals are cumulative. And having a problem with a few doesn't mean you have a problem with all. And it may not be permanent.

Dont get discouraged. You'll get there.

I do find one autoimmune eruption triggers another, or illness triggers another reaction. Seems common, so don't be surprised about a finger spot showing up. I think the term is "let it ride" at this point.

Intermittent bowel changes are common in the beginning. Your body is changing, your diet is changing. Plus, having something going in in your mouth is likely, IMO, to affect digestion. That's how it works with babies, anyway :).

At least you don't have an infection. That's good news?

Also, gluten can hang around on surfaces for a long time, and in cracks and crevices. Soap and water is sufficient to remove it but you may want to replace scratched food service items like cutting boards and storage containers -and colanders are notoriously permanently contaminated.

I know, another thing to deal with. Go have a grass martini??

You deserve a gigantic hug Prickly! *HUUUG*

It's hard not to get obsessive about the spots showing up because they're the first sign of CC.. I actually spend a large portion of the day staring at my finger. That must look really strange ;-)

Yes, there is no infection :-) There wasn't even a need for an emergency cleanup. All is well.

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You deserve a gigantic hug Prickly! *HUUUG*

It's hard not to get obsessive about the spots showing up because they're the first sign of CC.. I actually spend a large portion of the day staring at my finger. That must look really strange ;-)

Yes, there is no infection :-) There wasn't even a need for an emergency cleanup. All is well.

I got so obsessed with tracking my underarm rash I drew dots around the perimeter with a sharpie to track its growth.

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I got so obsessed with tracking my underarm rash I drew dots around the perimeter with a sharpie to track its growth.

Looooool :-DDD

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I got so obsessed with tracking my underarm rash I drew dots around the perimeter with a sharpie to track its growth.

You know someone might have celiac when they can't stop staring at strange parts of their bodies ;-)

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You know someone might have celiac when they can't stop staring at strange parts of their bodies ;-)

What would we do if we could watch our intestines? Hate to find out!

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What would we do if we could watch our intestines? Hate to find out!

Almost fell off my chair looool :-D

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Could it be coxsackie virus? That causes mouth sores on the gums and throat and also cause spots and blisters on hands and feet. Here in the US, coxsackie virus is very common this time of year. My husband and 2 daughters all had it about 2yrs ago. It's most common in children but adults can get it too. The sores in the mouth and throat can be very painful. It usually lasts a week.

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Almost fell off my chair looool :-D

Too much!laugh.giflaugh.giflaugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

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Prickly, Squirming and dani

You have helped me so much with the DH issue. I have been reading all the posts on this topic. I can't understand why Drs don't read patient forums. They could learn more than by reading the crap put out by the AMA.

The oddest thing has happened to me and I feel a little guilty about it after reading what a rough time some of you are having with this !%# crazy making disease. I woke up this morning and immediately realized I hadn't been scratching at all last night. It's 4.00 pm here and no itching. Well, I have rubbed a couple of old spots but nothing like usual. I cant believe it or explain it.

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Nana, I'm going to paste this quote from Prickly from just a few posts above.

"When you go gluten-free your body starts resetting, healing - for lack of better terms. The first 6 months are really a free-for-all. Anything can and will (apparently) happen."<br style="color: rgb(44, 54, 68); font-size: 13px; line-height: 19px; background-color: rgb(250, 251, 252); ">

Don't ever feel guilty for not having as hard a time as others. A hard time is relative. And we celebrate when someone just clears up! I hope it lasts for you. And CELEBRATE!biggrin.gif We celebrate with you.

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Prickly, Squirming and dani

You have helped me so much with the DH issue. I have been reading all the posts on this topic. I can't understand why Drs don't read patient forums. They could learn more than by reading the crap put out by the AMA.

The oddest thing has happened to me and I feel a little guilty about it after reading what a rough time some of you are having with this !%# crazy making disease. I woke up this morning and immediately realized I hadn't been scratching at all last night. It's 4.00 pm here and no itching. Well, I have rubbed a couple of old spots but nothing like usual. I cant believe it or explain it.

Well, if you've been gluten-free a while you probably can explain it :).

My "cycle" for DH runs about 2 weeks since I'm gluten-free (meaning when something goes wrong and I get a rash). I am always so thankful when the constant itching stops. Keep it moisturized and baby the skin.

And don't feel guilty, be happy!

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Prickly, Squirming and dani

You have helped me so much with the DH issue. I have been reading all the posts on this topic. I can't understand why Drs don't read patient forums. They could learn more than by reading the crap put out by the AMA.

The oddest thing has happened to me and I feel a little guilty about it after reading what a rough time some of you are having with this !%# crazy making disease. I woke up this morning and immediately realized I hadn't been scratching at all last night. It's 4.00 pm here and no itching. Well, I have rubbed a couple of old spots but nothing like usual. I cant believe it or explain it.

I'm very glad you found an answer and that it's helping :-)

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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