Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

A Question For The Neuro Folk - Women
0

13 posts in this topic

Hi. I have a question for the women who are affected primarily neurologically:

During your healing process did your symptoms get really intense just prior to your period and a few days after getting it?

I am ingesting only meat, vegetables and fruit so I know that I am not getting any gluten by accident. However, my vertigo has ramped right up and I notice that it's always in the week before my period and for a few days after.

Does anyone else experience this or other symptoms during that time? Does it ever stop?

Thanks!

Kamma

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've always noticed my DH was worse on certain weeks of my cycle. I also had neuro issues but never noticed a cycle with them.

I'm pretty sure the whole ai thing screws up our hormonal balance.

0

Share this post


Link to post
Share on other sites

I was getting menstrual migraines until I started getting them all the time. :blink:

0

Share this post


Link to post
Share on other sites

I used to have more problems before my period. I don't know if that would have changed gluten free since celiac took my period away early.

One thought. Are you on the pill? If you are some have the pills with the hormones in them then a week of placebo pills. Maybe your system doesn't like something in the those?

0

Share this post


Link to post
Share on other sites

Nope, not on the pill. Had my tubes clipped since I was 28.

I've been watching my symptoms for the past three months since going gluten free. The vertigo and exhaustion/brain fog slowly lessened but always returned with a vengeance prior to and after my menstruation. It's to the point where my head is bobbing and I'm having the torso rotations and lurching sideways when I walk.

I can't understand the connection and am trying to wrap my head around why the hormonal fluctuations would cause this or like in your cases, the headaches and DH.

Ugh! I hate not knowing or not being able to understand what's going on. I feel like I'm at the mercy of some great force that decides to throw a monkey wrench into things and mess me up. Again!

0

Share this post


Link to post
Share on other sites




Nope, not on the pill. Had my tubes clipped since I was 28.

I've been watching my symptoms for the past three months since going gluten free. The vertigo and exhaustion/brain fog slowly lessened but always returned with a vengeance prior to and after my menstruation. It's to the point where my head is bobbing and I'm having the torso rotations and lurching sideways when I walk.

I can't understand the connection and am trying to wrap my head around why the hormonal fluctuations would cause this or like in your cases, the headaches and DH.

Ugh! I hate not knowing or not being able to understand what's going on. I feel like I'm at the mercy of some great force that decides to throw a monkey wrench into things and mess me up. Again!

Have you tried natural progesterone cream to see if it helps? I was low for a while and knew it was progesterone because my period wouldn't stop, but I'd use the cream and it would for 12 hours. Took 2 doses per day to stop that for a few months. Then, I needed it for the second half of my cycle for about 6 months (sore boobs)- then I felt worse with it so I stopped and sore boobs went away. Read a Dr. John Lee book for info on how to use it.

0

Share this post


Link to post
Share on other sites

Have you tried natural progesterone cream to see if it helps? I was low for a while and knew it was progesterone because my period wouldn't stop, but I'd use the cream and it would for 12 hours. Took 2 doses per day to stop that for a few months. Then, I needed it for the second half of my cycle for about 6 months (sore boobs)- then I felt worse with it so I stopped and sore boobs went away. Read a Dr. John Lee book for info on how to use it.

I will look up Dr. John Lee, Prickly. Thank you.

0

Share this post


Link to post
Share on other sites

I will look up Dr. John Lee, Prickly. Thank you.

In the end it was iodine causing my DH flare (after gluten-free), but there was definitely an ebb/flow of rash based on my cycle.

My ND is also treating/testing me for adrenal issues...so maybe that's another area to look?

0

Share this post


Link to post
Share on other sites

My glutening symptoms definitely get worse just before and at the start of my period.

0

Share this post


Link to post
Share on other sites

Have been doing some more reading and apparently it's common for women with any kind of autoimmune disease to experience a worsening of symptoms just prior to and for a few days after their menstruation. I'm trying to read why but that requires a clearer head than what I've got right now to go through and understand the scientific research papers.

:lol:

0

Share this post


Link to post
Share on other sites

Have been doing some more reading and apparently it's common for women with any kind of autoimmune disease to experience a worsening of symptoms just prior to and for a few days after their menstruation. I'm trying to read why but that requires a clearer head than what I've got right now to go through and understand the scientific research papers.

:lol:

Would make sense since some believe that all ai stems from the same root.

I don't know ai is the cause or effect but when I help my hormonal and endocrine system (progesterone, DHA) I see rapid and obvious improvements.

Exercise helps me tremendously. That may be the sugar factor for me, or it may be because exercise helps stabilize hormones, or because it helps rid the body of stuff my ai body can't process (according to one book).

It's hard as heck to exercise but I've learned it helps so even if it's a short walk, do it.

0

Share this post


Link to post
Share on other sites

Would make sense since some believe that all ai stems from the same root.

I don't know ai is the cause or effect but when I help my hormonal and endocrine system (progesterone, DHA) I see rapid and obvious improvements.

Exercise helps me tremendously. That may be the sugar factor for me, or it may be because exercise helps stabilize hormones, or because it helps rid the body of stuff my ai body can't process (according to one book).

It's hard as heck to exercise but I've learned it helps so even if it's a short walk, do it.

Totally with you on the exercise part. On my good days I walk three to four miles with the dogs. I used to be a cyclist/winter cyclist and have taught yoga for 25 years. On my really bad days, like the last three...I can't walk a straight line and my torso is rotating. Ugh.

I'm really going to look into this progesterone stuff. Apparently the last few days before you have your period is when your estrogen and progesterone levels fall.

0

Share this post


Link to post
Share on other sites

I'd look into adrenal issues, and also keep a food diary to try to find out if something triggers the vertigo in general.

I was getting vertigo episodes before gluten-free - they have stopped now...it's possible there's something else triggering it. Even environmental allergies (I get headaches and ear fluid when allergens are high, but nothing like they used to be).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,535
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,640
    • Most Online
      3,093

    Newest Member
    Kasia2016
    Joined