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Coffee
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Okay, I called Gevalia. If anyone else calls just press 1.

Talked with a nice lady that answered "no" to my question "Do Gevalia coffees contain wheat, barley, or rye gluten"?

I then explained that a friend had sent a request through the website asking if their coffees were gluten-free and received a response they contain trace gluten. I then explained the article from 2009 about corn gluten.

She then checked somewhere else (including reading a box of coffee to see what it said) and came back with the response that the FLAVORED coffees contain gluten, but she didn't know what type of gluten.

She is having the question bumped up and someone is supposed to call me tomorrow.

BTW Gevalia hasn't ever called back. Or if they did, no message.

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They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

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They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

Alarm bells there for sure!

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The coffee bean is gluten-free without any doubt. While it is possible that the flavor contains hidden gluten as malted barley, it is not likely. Barley malt is expensive, so rather than hide it, manufacturers will usually highlight it.

I don't like flavor in my coffee, so this is not so much of a concern for me. But I do drink plain coffee all the time, and have never had an issue with it.

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If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand.

Thanks for the information!

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Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

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Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

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Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

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Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

Postum is made from wheat and wheat bran, among other ingredients. It is a Kraft brand, so any gluten will be clearly listed, but in this case the wheat is front and center.

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Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Can you post the reply, Please? I am not denying your illness, but often times, we react to different things. It does not always mean that a product or a drink contains gluten.

But it would make sense that there would be a CYA statement, when you buy a cup of coffee in a Donut Shop. :blink:

I would like to see their response. :)

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Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

Sorry this is only really applicable for UK readers but here goes and just for info really:

1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details:

http://www.costa.co.uk/media/6271/allergy.pdf

2. For the Cafe Nero chain see here for gluten details for their drinks (note: mocha here has wheat) unlike Costa: http://www.caffenero.../hotdrinks.aspx

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I have stopped drinking coffee as it made me sick to my stomach for days after. I also read some where that the roasting of coffee changes it some how and people who are gluten sensitive like me react to it.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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