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Father With Celiac
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My father was diagnosed a month ago with Celiac disease, he is 70 years old. He is having trouble eating, he says nothing tastes good and has to force food down. He is losing weight and is so weak and has no energy to do things (like going to the store, or even trying to cook a gluten free meal). His stomach hurts constantly and I just want to know if this is normal? Is there anything I can do to help him with this disease?

Thank you

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It takes some time I think. I was diagnosed in my late 50s and had no energy at all but once going completely gluten free, I started to get back my energy and more importantly my will. You have to make sure he is 100% gluten free and lean where the gluten is hidden. No beer or soy sauce for example unless its special gluten free types. He might be feeling this way because of hidden gluten in his diet. good luck!

My father was diagnosed a month ago with Celiac disease, he is 70 years old. He is having trouble eating, he says nothing tastes good and has to force food down. He is losing weight and is so weak and has no energy to do things (like going to the store, or even trying to cook a gluten free meal). His stomach hurts constantly and I just want to know if this is normal? Is there anything I can do to help him with this disease?

Thank you

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It was about 2 months before I started feeling noticeably better, and it was barely noticeable. It takes time to heal. I still frequently find myself with barely the energy to get out of bed let alone cook something. Things that get me through are being able to throw a chicken breast or steak on my George Foreman grill and a bag of steam-able veggies in the microwave. I make sure I always have gluten free cereal available for when I just can't manage anything else. I also keep fresh fruits and veggies around. I'm not sure how much free time you find yourself with, but it could be a huge help if you can lend a hand a few times a week with making gluten free meals. On his better days you could make it a team effort, and by making large portions he'll have plenty of leftovers or you could even freeze some. Also, crock pots are life savers. All the effort they take is plopping something in and plugging it in. I can end up with half a week of meals from 10 minutes effort.

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My father was diagnosed a month ago with Celiac disease, he is 70 years old. He is having trouble eating, he says nothing tastes good and has to force food down. He is losing weight and is so weak and has no energy to do things (like going to the store, or even trying to cook a gluten free meal). His stomach hurts constantly and I just want to know if this is normal? Is there anything I can do to help him with this disease?

Thank you

When I was diagnosed there was so much damage, I couldn't eat either. My dr put me on predezone, within a day I

Was feeling better. Took a few more weeks before I could eat anything but a slice of watermelon. Was on the steroid for

About 2 months. Talk to his dr.. Good luck

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My father was diagnosed a month ago with Celiac disease, he is 70 years old. He is having trouble eating, he says nothing tastes good and has to force food down. He is losing weight and is so weak and has no energy to do things (like going to the store, or even trying to cook a gluten free meal). His stomach hurts constantly and I just want to know if this is normal? Is there anything I can do to help him with this disease?

Thank you

Unfortunately, it is normal for some people. Who knows how long he's had Celiac..or how much damage he has? He's probably suffering from malabsorption?

Your Dad should be taking a B vitamin complex, a multi-vitamin, D, and fish oil. When our vitamins are depleted we don't feel like eating, and don't have the energy to cook much. A good probiotic and a digestive enzyme are really helpful too.

If he has easy things to grab and eat like applesauce, bananas, or other fruit, hard boiled eggs, gluten free cereal with a non-dairy milk (I love So Delicious brand coconut milk)it will help him work up the energy to do more.

He could make a pot of chicken rice soup and have it for several meals?

One pot meals like stews are great too. He won't have to watch it as closely as some other foods and can cut and add veggies a bit at a time.

Roasting a chicken in the oven is super easy too..or microwaved baked potatoes or sweet potatoes? Frozen veggies are super easy to prepare too, because they're cleaned and ready to cook.

Maybe you could make him a list of simple meals/grab and go foods to have on hand, and help him get to the store to get the ingredients to make them? I had to have lists of foods at first because when I did get hungry, I couldn't think of what to eat! :o I also didn't have the energy to shop on my own.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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