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Celiac, Fibromyalgia & Very Limited Food Tolerance


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7 replies to this topic

#1 cindy.k

 
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Posted 30 March 2012 - 01:11 PM

Does anyone else keep getting more and more sensitive to foods as time goes on? I am to the point where I can't tolerate fruits and only a couple veggies. Been gluten-free for 5 years now. I am trying pro-biotics (ultimate flora), but am now feeling awful....I don't know if it is the pro-biiotics, or the calcium I am taking. I have learned so much by reading the topics here, it is SO nice to feel validated and learn from others :)
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#2 Marilyn R

 
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Posted 30 March 2012 - 04:04 PM

Hi Cindy,

I don't have fibromyalgia, but I have a kissing cousin, discoid lupus.

When it seemed like I was reacting to everything I ate, root veggies were good for me. I sought out veggies I'd never eaten before like Rutabegas and turnips. Radishes, even though they wouldn't traditionally be considered mild on the stomach, were fine. All squash were fine. (I love butternut and carnival hard squash, zuccinni or yellow summer squash on their own or in soups.)

Rutabegas are pretty mild. You can just boil them (after peeling and chopping). You can make a decent soup out of them too.

I've read that mushrooms are good for people with autoimmune diseases. If you have an oriental store near you, dried shitake mushrooms are inexpensive there, and you can make a good soup with reconstituted mushrooms and root vegetables. Or fresh sliced sauted mushrooms are nice (when they're on sale). You can score good rice there too, like the forbidden rice, AKA black rice or emperor's rice that's popular now.

I could handle canned coconut milk and oil when all the other milks and oils seemed to produce adverse reactions.

Can you tolerate seafood? (It's great cooked with the coconut milk.) I had to give up coffee for awhile because it was to rough on my stomach, but I enjoy a couple of cups in the morning now.

I also found that making homemade broth isn't that hard and is nutritious because you get the bone marrow.

I like cabbage in soups and in homemade slaw with a apple cider vinegrette dressing.

I really worked at trying to find an answer the first year. I tried rotating my diet (not repeating foods in the same food families for at least 3 days) and that seemed to help, but exhausted me just planning, and then I never felt like eating what I'd planned.

So, long story short, try experimenting with new foods or long forgotten foods and mix things up a bit.


Hope you feel better soon. :)
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#3 cindy.k

 
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Posted 30 March 2012 - 04:28 PM

Hi Cindy,

I don't have fibromyalgia, but I have a kissing cousin, discoid lupus.

When it seemed like I was reacting to everything I ate, root veggies were good for me. I sought out veggies I'd never eaten before like Rutabegas and turnips. Radishes, even though they wouldn't traditionally be considered mild on the stomach, were fine. All squash were fine. (I love butternut and carnival hard squash, zuccinni or yellow summer squash on their own or in soups.)

Rutabegas are pretty mild. You can just boil them (after peeling and chopping). You can make a decent soup out of them too.

I've read that mushrooms are good for people with autoimmune diseases. If you have an oriental store near you, dried shitake mushrooms are inexpensive there, and you can make a good soup with reconstituted mushrooms and root vegetables. Or fresh sliced sauted mushrooms are nice (when they're on sale). You can score good rice there too, like the forbidden rice, AKA black rice or emperor's rice that's popular now.

I could handle canned coconut milk and oil when all the other milks and oils seemed to produce adverse reactions.

Can you tolerate seafood? (It's great cooked with the coconut milk.) I had to give up coffee for awhile because it was to rough on my stomach, but I enjoy a couple of cups in the morning now.

I also found that making homemade broth isn't that hard and is nutritious because you get the bone marrow.

I like cabbage in soups and in homemade slaw with a apple cider vinegrette dressing.

I really worked at trying to find an answer the first year. I tried rotating my diet (not repeating foods in the same food families for at least 3 days) and that seemed to help, but exhausted me just planning, and then I never felt like eating what I'd planned.

So, long story short, try experimenting with new foods or long forgotten foods and mix things up a bit.


Hope you feel better soon. :)





Thank you for the info on root veggies - I will keep working on it!
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#4 dilettantesteph

 
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Posted 04 April 2012 - 04:28 AM

Yes, yes, and yes. I'm sorry I didn't see this earlier.

I have gotten much more sensitive as time goes on. I don't believe it. I'm trying to get better in the garden so that I can grow more of my own. I haven't reacted to my garden veggies. I do better with the farmer's market than the grocery store. It seems like once things get into the mainstream food system there is trouble.

I do careful challenge/elimination/challenge studies on everything.

This time of year is terrible. I need to grow and freeze more next year.
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#5 GFreeMO

 
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Posted 04 April 2012 - 07:38 AM

I have fibromyalgia too. Mine is a direct result from celiac. If I get zapped by gluten, soy, dairy or corn, fibro comes on very strong. Type fibromyalgia into the search on the site, there are several threads on it. It is common with celiac.

Yes, I have become more and more sensitive to foods as time goes on. First it was just gluten then dairy then corn etc. I think it's pretty common.

Hang in there!
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#6 cindy.k

 
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Posted 05 April 2012 - 11:44 AM

Yes, yes, and yes. I'm sorry I didn't see this earlier.

I have gotten much more sensitive as time goes on. I don't believe it. I'm trying to get better in the garden so that I can grow more of my own. I haven't reacted to my garden veggies. I do better with the farmer's market than the grocery store. It seems like once things get into the mainstream food system there is trouble.

I do careful challenge/elimination/challenge studies on everything.

This time of year is terrible. I need to grow and freeze more next year.


I feel SO much better already knowing that there are many other people with the same problems with food! I wouldn't believe it if it weren't happening to me. I will try the farmer's market produce since I don't have a garden. I haven't been eating fresh grocery store produce because of the possible contamination. I also analyze and write everything down I eat. Gets complicated! When I try something new I wait about 4-5 days and then I know if it is a keeper or not, then on to the next challenge. I am hoping that pro-biotics will help me heal. My doctors think they are the answer, but I think they are making me sick - but then I start wondering if it is some ingredient that the capsule contains or is just that it may take time to adjust.

That is wonderful that you are able to grow and freeze your own produce!
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#7 cindy.k

 
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Posted 05 April 2012 - 11:52 AM

I have fibromyalgia too. Mine is a direct result from celiac. If I get zapped by gluten, soy, dairy or corn, fibro comes on very strong. Type fibromyalgia into the search on the site, there are several threads on it. It is common with celiac.

Yes, I have become more and more sensitive to foods as time goes on. First it was just gluten then dairy then corn etc. I think it's pretty common.

Hang in there!


Very interesting about the fibro/celiac connection. Same zap story for me with gluten, soy or dairy! I will go read the fibro threads, thanks!
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#8 dilettantesteph

 
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Posted 06 April 2012 - 05:39 AM

I am hoping that pro-biotics will help me heal. My doctors think they are the answer, but I think they are making me sick - but then I start wondering if it is some ingredient that the capsule contains or is just that it may take time to adjust.

Sad to say, I got better when I stopped all supplements. I added some back slowly and carefully, but I had a hard time finding ones that I could tolerate.

Good luck.
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