Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

It's Hard To Stay Gluten Free
0

14 posts in this topic

How do you guys stay gluten free and resist the temptation to eat normal food? I'm in high school so it's really hard to not eat normal food especially when i'm with my friends.I had very minor symptoms. My only problem was that I was too short when I was little so I was gluten free for about a year but then i stopped because gluten free food is GROSS! I hated all the disgusting breads and snacks my parents made me eat. The bread was all frozen and sour and disgusting. I actually lost weight when I was supposed to gain it because I didn't eat much. I never went to parties or anything because I knew I would give in and eat good food while I was there. And it doesn't help that while I'm eating rice and vegetables everyday, my family gets to eat out and order delicious treats like pizza, pasta, and burgers. I don't really see the point in being gluten free either because I feel no different than when I wasn't gluten free. I was never sick or tired or anything like that. I was just short. But I'm actually taller than three of my aunts and my two of my grandparents because I come from a family of tiny people on my mother's side.

0

Share this post


Link to post
Share on other sites


Ads by Google:

were you diagnosed celiac??

I think it's mean for your family to eat so much gluten around you when they must know you're struggling with it. that's really stupid.

0

Share this post


Link to post
Share on other sites

How do you guys stay gluten free and resist the temptation to eat normal food? I'm in high school so it's really hard to not eat normal food especially when i'm with my friends.I had very minor symptoms. My only problem was that I was too short when I was little so I was gluten free for about a year but then i stopped because gluten free food is GROSS! I hated all the disgusting breads and snacks my parents made me eat. The bread was all frozen and sour and disgusting. I actually lost weight when I was supposed to gain it because I didn't eat much. I never went to parties or anything because I knew I would give in and eat good food while I was there. And it doesn't help that while I'm eating rice and vegetables everyday, my family gets to eat out and order delicious treats like pizza, pasta, and burgers. I don't really see the point in being gluten free either because I feel no different than when I wasn't gluten free. I was never sick or tired or anything like that. I was just short. But I'm actually taller than three of my aunts and my two of my grandparents because I come from a family of tiny people on my mother's side.

Wow.. Ok, where to start.

Gluten-free food doesn't have to be disgusting. In order to get to eat treats like everyone else I had to develop my cooking skills. My gluten-free cooking isn't identical to wheat foods but it can be equally delicious.

Your friends and family should be able to understand that you can't eat the same things they do, so while they can't really change what they eat, perhaps they can help you out a bit by going to places that offer foods for everyone, including yourself.

Everyone goes through this in the beginning: feeling bitter about not eating wheat products anymore, but the thing that makes most of us stick to it is that we really, really feel crappy if we eat gluten, so no tasty bread in the world is worth the suffering it would cause. While Your symptoms might be unnoticeable now, they still can develop and get nasty later in life, and maybe even as serious as giving you cancer, kidney or liver failure.

I'm not telling you to put up with bad tasting foods, but you need to come up with new solutions. Find food alternatives you really like which can make the change in your life more bearable. It's not easy but you will get more creative the more you do it. Talk to people on the board whenever you feel upset or need to vent and they'll probably inspire you and make you feel better.

Sorry I'm really tired and my typing and grammar are probably off, but I had to reply anyway.

Hang in there and keep in mind that a few moments of munching are not worth years of suffering.

1

Share this post


Link to post
Share on other sites

were you diagnosed celiac??

I think it's mean for your family to eat so much gluten around you when they must know you're struggling with it. that's really stupid.

Yes, I was diagnosed with it about two years ago. They said that it was very mild though when they did an endoscopy.

0

Share this post


Link to post
Share on other sites

How do you guys stay gluten free and resist the temptation to eat normal food? I'm in high school so it's really hard to not eat normal food especially when i'm with my friends.I had very minor symptoms. My only problem was that I was too short when I was little so I was gluten free for about a year but then i stopped because gluten free food is GROSS! I hated all the disgusting breads and snacks my parents made me eat. The bread was all frozen and sour and disgusting. I actually lost weight when I was supposed to gain it because I didn't eat much. I never went to parties or anything because I knew I would give in and eat good food while I was there. And it doesn't help that while I'm eating rice and vegetables everyday, my family gets to eat out and order delicious treats like pizza, pasta, and burgers. I don't really see the point in being gluten free either because I feel no different than when I wasn't gluten free. I was never sick or tired or anything like that. I was just short. But I'm actually taller than three of my aunts and my two of my grandparents because I come from a family of tiny people on my mother's side.

I think it must be really difficult to be gluten free if you're still living at home and in school which means you don't have an income of your own. I think the key will be for you to find substitutes for all the things you really want to eat.

So for example, if you love potato chips (who doesn't? lol...) but the ones you were eating have gluten, then read labels and find one that doesn't. Lots don't. My favorite are Utz chips with ridges. Nice and salty. B)

If you like to take a Nutrigrain bar to school in the morning for a snack then ask your parents if they can buy you some Betty Lou's fruit bars. You can get them on Amazon in several flavors and personally I think they're better than Nutrigrains. :)

If you love chocolate you're in luck. B) Just be sure to read the labels. My favorite is Snickers bars.

Brownies? There's an excellent mix which, drat, I can't think of the name at the moment. But Betty Crocker also makes cake and cookies mixes that are gluten free. And Goya makes wonderful gluten free cookies that are like shortbread. They're called "Maria cookies" and they come in a big green box.

Hamburgers can easily be gluten free. If you go out with friends you just have to ask if the burger is grilled on the same grill where they do any bread products. If not, then it's fine. You could call ahead and ask so that you don't have to do it while you're with your friends.

Pizza will be much harder of course, but there are places that offer gluten free pizza. It's more expensive and not quite what we remember from our gluten days....but it's a decent substitute, especially if you're out with friends.

Macaroni and cheese? Amy's makes a wonderful mac and cheese. It's in the frozen section. Just read the box carefully because she has another one that's not gluten free and it's often right next to the the gluten-free one. Browse in that section for a bit, there are other yummy things in there. Donuts, waffles, other entrees.

Bread. Don't buy any but Udi's or Rudi's. Or Against the Grain's baguettes. The other brands are usually disgusting, as you said. :blink: Besides regular white and whole grain bread Udi's also makes hamburger and hotdog buns, and a wonderful cinnamon-raisin bread. :wub: Udi's :wub:

I hope that helps a little bit. And I hope your family can help you buy some of these things. Most other foods in their natural states are gluten free -- meat, vegetables, rice, nuts (yummy peanut butter), fruit...so hopefully you'll be able to have a lot of that around the house.

It is really hard at the beginning, and I'm sure it's harder for students and young people. In fact, isn't there a board on this site that's for teens? I bet folks over there would have some good ideas for you. :) (But of course stay here also, we'd love to have you.)

Hang in there. It does get easier as time goes by.

1

Share this post


Link to post
Share on other sites




If you love chocolate you're in luck. B) Just be sure to read the labels. My favorite is Snickers bars.

Snickers are not gluten free in Sweden.. Are they gluten free in the US? :-O

0

Share this post


Link to post
Share on other sites

Snickers are not gluten free in Sweden.. Are they gluten free in the US? :-O

Yes, they are! :) I'm sorry for you all in Sweden. :lol:

(I love Sweden, in fact I've been there several times... just teasing...because Snickers is my absolute favorite candy bar.)

0

Share this post


Link to post
Share on other sites

I am more passionate about food and cooking than 99% of anyone I know. What helped me initially (and it DOES get better!) was envisioning my blunted villi and the thought of potential related health issues in the future. If you are a visual person perhaps this will help! Instead I did serious gluten-free baking. :P And eating the baking. :lol:

It must be tough for you in your situation. You are very smart to be doing this sort of research, especially at your age. That is a great start - good on you to take ownership of your own health.

0

Share this post


Link to post
Share on other sites

Yes, I was diagnosed with it about two years ago. They said that it was very mild though when they did an endoscopy.

no such thing as mild celiac, just as there's no such thing as mild diabetes. we have an autoimmune disease, friend. the damage to your gut may have been mild , so thank your lucky stars for that. but unless you want to end up with fibromyalgia (read: chronic nonstop pain) or cancer in future, you'd better get serious about gluten free.

it doesn't have to be terrible. there are SO many people on this forum who can teach you awesome recipes and give you hope that food can taste good again. hang in there. and kick your family in the butt if they make it hard for you. i don't think they want to you grow up into a life of autoimmune problems, pain, and needless suffering. right?

0

Share this post


Link to post
Share on other sites

Hi H.Leah,

Dani has some good points there. The hard thing for you I think is the symptoms right now are not too serious. Unless you stick to the gluten-free diet though the damage will keep happening and the symptoms will get worse in time. You don't want that to happen as it can sometimes end up in arthritis, or diabetes, or other autoimmune diseases.

What I do is take good gluten-free food with me when I go out with friends. That way I have something to eat that I know is healthy for me, I take Larabars with me in my shoulder bag or coat pocket. I also carry navel oranges and bananas and apples to eat. I can buy a drink like some fruit juice or vitamin water while we are eating and I am just fine. There are snacks you can get like Fritos corn nuts, or Food Should Taste Good brand gluten-free chips. Not all the FSTG chips are gluten-free so be sure to check the labels. Some Planters brand peanuts are ok too, but check labels. Mission brand corn tortillas are gluten-free in the USA. They are good for wraps. Just heat them up a little before folding. You can also make your own snacks at home and take them with you. I bet your friends will want to try them too. Try a search on "snacks" and you will find lots of threads here with ideas. Eating healthy and gluten free is much more popular these days. Even TV celebrities do it.

0

Share this post


Link to post
Share on other sites

pretty much i was told if i wanted to continue to eat gluten/wheat it would kead ti cancer...

so yeah..i don't want cancer. dealing with this is difficult enough.

my suggestion to you: start making your own gluten-free food.

and for everyone: gluten-free food is a tax break. save your reciepts. if youre willing to do the leg work, it can help you. goggle gluten-free food as a tax deductible and talk with your tax person.

0

Share this post


Link to post
Share on other sites

and for everyone: gluten-free food is a tax break. save your reciepts. if youre willing to do the leg work, it can help you. goggle gluten-free food as a tax deductible and talk with your tax person.

OP, it is hard when you are living with gluten eaters. The folks here have already given you some good answers and I hope that the suggestions help. If you are a pizza fan Kinnickinnick crusts are pretty good for a premade crust. Hormel Pepperoni is gluten free as are most sausages. I have pizza at least once a month. I don't know where you live but if you have a Wegmans near they label all their gluten-free food with a circle G. It makes it much easier as you don't have to decipher all the ingredients.

As for the tax break it is a very complicated process. You can only deduct the difference between what a gluten free food costs and a non-gluten free one not the entire cost of a gluten-free product. Also it is considered a medical expense and your total medical expenses do need to come to a certain percentage of your income. You also have to be someone who itemizes. Do talk to your tax advisor before going through all the record keeping that you would need to do and then decide whether it is going to be an option for you.

0

Share this post


Link to post
Share on other sites

pretty much i was told if i wanted to continue to eat gluten/wheat it would kead ti cancer...

so yeah..i don't want cancer. dealing with this is difficult enough.

my suggestion to you: start making your own gluten-free food.

and for everyone: gluten-free food is a tax break. save your reciepts. if youre willing to do the leg work, it can help you. goggle gluten-free food as a tax deductible and talk with your tax person.

I agree with Raven on the US tax thing. I believe it's must be 7.5% of your gross adjusted income. It's the difference in costs, not the total cost. So if a gluten-free loaf of bread is $5 and a regular one is $2. You could use $3. You need to keep proof of the regular bread price as well as the receipts for the gluten-free loaf. If your adjusted income is $20,000 - then you would have to spend more than $1500 on special gluten-free food premium. At $3 a loaf, that's a lot of bread. remember, medical deductions are in the group of returns that have a high percentage audited.

0

Share this post


Link to post
Share on other sites

I suggest getting glutino's foods. My brother (who should be gluten free but isn't) will sit there and steal pretzels and cookies. The genius bread is beyond awesome. I never liked ANY bread before I found that one. (I didn't like white bread before going gluten free in 2010; almost all the semi-tolerable breads are white)

Personally I can't cook (I froze some pancakes and when I went to reheat I realized they weren't cooked through but it was burnt on the outside -.-) so I just try and try to find yummy prepared foods.

My family rarely gets to tease me because I win :) I get pizza and cakes and cookies and Mac n cheese (Whatever brand is at Walmart is good. Better than when I tried to make it myself)

I could give you a breakdown of what good foods I've had but I'll try to list brands instead :) Udi's, Kinnikinnik, and glutino are the absolute best.

Also be aware that the words "gluten free" only covers gluten, not oats. So granolas and such may not be safe. It's up to your body. I found out I could do the oats because of Lucy's cookies.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,583
  • Topics

  • Posts

    • The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests.  Not all celiacs test positive to the common Screening TTG.   The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching all celiacs.  Here is a link to the University of Chicago's celiac website.  When I was diagnosed three years ago, this site recommended just the TTg (as did the American GI Association).  Now they have expanded the list of celiac tests.   http://www.cureceliacdisease.org/screening/ Luckily, my GI must have just attended a GI conference and he ordered the complete panel for me.  ($400). It paid off.  Only my DGP IGA was positive and the rest of the blood panel (including the popular TTG test) was negative.  My biopsies revealed some severe intestinal damage.  My new health provider only allows PCP/GP doctors to only order the TTG.  So, if I want the follow-up testing to see if I have improved or had a gluten exposure, I must go to my New GI.  Yep, it is all about the money!   Keep eating gluten and make sure your  GI takes four to six samples during the endoscopy.  Maintain copies of all your results.   Your symptoms?  Yes, there are over 300 celiac disease symptoms.  celiac disease does not just affect the gut, but mis-informed and those who do not keep up with the latest in medical, do not seem to know that!   Do not give up!  
    • It's great to hear from you, Nightsky.  Glad to also hear of your steady progress.  Living gluten free is definitely a learning process, and even the baby steps are times to celebrate.  Wish you all the luck in the world as you continue to heal for the glutenization.  
    • Hi Nicky, When you first go gluten-free your symptoms often do change.  Feeling better or worse is possible.  The healing process is a major change in our gut and that means a big change in the gut flora is likely,  which can cause symptoms by itself.  Additionally the immune system doesn't stop making antibodies on a dime.  the immune system keeps working  to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed.  That includes a full celiac disease panel and an endoscopy with biopsy samples.  It's much easier to complete testing while still a gluten eater than it is to stop gluten and go  back on it for testing later.
    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined