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Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)

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Oh I know...I really do.

I was diagnosed in Feb. It is a shock. I also learned I had Hashimoto's thyroid so I am still reeling too. Let me just say that the BEST thing that happened to you is to kind the wonderful, generous people on this forum.

I hope you fi d it a great help to you too. Hang in there. You are not alone.

Just curious if your labs showed celiac before you had the biopsy.

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Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)

Hello..and welcome!

Most of us go through mixed emotions when DXed. It's good to know there's a reason for your symptoms, and that you can put it into remission. However, the reality that this is a diet change for life is pretty overwhelming at first?

Your brain and body will go through a withdrawl at first which makes your emotions go up and down too. Your first trips to the grocery store may be depressing. It sure was for me!

Focus on what you CAN have, not what you can't.

Shop the outer perameter of the store. That's where the good fruits and veggies, unprocessed meats, fish, eggs, and dairy are. Nuts are a great snack item.

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Hi,

I sure know what you are talking about. It's a surprise to find to your body has permanently changed. One nice thing about celiac though is it is one condition where how you choose to live can make a huge positive difference in your health. You can learn to eat very healthily with a gluten free diet. It's just that what is healthy for us to eat doesn't include all the things that are healthy for other people. There are an awful lot of foods we can eat that are naturally gluten-free. You can find lots of ideas in the recipe section, or by searching for snacks or lunch or dinner ideas.

It can take some time to adjust and learn all the things to avoid. But the sooner you can maintain a totally gluten-free diet the sooner you will recover. One thing that can make it simpler is to avoid processed foods and stick with whole foods that you cook from scratch. A simple diet is easier to understand and there are fewer foods to be concerned about. Also the labels on whole foods are pretty short and don't take a lot of time to read. Things like whole fruit, plain meats with no glazes or breading, whole vegetables etc are good choices.

There is an FAQ at the top of each forums that has some good info.

Yes, celiac is forever, but there are many people on this forum who have had great improvements in their health and symptoms after going gluten-free. It's kind of like diabetes, if you control your diet you can do well. That's easier after doing it a while, just like anything is easier after doing it repeatedly. And we have all or are all going through the same changes so feel free to ask questions and vent as needed. We have probably done the same in the past ourselves. Welcome to our gluten-free club! :)

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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