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Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)

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Oh I know...I really do.

I was diagnosed in Feb. It is a shock. I also learned I had Hashimoto's thyroid so I am still reeling too. Let me just say that the BEST thing that happened to you is to kind the wonderful, generous people on this forum.

I hope you fi d it a great help to you too. Hang in there. You are not alone.

Just curious if your labs showed celiac before you had the biopsy.

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Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)

Hello..and welcome!

Most of us go through mixed emotions when DXed. It's good to know there's a reason for your symptoms, and that you can put it into remission. However, the reality that this is a diet change for life is pretty overwhelming at first?

Your brain and body will go through a withdrawl at first which makes your emotions go up and down too. Your first trips to the grocery store may be depressing. It sure was for me!

Focus on what you CAN have, not what you can't.

Shop the outer perameter of the store. That's where the good fruits and veggies, unprocessed meats, fish, eggs, and dairy are. Nuts are a great snack item.

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Hi,

I sure know what you are talking about. It's a surprise to find to your body has permanently changed. One nice thing about celiac though is it is one condition where how you choose to live can make a huge positive difference in your health. You can learn to eat very healthily with a gluten free diet. It's just that what is healthy for us to eat doesn't include all the things that are healthy for other people. There are an awful lot of foods we can eat that are naturally gluten-free. You can find lots of ideas in the recipe section, or by searching for snacks or lunch or dinner ideas.

It can take some time to adjust and learn all the things to avoid. But the sooner you can maintain a totally gluten-free diet the sooner you will recover. One thing that can make it simpler is to avoid processed foods and stick with whole foods that you cook from scratch. A simple diet is easier to understand and there are fewer foods to be concerned about. Also the labels on whole foods are pretty short and don't take a lot of time to read. Things like whole fruit, plain meats with no glazes or breading, whole vegetables etc are good choices.

There is an FAQ at the top of each forums that has some good info.

Yes, celiac is forever, but there are many people on this forum who have had great improvements in their health and symptoms after going gluten-free. It's kind of like diabetes, if you control your diet you can do well. That's easier after doing it a while, just like anything is easier after doing it repeatedly. And we have all or are all going through the same changes so feel free to ask questions and vent as needed. We have probably done the same in the past ourselves. Welcome to our gluten-free club! :)

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    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
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