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New To The Forum But Not To Celiac

4 posts in this topic

I am new to the forum but have been reading info from for quite some time and it has really helped me. I have been gluten-free for 2 years now and also have MS. Getting diagnosed with Celiac was one of the best things that has ever happened to me since now I have my life back and continue to feel better all the time...unless I have made errors and that is where this forum comes in. I need to continue learning so I will not accidentally make an error...especially at the wrong time. We all know about that.

Now, for the tech question. Is there an easy place to search for a topic, especially in depth? I must have missed this on the site. I have limited time, as most do, and cannot simply read thru everything. So, any tips would be appreciated. I made a few posts...but am not sure where to check my posts to see who answered without going thru the different forums and searching for my post. There has to be a way to mark my posts to save time.

Sorry for my ignorance and I appreciate everyone's help in advance.


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There are lots of ways to use this forum, but here are a couple which might be of use to you. In the upper righthand corner of the page once you have logged on you will find a box with your user name. Click on the box and it will give you a pulldown menu. Click on My Profile, and in the box that comes up, besides a lot of interesting information, you will see in the line across the top of the box, several clickable buttons. By clicking on Topics you can find the latest topics you have started; by clicking on Posts you can find the latest posts you have made. Down the lefthand side of this page you will find My Content. Click on this and you willl find every thread in which you have made a post (for the last 12 months I believe).

Another way to identify threads that you are posting in is to click (on the index page) on View New Content. This will bring up all posts made by all posters in the last 24 hours (or since you last logged on). There are various colours in the boxes next to these posts and some (if you look closely enough) will have a diagonal bar through the lower righthand corner which, on closer examination is revealed to be a pencil, meaning that that is a athread which you have made a post in.

If you want to find all posts made in the last 24 hours, go to the forum index page and the line across the bottom has a button, Today's Active Content, which willl give you all posts made in the last 24 hours regardless of whether you have logged on or not. There are other ways of following threads on the forum, but as a moderator I do not use them. Someone else may explain them for you.


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Thank you! I will check out your suggestions.


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In addition to Shroomie's suggestions, a quick way to search the forum is --can you see up in the right hand corner, under the CELIAC.COM BLUE Banner and your profile, there is a


Type in the topic you are looking for and related threads will appear in a new screen.

Hope this helps!


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    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
    • Hi Sunshine, There is a program called a 504 plan that some schools will follow if you get one approved.  It helps the school identify proper ways to deal with a child's particular needs.  Probably it is helpful to have a 504 plan, but they may require a formal diagnosis for it.  I suggest you talk to the school and ask them about it.  Tell them the situation with the kid and about the stress he would need to go through to get diagnosed.  They may be willing to work with you without a formal diagnosis.   I am not saying you absolutely have to have a 504 plan for him.  School districts vary and some may be more accommodating than others.  A 504 plan may give you certain rights, but I  am no expert on them. The gluten challenge is 12 weeks of eating gluten for blood tests.  The payback for being formally diagnosed is questionable IMHO.  Treatment is the same regardless, eating gluten-free for life.  One thing to be aware of is that celiac disease has a genetic factor.  So he got the gene from one of the parents.  Anyone else in the family could have celiac develop at some point.  So testing every couple years for all family members is a good idea. Welcome to the forum!
    • Thank you everyone. I appreciate all of the information and support.  I am feeling overwhelmed right now and it was really getting me down yesterday. I don't feel so hopeless now. 
    • Okay. I think I will start with an allergist and a dietitian. 
    • Yes, that list I posted includes stuff to look out for in your cosmetics as well, I think. Spices get contaminated often depending on brands, sources, and packaging plants, you have to find brands that are certified, I find Spicely Orangics works here. Supplement wise I am on a ton. I take combinations of Liquid Health Brand, Stress & Energy and Neurologic Support for B-Vitamins, I take Doctors Best Chelated Powdered Magnesium. I drink a bunch of almond milk and eat a lot of nuts, seeds, green leafy veggies, and a huge viarity of foods always having a mix to balance out my needs in vitamins (I studied alot an worked with a dietician to learn what contains what and find my balance). I found a IBS targeted probitotic from jarrow seems to work best with me and no bloat. List of other supplements if you want but with celiacs different people can get different deficiencies and you should probably talk to a dietician and see about having your own regiment built up. I just listed the common ones. I was thinking about this later on and after I got off the stuff for awhile I found myself randomly vomiting from some foods, none of the brain fog, numbness, Just throwing up. Ended up I developed intolerance to certain foods like egg yolks, soy, and a few others things. I also developed allergies to corn where I would just get sores in my mouth and digestive tact and run 99-102F Fevers when I ate anything contaminated with it. And a peanut allergy that caused me to distend and swell throwing up for hours and getting a rash later on. My different reactions to different foods made my dietician laugh at how odd my body is (we both did after talking for awhile) and my doctors found it interesting and kept on wanting to run more test.
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