Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sick Of The Nay Sayers!
0

4 posts in this topic

My daughter and I have modified our diets yet again after getting our recent intolerence tests back. In my daughter's case she can actually have some things that she couldn't have before. She is intolerant to more nuts now and also coconut. But overall she can now eat a fairly normal diet. She can even order in a restaurant with no problems!

We are both intolerant to some herbs. Mainly the Italian kind. So ordering Italian food out could be a problem. And she has to watch out for anything with pesto in it due to the basil intolerance.

But me? Intolerant to a lot of stuff now. But I am soldiering on. And my weird symptoms have cleared up. My ring finger had swollen to where I couldn't get my wedding ring on. That's gone. Ring is on. I had gained 6 pounds. That's gone and I am back to losing again. I'd been having weird sinus problem. Like a tickle/itch. Hard to describe it. I would just keep blowing my nose but the annoying feeling wouldn't go away. Was having weird nosebleeds. Not just blood but like watery blood. My daughter gets the same if she eats peanuts or peanut oil. And I was having bowel issues. Several kinds. All cleared up now. Also I have noticed that I am having to use less insulin. So that's a good thing!

I am happy now that I seem to be doing so much better. But some other people are making fun of me. They think the food intolerances are all in my head. So I am not loving that. They don't seem to understand how intolerances work. They think if I eat something and it makes me sick then I would know. Wouldn't I? The problem? I know that with eggs, I would get sick about 18 hours after I ate them. Unless I ate them two days in a row. Then the second day I would get sick about 2 hours later.

But the things I am now intolerant to are things I was eating pretty often. Like chicken. And various herbs and spices. I did strongly suspect the dairy because I was intolerant to it before and perhaps I just wanted to be in denial there for a while. But within days before getting the test results, I was starting to have aversions to dairy. I was seeing cottage cheese as milk, which I hate. And any other type of cheese just didn't seem appealing to me. So giving it up doesn't bother me at all.

I just don't understand why these people seem to have the need to be so vocal about it. I had asked about a recipe I am going to be making for Easter. I made it before and people liked it. It has thyme in it. And I can't have that now. So I simply asked if they thought I should leave it out or try to substitute something else, like oregano. They got all over my case, laughing at me and calling me crazy. One woman even told me that she didn't understand how I could eat oregano if I couldn't eat marjoram. And I was like... Wha? Why? Do you know something I don't? I did look them up and they are members of the mint family. My intolerance test said that I can't have mint but then went on to list marjoram separately. I have also been eating chia seeds daily which are also a member of the mint family. But I seem to have no problems with those. So unless I notice something different, I am going to keep eating those things and just avoid anything that says "mint" outright.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Some people like to think they know everything but really are ignorant when it comes to food issues. Either they like being so vocallly rude about people because they're cold hearted or because they feel like they need to make themselves look better because they are insecure about something in their life. I have to deal with these kind of people too.... I took the advice of people in this forum to just ignore the comments and not associate closely with them. The other day, one of these people came to me and said they had learned about celiac in their school and understood it a little better now. Maybe eventually these people will get a food intolerance of their own. Who knows. Hang in there!:)

0

Share this post


Link to post
Share on other sites

I have been struggling for some time with food intolerances after having no issues at all (or so I thought) related to food other than extremely severe migraine. I realised it was a dairy intolerance - the battles I have had with people accepting I can't eat certain foods now has actually been horrendous. My intolerances are now becoming wider spread to gluten, although I realise my symptoms have been around for years, I was just oblivious to them. Thankfully my husband understands but most people are really bad around it, thinking it is all in my head. I wish they could feel the pain in my back or head when I've eaten something. My "best friend" actually asked me what was 'bipolar' and shouldn't I just "chill out" a bit when I told her the consultant was sending me for an endoscopy. I would know what bipolar is being a psychotherapist and would also hopefully recognise if my symptoms were IN MY HEAD. It's a lonely place to be. I lost weight initially when I cut out dairy, I needed to in honesty as I was a bit overweight. People started saying I had anorexia, even my own Mum. It was hugely upsetting. I found the lack of support and understanding, personal, rude, outspoken comments really shocking and hurtful. The consultant I saw recently summed it up well - he said with an allergy you will get the same result every time you eat the food, with an intolerance, the result may be inconsistent ie with milk I always got migraine, with garlic sometimes I do, sometimes I don't. Things don't always show on blood tests etc but we know out own bodies so get to know yours, ignore ignorant and hurtful comments and try to stay disciplined (that is so hard for me) I have found this forum really helpful so thanks to you all - been following it on Twitter for a while

0

Share this post


Link to post
Share on other sites

Yeah. My reactions aren't always immediate. In fact they usually are not. Which is why I never would have figured them out by myself. I would much rather avoid something that showed on a test than to continue to eat it and possibly have a problem with it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,308
  • Topics

  • Posts

    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,117
    • Most Online
      1,763

    Newest Member
    cdliac3855
    Joined