Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Which Probiotics
0

21 posts in this topic

As I am still in the first few weeks of being gluten free I am anxious to do what I can to promote intestinal health. I am working on the belief that longterm celiac disease has caused considerable damage to my gut, I am desperate for information on the benefits of Probiotics, your experiences, etc.

I started with just cultured buttermilk, yogurt, sauerkraut, etc and found them so soothing that I have been able to drastically cut my dependence on Prilosec, which I think is contributing to my unhealthy gut. Then I got an acidophilus capsule. Then I went to the health food store and became utterly confused by the different straight s, brands and claims.

Please help!

0

Share this post


Link to post
Share on other sites


Ads by Google:

As I am still in the first few weeks of being gluten free I am anxious to do what I can to promote intestinal health. I am working on the belief that longterm celiac disease has caused considerable damage to my gut, I am desperate for information on the benefits of Probiotics, your experiences, etc.

I started with just cultured buttermilk, yogurt, sauerkraut, etc and found them so soothing that I have been able to drastically cut my dependence on Prilosec, which I think is contributing to my unhealthy gut. Then I got an acidophilus capsule. Then I went to the health food store and became utterly confused by the different straight s, brands and claims.

Please help!

I have been taking Garden of Life Primal Defense Probiotics since I was diagnosed. I take them twice a day, once with breakfast and then once again with dinner. This brand has the highest concentration of good bacteria that I have found, and they have seemed to work the best. What you should look for is a variety of probiotic species, and of course make sure the pill is gluten free.

Here is a link to their website: http://www.gardenoflife.com/ProductsforLife/SUPPLEMENTS/DigestiveHealth/PrimalDefense/tabid/638/Default.aspx

0

Share this post


Link to post
Share on other sites

I have been taking Garden of Life Primal Defense Probiotics since I was diagnosed. I take them twice a day, once with breakfast and then once again with dinner. This brand has the highest concentration of good bacteria that I have found, and they have seemed to work the best. What you should look for is a variety of probiotic species, and of course make sure the pill is gluten free.

Here is a link to their website: http://www.gardenoflife.com/ProductsforLife/SUPPLEMENTS/DigestiveHealth/PrimalDefense/tabid/638/Default.aspx

I don't think Primal Defense is safe. They use barley grass and it's not tested for gluten. It's a shame too becasue it would be a nice product. This worried me.

Q: Is Primal Defense ULTRA gluten free?

A: While every effort is made to cut the cereal grasses before the gluten head is formed and no ingredients known to contain gluten are added to the formula, as with Primal Defense, Garden of Life is unable to give a guarantee that the product is 100% gluten free as there may be minute traces of gluten from the cereal grasses.

From http://www.crohns.net/Miva/productinfo/whyPD_Ultra.shtml

I've taken ThreeLac, Ultimate Flora, Bio-Kult and recently switched to VSL#3. I really like Bio-Kult and I may go back to it.

Edited to add: I recently learned from the manufacturer that Threelac has up to 30 ppm gluten. Please look further down this thread to post #12 where I put their email.

0

Share this post


Link to post
Share on other sites

I'm taking Culturelle non-dairy and Power Dophilus.

It was recommended to me to take them on an empty stomach so the acid that's released when eating food doesn't kill the little buggers off. Different brands have different directions. Be sure to follow what it says on the bottle.

0

Share this post


Link to post
Share on other sites

I started using nutraMetrix several months ago (I get it from my GP). I can't compare the mg as my is measured in CFU. I have to tell you it has made a huge difference in my healing and everyday just feeling good. Your on the right track, I also use an Aloe drink each day as it helps with the digestive aspect of all the healing. I take Nexium each day, a reflex medication just like you Prilosec. Keep up the good work your on the right track.

0

Share this post


Link to post
Share on other sites




I don't think Primal Defense is safe. They use barley grass and it's not tested for gluten. It's a shame too becasue it would be a nice product. This worried me.

Q: Is Primal Defense ULTRA gluten free?

A: While every effort is made to cut the cereal grasses before the gluten head is formed and no ingredients known to contain gluten are added to the formula, as with Primal Defense, Garden of Life is unable to give a guarantee that the product is 100% gluten free as there may be minute traces of gluten from the cereal grasses.

From http://www.crohns.net/Miva/productinfo/whyPD_Ultra.shtml

I've taken ThreeLac, Ultimate Flora, Bio-Kult and recently switched to VSL#3. I really like Bio-Kult and I may go back to it.

dang. well, thanks for the heads up! maybe thats why i am not yet feeling 100%. sorry for the misinformation...

0

Share this post


Link to post
Share on other sites

Thanks for the info everyone. I grabbed a bottle of something at the health food store last week and will try one of the suggested brands.

Cathey, thanks for the pep talk and encouragement. It really does help. I recently read that acid reflux, which I suffered with for years, can be caused by LOW acid as well as too much. I have noticed almost as soon as I went gluten-free that I felt less acidy and have cut the Prilosec to one every two or three days. I have osteoporosis and would like to completely eliminate the acid reducers.

0

Share this post


Link to post
Share on other sites

Nana -

I always thought I had too much acid as well and antacids never seemed to help much. My doctor told me I was actually low acid - I started taking HCl supplements with meals and wow what a difference. I no longer have reflux, gas or bloating after meals. Also, if you are prone to infections (fungal, bacterial, etc), that could be another sign that you aren't producing enough acid. I went through 2 years with a constant yeast infection - once I started the HCl, it subsided a bit. Still haven't kicked it completely (yes, it's been FOUR years!!!), but I definitely have more good days than bad. Hope you get to feeling better!

0

Share this post


Link to post
Share on other sites

Thanks for the info everyone. I grabbed a bottle of something at the health food store last week and will try one of the suggested brands.

Cathey, thanks for the pep talk and encouragement. It really does help. I recently read that acid reflux, which I suffered with for years, can be caused by LOW acid as well as too much. I have noticed almost as soon as I went gluten-free that I felt less acidy and have cut the Prilosec to one every two or three days. I have osteoporosis and would like to completely eliminate the acid reducers.

I was put on strong acid reducers years ago, without being tested for anything. I had GERD which I now know was from eating gluten. Before DX I kept complaining of stomack pain and nausea. The Dr. told me to eat Tums. That was reducing my acid even more! :o

I stopped taking the acid reducer on my own when it was found I had a poorly functioning gallbladder. I was told I might want to consult with a surgeon to have it removed. Instead I looked up what could cause dyskinesia, and found ...acid reducers can cause it.

I think I've had low acid production all along? When the GI heard I went off the acid med instead of getting surgery he wasn't happy with me, but I haven't had reflux problems, and have had improvement with the gallbladder.

I hope you can go off the meds too.

0

Share this post


Link to post
Share on other sites

Custom Probiotics offers a multi-strain powder that worked well for me. (I had NO detectable good bacteria in my gut :o when I was tested at DX and this probiotic powder helped put me "straight". :) )

I also switch up from time to time and use Culturelle (the non dairy ones) as my GI doctor suggested them. They are less-expensive, portable and contain the lactobacillis GG strain. There are various studies to support this strain as being beneficial.

Just some suggestions!

FWIW, my long-time GERD and IBS (treated for 12 years with all kinds of prescription acid-reducers and meds and swigging maalox and eating TUMS like candy) has disappeared since DX and being gluten free for a year. I was BURNING from my mouth/tongue--down through my entire GI tract---right to my rectum. I am not kidding. But it is gone now. My Mom too--went gluten-free after my DX and she is off all GERD meds. Feels great!

It takes time, but the GI tract can heal.

Hang in there!

0

Share this post


Link to post
Share on other sites

Also, I saw someone else on here recommend Threelac...it is not gluten-free. I did not know this at the time and consumed it and it put me in bed for about 6 hours with overwhelming fatigue. I contacted the site I bought it from and they confirmed that it has 10ppm gluten in it, but apparently that is too much for me! Luckily they have a money back guarantee. :)

0

Share this post


Link to post
Share on other sites

Also, I saw someone else on here recommend Threelac...it is not gluten-free. I did not know this at the time and consumed it and it put me in bed for about 6 hours with overwhelming fatigue. I contacted the site I bought it from and they confirmed that it has 10ppm gluten in it, but apparently that is too much for me! Luckily they have a money back guarantee. :)

Can you please provide more information? GHT lists 30 ppm casein in Threelac and Fivelac but there is no suggestion that there would be gluten.

Edited to add: Ack. I just wrote GHT (the manufacturer) and got a super-fast response.

Thank you for your email. The Threelac and Fivelac do contain a small amount of gluten. The Threelac contains less than 30ppm and the Fivelac contains less than 20ppm. I hope this information helps and please let me know if I can be of any further assistance.

0

Share this post


Link to post
Share on other sites

My GI doctor put me on VS-3. I dont know for sure how well it is working, but i guess it seems to help (?)

0

Share this post


Link to post
Share on other sites

I decided to buy probotic supplement out of whim.

I bought Culturelle tonight and I was going to ask about it. Lucky, i found this thread so does that mean i have made right choice on pick this item? I hasnt seen my doctor yet but i dont think I will go in for testing and all for now. Money is tight nowdays and I am try to take different path and jsut go for it. i will try to take this supplement to help to stop be bloating which i have been feeling for awhile.

or i should have to see doctor before even take probotic on my own?

please let me know. I am not take any of culturelle until if this is right kind of probotic to take etc. I rather to know if it is right kind or if it is not i would take it back to store get money back.

0

Share this post


Link to post
Share on other sites

I decided to buy probotic supplement out of whim.

I bought Culturelle tonight and I was going to ask about it. Lucky, i found this thread so does that mean i have made right choice on pick this item? I hasnt seen my doctor yet but i dont think I will go in for testing and all for now.

or i should have to see doctor before even take probotic on my own?

Probiotics can't hurt you, only help you. :)

However, keep in mind that anything we suggest on the site is not intended to be medical advice. If you have not yet seen a doctor for your various gastrointestinal symptoms, maybe you should.

We have no idea what may be causing the bloating in you.

Best wishes,

IH

0

Share this post


Link to post
Share on other sites

irishheart,

yes, you are right. i am doing something about it very soon.

thank you!

0

Share this post


Link to post
Share on other sites

irishheart,

yes, you are right. i am doing something about it very soon.

thank you!

We want you to feel better! Keep us posted.

0

Share this post


Link to post
Share on other sites

So Culturelle has just one strain of good bacteria? <_<

0

Share this post


Link to post
Share on other sites

I just started using MegaFlora Plus. It's labeled certified gluten-free. Also dairy free, soy free, non GMO, vegitarian and tested free of pesticides and herbicides.

Has 14 strains and with 50 billion CFU's. Does seem like a lot. ????

0

Share this post


Link to post
Share on other sites

I just started using MegaFlora Plus. It's labeled certified gluten-free. Also dairy free, soy free, non GMO, vegitarian and tested free of pesticides and herbicides.

Has 14 strains and with 50 billion CFU's. Does seem like a lot. ????

My nutritionist told me to take a minimum of 50 billion. I was taking 100B for about a month. I took the Target Up & Up brand, but had a terrible digestive side effect with which I won't gross you all out, but I know the box did not say it's gluten-free, so I am looking for a new one. Cultrelle says it is dairy and gluten-free, so I think I'm going to try that one.

0

Share this post


Link to post
Share on other sites

My nutritionist told me to take a minimum of 50 billion. I was taking 100B for about a month. 

I don't have a nutritionist to date, so thanks for posting. I'll stay with my 50B brand for a while.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined