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Cross Contamination
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My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?

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My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?

Using this as proof to my family to show that yes, even the most minor, no brainer mistake can make us sick!!

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Show them this website from experts on celiac. You can google celiac centers and find more if you need to.

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person

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My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?

On March 20 I cleaned the kitchen. I wiped down the inside of the cabinet that used to have flour stored in it. I didn't eat any flour, and wore rubber gloves..but must have breathed some in? I got hyper a while later, that progressed to insomnia that night, followed by a feeling of being off balance/dizzy. I'm still feeling the off balance effects and it's been over 2 weeks! :o

My family just don't "get it" either. Nobody is careful about their gluten foods. I finally broke down and got my own microwave. I got tired of seeing the crud from canned pasta plastered all over the insides of our shared one. :(

I wish you could see gluten under a black light or something? It would be so helpful to have a way of seeing cc?

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I used a knife my husband had spread his jam with, I used it to cut a banana, was sick 20 minutes later. I also have been using Diamond brand walnuts in my muffins without any problems. One morning for breakfast, had my usual muffin and twenty minutes later I was sick. Read the label, "nuts are processed on same lines as wheat, other nuts etc. I get sick with anything that shares equipment, I am learning to read labels everytime I purchase something.

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A friend's gluten cc moment is probably a more useful one for your relatives. :-)

I have a friend who went out to a fast food place with her family. She didn't eat anything there and just got a 'water cup' so she could get water from the soda fountain. It was one of those spouts that is usually lemonade but you could press the 'water only' button to get water from it. She had some and was horribly, horribly sick from the water.

She later found out that the lemonade that comes from the same spout has gluten in the powdered mix it is made from, and whatever was left in the spout mixed with her water and zapped her. :-(

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* the corn-only corn flour that isn't just corn (probably factory related, can't trust restaurants etc)

* nuts (even "natural" that are processed or transported on common lines)

* ((I am very sensitive)) gluten free processed foods that are tested (how often??) at a particular level but my DH can't tolerate any much...

this is the hardest one. Rice and rice noodles from Thailand factories seem to be the most reliable for me as they are likely produced in a rice only platform.

There is a great company here in Australia "Freedom Foods" who have several products that are now my only "gluten-free" production line foods. I really need to get online and thank them. They even track their (I believe newly introduced) oat products to ensure the oats are produced, transported etc etc without glutens. And they then test every batch that comes to the factory. They are truly a company that regularly amazes me. I wonder and won't be surprised if the owner/boss is a serious DH/celiac sufferer (i hate the word sufferer.. any suggestions for something more positive??)) !!

This past week I introduced Freedom Foods Crunchola which is a toasted muesli type product. It has been my lunch every day so far this week. And with breakfast being such a problem my entire life I find it thoughtfully amusing to being eating a massive bowl of toasted oats for lunch 3 days in row. No reaction. I might actually get to be a breakfast person yet...

Okay that is way too much about me. You have two options

1. Get the friends and family informed. This is not a traditional epipen type allergy but it could kill you - the slow and surely type of cancer vs a heart attack type of death

or

2. Get stuffed ((not sure if this is just an Australian saying??)).. I'm not hungry, I can't trust anyones food so don't be offended because I tend to react with anything outside my own kitchen .. I hope you get the idea. If you don't...

In Australia 'get stuffed' tends to mean don't bother.. if you can't get it then I'll pretend you are a bit slow on the uptake and give you little subtle ideas of what it might actually mean. If you don't get it you probably aren't worth the effort.

A symbol of our great British and convict history.

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    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
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