Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Loss Of Appetite
0

9 posts in this topic

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

It sounds like she's had a rough time? A lot of us tend to equate eating with pain, but we have to eat! It's important to find safe foods that are nutricious. Fruits, veggies, non-processed meats, eggs, nuts, are all good for us. It's best to avoid milk/dairy at first.

Some of her not wanting to eat can come from vitamin/mineral deficiencies. Did she have a Dr. run a blood panel to check her levels?

It's common for Celiacs to be low on B vitamins, especially B12, D, and iron. Cold feet could point towards low iron levels?

Probiotics help food digest and digestive enzymes really help at first too. Adding these should help food digest and not just "sit there" making her feel uncomfortable. Fish oil is an anti-inflamatory that most people benefit from too.

She's lucky she has you on her side. Ask to have the blood tests done if they haven't been, and look for gluten free supplements. She will probably need them until she heals and can eat more?

0

Share this post


Link to post
Share on other sites

Like the previous poster, I agree that she may be suffering from nutritional deficiencies (especially B vitamins). There is also the possibility that she is reacting to any hormonal treatment she may have been given in the hospital or afterward. Is she on some type of hormonal treatment for her previous bout with cancer? I can state from experience that when women's hormones are messed with, we can have very bad reactions that particularly affect our appetite and digestion. When certain hormones are low, there can be malabsorption of Thiamine, which can cause all the symptoms you described. However, she may be reacting to ANY medication that she's been given....or reacting to a low-hormone situation where she needs some kind of supplementation. By the way, were her medications checked for gluten?

In the interim, she should attempt to eat some healthy saturated fats to help her absorb fat-soluble vitamins. Good choices would be avocados, nut butters, organic butter, and olives.

You might wish to examine the list of common symptoms of nutritional deficiencies at this website:

http://www.behealthyatwork.com/pdf/Deficiency-Toxicity.pdf

I would like to echo the sentiments above, too, in that your sweetheart is very fortunate to have someone looking out for her and who has her best interests at heart.

0

Share this post


Link to post
Share on other sites

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

0

Share this post


Link to post
Share on other sites

You mention a hospitalization. Was she put on antibiotics? As well as vitamins she may need probiotics. Having your digestive system messed up with antibiotics can cause all sorts of unpleasant problems and make food not sit well at all. Get her something good like Ultimate Flora. :)

0

Share this post


Link to post
Share on other sites




I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

0

Share this post


Link to post
Share on other sites

I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We have discussed this many times on here and everyone seems to have a "favorite" :lol:

Some good ones are:

Ultimate Flora

Custom Probiotics

Culturelle

and yes, a celiac gut needs them. Hope it helps!

0

Share this post


Link to post
Share on other sites

I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We had similar issues.......check the toothpaste/make-up/ shampoo/ bubblebath. I know it may sound strange but as someone pointed out to us your skin is porous, thats how Nicotine patches work.

Gary.

0

Share this post


Link to post
Share on other sites

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

So happy to read this comment. I just replied to a weight loss comment mentioning medical anorexia as explained by my dr.

Thank you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,446
  • Topics

  • Posts

    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined