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Loss Of Appetite
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Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

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Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

It sounds like she's had a rough time? A lot of us tend to equate eating with pain, but we have to eat! It's important to find safe foods that are nutricious. Fruits, veggies, non-processed meats, eggs, nuts, are all good for us. It's best to avoid milk/dairy at first.

Some of her not wanting to eat can come from vitamin/mineral deficiencies. Did she have a Dr. run a blood panel to check her levels?

It's common for Celiacs to be low on B vitamins, especially B12, D, and iron. Cold feet could point towards low iron levels?

Probiotics help food digest and digestive enzymes really help at first too. Adding these should help food digest and not just "sit there" making her feel uncomfortable. Fish oil is an anti-inflamatory that most people benefit from too.

She's lucky she has you on her side. Ask to have the blood tests done if they haven't been, and look for gluten free supplements. She will probably need them until she heals and can eat more?

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Like the previous poster, I agree that she may be suffering from nutritional deficiencies (especially B vitamins). There is also the possibility that she is reacting to any hormonal treatment she may have been given in the hospital or afterward. Is she on some type of hormonal treatment for her previous bout with cancer? I can state from experience that when women's hormones are messed with, we can have very bad reactions that particularly affect our appetite and digestion. When certain hormones are low, there can be malabsorption of Thiamine, which can cause all the symptoms you described. However, she may be reacting to ANY medication that she's been given....or reacting to a low-hormone situation where she needs some kind of supplementation. By the way, were her medications checked for gluten?

In the interim, she should attempt to eat some healthy saturated fats to help her absorb fat-soluble vitamins. Good choices would be avocados, nut butters, organic butter, and olives.

You might wish to examine the list of common symptoms of nutritional deficiencies at this website:

http://www.behealthyatwork.com/pdf/Deficiency-Toxicity.pdf

I would like to echo the sentiments above, too, in that your sweetheart is very fortunate to have someone looking out for her and who has her best interests at heart.

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Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

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You mention a hospitalization. Was she put on antibiotics? As well as vitamins she may need probiotics. Having your digestive system messed up with antibiotics can cause all sorts of unpleasant problems and make food not sit well at all. Get her something good like Ultimate Flora. :)

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I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

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I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We have discussed this many times on here and everyone seems to have a "favorite" :lol:

Some good ones are:

Ultimate Flora

Custom Probiotics

Culturelle

and yes, a celiac gut needs them. Hope it helps!

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I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We had similar issues.......check the toothpaste/make-up/ shampoo/ bubblebath. I know it may sound strange but as someone pointed out to us your skin is porous, thats how Nicotine patches work.

Gary.

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Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

So happy to read this comment. I just replied to a weight loss comment mentioning medical anorexia as explained by my dr.

Thank you.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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