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Soy Lecithin...?
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16 posts in this topic

Can we have it?? What is it? We can't have soy right? Sorry for my ignorance but Im still trying to desperately learn! Just ate some MM's and I hope to God I didn't just gluten myself!!! :unsure:

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Soy lecithin is derived from soy which Celiacs can have from a gluten perspective. Of course you could be intolerant to soy, but as far as gluten goes it is not a concern.

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I don't avoid soy lecithin and as far as I know, I don't have any problem with it. While I am well aware that some people have serious problems with soy, I don't buy products based on soy like tofu or soy flour as I figure I just don't need them.

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There are links to safe and unsafe ingredients at http://celiac.com. Here is the safe list, and as you can see soy lecithin is on it. http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

This is the UNSAFE list so you know what to look out for. To be honest I find it easier to mostly avoid processed foods. Reading long ingredient labels is confusing and if you make a mistake you gluten yourself.

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

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:lol: I was just going to point her to those lists--but I see Skylark has already done it! ;) (great minds and all..... :lol: )
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This was written in 2011 on the Livestrong website but raises concerns to me. Does anyone have any more info on this?

Soy, or soya, lecithin is a gluten-free food because it is not made from wheat, rye or barley. While soy lecithin by itself does not contain gluten, additives to lecithin may contain gluten. Consumers must do their own research into ingredients and gluten content, which can sometimes be confusing.

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I'm  relatively newly diagnosed Celiac. My understanding of the whole Soy issue is that while Soy itself does not contain gluten, it is often suspect due to the high likelihood of cross contamination. This is due to the fact that most Soy growers also grow Wheat, Barley and Rye in rotation with their Soy crops. This means the soils are contaminated with the gluten containing grains and the equipment used to harvest and process the Soy is shared with the other gluten containing grains. So, the bottom line is, it's pretty much a crap shoot with Soy unless the product containing the Soy is specifically labeled gluten free. This would and should imply that the Soy used in the product is grown independently and isolated from other gluten containing grains.  

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no, dude, you are thinking of oats.  i have an independent soy sensitivity and if i have a reaction it lasts maybe 24 hrs.  i know it doesn't contain gluten because i would be knocked down for 2 weeks.  

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Thanks Arlene! However, a very short Google search using the string "Soy Wheat Rotation" yielded hundreds of articles about crop rotations including wheat, soy, corn and the list goes on. In fact, One short info article from Ohio State University http://ohioline.osu.edu/iwy/croprota.html recommends planting wheat following soy. It would appear there is nothing truly safe as far as crops go as it seems to be a largely common practice to rotate wheat with just about any other crop. Guess we Celiacs should just stop eating period! :-) Does anyone else out there know if wheat crop rotation is really a concern for those suffering from Celiac disease?

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so, once every 3 years, wheat is planted.  i suppose, the weather and the rest of the year take care of any excess wheat - also whatever likes to eat wheat would take care of what is left - after all, that is what the point to crop rotation is anyway, right?  and corn and soybeans are self contained so the wheat (theoretically, if there even was any to begin with) would be washed off when the kernels or beans were washed.  

 

but, i am not a farmer.  i am a celiac who eats corn and soy and gets no gluten reaction from either :)  i got enough worries, i don't need to borrow any ;)

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Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. Also, soy is not as healthy as people had once thought. It increases the risk for breast cancer and is genetically modified...among many other reasons why we shouldn't eat it. I avoid it all together, but it is very hard because it is in ALOT of foods.

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Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. .

This is not true. There is no scientific evidence of this. Soy does bother some people, Celiacs or not.

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I believe it's not the crop rotation that is an issue with wheat/oats.  It's the fact that they are usually grown next to each other at the same time.  And they are often processed in the same facility.

 

I live in a state where large amounts of soybeans are grown.  Where I live, almost no wheat is grown.  Soy may be rotated with corn or cotton here.  Not sure if it's the same in other parts of the country.

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soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

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soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

 

 

Maybe if you have a problem with soy.  Wouldn't be a gluten issue.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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