Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Soy Lecithin...?
0

16 posts in this topic

Can we have it?? What is it? We can't have soy right? Sorry for my ignorance but Im still trying to desperately learn! Just ate some MM's and I hope to God I didn't just gluten myself!!! :unsure:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Soy lecithin is derived from soy which Celiacs can have from a gluten perspective. Of course you could be intolerant to soy, but as far as gluten goes it is not a concern.

0

Share this post


Link to post
Share on other sites

I don't avoid soy lecithin and as far as I know, I don't have any problem with it. While I am well aware that some people have serious problems with soy, I don't buy products based on soy like tofu or soy flour as I figure I just don't need them.

0

Share this post


Link to post
Share on other sites

There are links to safe and unsafe ingredients at http://celiac.com. Here is the safe list, and as you can see soy lecithin is on it. http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

This is the UNSAFE list so you know what to look out for. To be honest I find it easier to mostly avoid processed foods. Reading long ingredient labels is confusing and if you make a mistake you gluten yourself.

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

0

Share this post


Link to post
Share on other sites
:lol: I was just going to point her to those lists--but I see Skylark has already done it! ;) (great minds and all..... :lol: )
0

Share this post


Link to post
Share on other sites




This was written in 2011 on the Livestrong website but raises concerns to me. Does anyone have any more info on this?

Soy, or soya, lecithin is a gluten-free food because it is not made from wheat, rye or barley. While soy lecithin by itself does not contain gluten, additives to lecithin may contain gluten. Consumers must do their own research into ingredients and gluten content, which can sometimes be confusing.

0

Share this post


Link to post
Share on other sites

I'm  relatively newly diagnosed Celiac. My understanding of the whole Soy issue is that while Soy itself does not contain gluten, it is often suspect due to the high likelihood of cross contamination. This is due to the fact that most Soy growers also grow Wheat, Barley and Rye in rotation with their Soy crops. This means the soils are contaminated with the gluten containing grains and the equipment used to harvest and process the Soy is shared with the other gluten containing grains. So, the bottom line is, it's pretty much a crap shoot with Soy unless the product containing the Soy is specifically labeled gluten free. This would and should imply that the Soy used in the product is grown independently and isolated from other gluten containing grains.  

0

Share this post


Link to post
Share on other sites

no, dude, you are thinking of oats.  i have an independent soy sensitivity and if i have a reaction it lasts maybe 24 hrs.  i know it doesn't contain gluten because i would be knocked down for 2 weeks.  

0

Share this post


Link to post
Share on other sites

Thanks Arlene! However, a very short Google search using the string "Soy Wheat Rotation" yielded hundreds of articles about crop rotations including wheat, soy, corn and the list goes on. In fact, One short info article from Ohio State University http://ohioline.osu.edu/iwy/croprota.html recommends planting wheat following soy. It would appear there is nothing truly safe as far as crops go as it seems to be a largely common practice to rotate wheat with just about any other crop. Guess we Celiacs should just stop eating period! :-) Does anyone else out there know if wheat crop rotation is really a concern for those suffering from Celiac disease?

0

Share this post


Link to post
Share on other sites

so, once every 3 years, wheat is planted.  i suppose, the weather and the rest of the year take care of any excess wheat - also whatever likes to eat wheat would take care of what is left - after all, that is what the point to crop rotation is anyway, right?  and corn and soybeans are self contained so the wheat (theoretically, if there even was any to begin with) would be washed off when the kernels or beans were washed.  

 

but, i am not a farmer.  i am a celiac who eats corn and soy and gets no gluten reaction from either :)  i got enough worries, i don't need to borrow any ;)

0

Share this post


Link to post
Share on other sites

Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. Also, soy is not as healthy as people had once thought. It increases the risk for breast cancer and is genetically modified...among many other reasons why we shouldn't eat it. I avoid it all together, but it is very hard because it is in ALOT of foods.

0

Share this post


Link to post
Share on other sites

Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. .

This is not true. There is no scientific evidence of this. Soy does bother some people, Celiacs or not.

0

Share this post


Link to post
Share on other sites

I believe it's not the crop rotation that is an issue with wheat/oats.  It's the fact that they are usually grown next to each other at the same time.  And they are often processed in the same facility.

 

I live in a state where large amounts of soybeans are grown.  Where I live, almost no wheat is grown.  Soy may be rotated with corn or cotton here.  Not sure if it's the same in other parts of the country.

0

Share this post


Link to post
Share on other sites

soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

0

Share this post


Link to post
Share on other sites

soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

 

 

Maybe if you have a problem with soy.  Wouldn't be a gluten issue.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,418
    • Total Posts
      917,667
  • Topics

  • Posts

    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
    • Generic meds
      Your best bet is to contact the manufacturer (as Squirmingitch suggested).   My doctor has no time to worry about medication containing gluten.  My pharmacist admitted that she does not have the time to help me, but recommended that I take responsibility and always contact the manufacturer.  My pharmacist did help by insuring that my thyroid replacement medication (Armour) is ordered in a full bottle, sealed and direct from the manufacturer.  I have to give her credit for being honest with me.  I also see her running around non-stop, so I believe that she is super busy.   Why did your doctor switch your medication?  Can you go back to your old brand?  How is your thyroid?   This is a bit off topic, but I subscribe to the Bicycling magazine.  I found this article fascinating about the impacts of cycling, swimming or running on ADHD.   http://www.bicycling.com/culture/people/riding-my-ritalin-how-one-cyclist-gained-control-over-his-adhd I hope you figure it out!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,549
    • Most Online
      1,763

    Newest Member
    ahp
    Joined