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I Have The World's Best Friend :)
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8 posts in this topic

I met my best friend and her 2 kids at the Zoo yesterday with my 2 kids. I always buy lunch there, she always packs her own. Anyhow, after finding a fruit plate in the cafeteria (I was getting really excited about the fries, which are cooked in their own vat, but then I saw them dumping them into the same serving dish as the chicken fingers and serving them with the same scoop, sigh), we went out on the lawn to eat and God bless her, she pulls out a bag of rice cakes and cheese and tells me she is trying to cut down on bread! Part of it may be true, but I also know her well enough to know that she didn't want to sit there and eat bread in front of me! In fact, except for a cereal bar she had for her baby, everything she brought yesterday was gluten-free! I don't expect people to eat my diet, but just knowing someone cares enough to do that really touched me, but I shouldn't be surprised because she is just that kind of girl!

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Awww, that is nice!

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I went to my friends house for a BBQ, and my friend made lettuce burgers, made the boys keep the buns on the other side of the room and even had a gluten-free designated dishcloth for me set aside. I felt so loved. Those gestures mean so much.

I'm happy you had that experience.

Elonwy

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You guys are lucky, that is so sweet :) I've had friends buy me gluten-free food before, which was really nice.

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Awww.... Such nice friends! :-)

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It's great when friends understand the diet you have to follow. My friends are super, they always ask questions before they serve food regarding how to keep it gluten-free if possible. It makes this disease easier to deal with when you have a lot of support.

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My best friend had a gluten free birthday cake made for me. She works with a woman who makes all sorts of baked goods and she asked her to make me a gluten-free birthday cake. She is the most considerate and thoughtful person ever.

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My best friend and my sister in law are very careful with my gluten issues and I love that they are.

Susan

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    • So my heart has been doing weird stuff post gluten challenge. Skips beats, arrhythmias, chest pain. It was getting a bit better then worse again in July.   My cardiologist has done 2 stress tests, halter monitor, and we have not caught anything other then harmless pvc's. But I KNOW this is not right for my heart and it has gone wacky out of sync and we never catch it on a damn test. All of my doctor's were connected out of a larger practice, so the GI, cardio, neuro, and primary care can all see the mountains of tests I had and think I am a nutcase the moment I walk through the door. I will admit that I informed the old GI about the DGP test being positive and I sent over some info on the test as they were basically using TTG and old gliadin tests, and they were receptive. But for the most part, I do not trust doctors. I was once told I was in false labor when I actually had 13 gallstones and an infection in my bile duct. I have more horror stories, as we all do. So, my protein and RBC were low in the hospital but all up to good levels now so it is not a vitamin deficiency. My heart has already skipped multiple beats today. The other day, it again went out of rhythm for just 20 seconds or so. I am not drinking coffee or alcohol because of the acidity, so it is not that. I was glutened on August 24th and probably once in July. Does anyone have weird heart issues that vanish eventually? If so, how long does it take? I am an over-thinker, which has its pros and cons. I know we are at an increased risk for CAD which is not really my concern right now. My gut is inflamed, my thyroid is inflamed and my adrenal gland was effected by all of this. I sort of wonder if an exposure to gluten causes some kind of myocarditis, an inflammation that would not be picked up a sonogram per se, and may eventually vanish with a gluten free diet. Has anyone ever had experience with myocarditis? I did a lot of reading on Roemheld syndrome, gastro-cardio syndrome, which is basically a set of cardio symptoms resulting from your gut. Praying it is just that! I just feel like now that I have a diagnosis, I need to rebuild a team of doctors that I feel have my back. This is a sucky disease that can have a lot of ill effects and I need a team I feel is intelligent, supportive and willing to research. I already have a new GI and a great Endocrinologist. I am seriously contemplating a new cardio and neuro as they both talk to me like I am a 12 year-old with "hysterical girl syndrome".
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