Help Interpreting Test Results - Neg. But Still Not Sure
Posted 10 April 2012 - 08:02 AM
The patient does not have the HLA-DQ variants associated with celiac disease. More than 97% of celiac patients carry either HLA-DQ2 (DQA*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302)
HLA-DQ2 (DQA1*05/DQB1*02) Negative
HLA-DQ8 (DQA1*03/DQB1*0302) Negative
Typing performed by PCR and hybridization with sequence specific ogligonucleotide probes (SSO).
Posted 10 April 2012 - 09:19 AM
Hi and welcome.
More than 97% of celiac patients carry either...
Notice that it's not 100%. The other 3% of celiac patients do not have a so-called celiac gene.
You can also get very sick from non-celiac gluten intolerance. It seems a little unusual for DH to go away that fast. Mine took about 3 years off gluten to get to where I never had itching.
Posted 10 April 2012 - 09:46 AM
And Skylark is right; you can still be very ill from gluten and have a sensitivity to it, even if you are if not a full-blown Celiac.
Even the "top celiac docs" are starting to agree--there is NCGI (non-celiac gluten intolerance ) or gluten sensitivity that causes damage to the body.
The bottom line is--if you feel better off gluten, that is your answer.
You may wish to read these 2 articles:
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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