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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Another Newbie
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7 posts in this topic

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

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I don't even know how to respond to your post. It hurts my heart to imagine the situation you are in.

There are people here with multiple allergies who can provide information and support. Im still a newbie myself but have learned so much on this forum. I wish you all the luck in the world. And WELCOME 

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

I think the trick is finding the things you react to? It sounds like you're on top of it? Best wishes for much improved health!

Those gluten-free tags sure help narrow down the list of things we have to read the labels on? ;)

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Welcome to the site!

Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting point to improve things now! Getting used to the gluten-free diet may take a bit of effort but it gets to be normal feeling after awhile. Anyway, consider a whole foods diet and do lots of reading and ask questions. We are here to help and had lots of questions ourselves when starting out. Again, welcome! :)

Here are a few threads to get you started:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

What's For Breakfast Today?

http://www.celiac.co...180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Hi Victoria,

Did your doc do the celiac antibody panel for you? The antibodies are one of the 2 standard tests. An endoscopy can only see for about 5 feet of the small intestine, so if you had damage at 5 and 1/2 feet they wouldn't see it. The antibody tests are not 100% reliable just like the endoscopy isn't 100% reliable. But the antibody tests are a simple blood draw and they make sense to do. If you want to do them you need to keep eating gluten until the blood is drawn. Usually the celiac antibody tests are done first and then the endoscopy.

As far as time to heal goes, it varies a lot. Some start feeling better right away, others may take many months.

And welcome to the site! :)

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

It is great that you had the test done as now you know what you are reacting to and what you cannot eat, many of us here have had to guess and figure things out thru trial and error. I am one of the many here who have had neurological issues, I do hope that you are getting good care from your physician. My nuero issues ahve definately improved but the progress has been very slow. I think for me, the biggest help is consistency with the diet. For me I got better to a point going gluten-free but after a year I was still having health issues and by brain was not thinking like I knew it should so I went grain free and it was the answer. A year ago I may have had a hard time going grain free but after a year gluten-free I found it quite simple to take out the other grains so keep that in mind if you find things don't clear up for you by taking gluten out of your diet.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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