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Another Newbie
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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

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I don't even know how to respond to your post. It hurts my heart to imagine the situation you are in.

There are people here with multiple allergies who can provide information and support. Im still a newbie myself but have learned so much on this forum. I wish you all the luck in the world. And WELCOME 

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

I think the trick is finding the things you react to? It sounds like you're on top of it? Best wishes for much improved health!

Those gluten-free tags sure help narrow down the list of things we have to read the labels on? ;)

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Welcome to the site!

Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting point to improve things now! Getting used to the gluten-free diet may take a bit of effort but it gets to be normal feeling after awhile. Anyway, consider a whole foods diet and do lots of reading and ask questions. We are here to help and had lots of questions ourselves when starting out. Again, welcome! :)

Here are a few threads to get you started:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

What's For Breakfast Today?

http://www.celiac.co...180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Hi Victoria,

Did your doc do the celiac antibody panel for you? The antibodies are one of the 2 standard tests. An endoscopy can only see for about 5 feet of the small intestine, so if you had damage at 5 and 1/2 feet they wouldn't see it. The antibody tests are not 100% reliable just like the endoscopy isn't 100% reliable. But the antibody tests are a simple blood draw and they make sense to do. If you want to do them you need to keep eating gluten until the blood is drawn. Usually the celiac antibody tests are done first and then the endoscopy.

As far as time to heal goes, it varies a lot. Some start feeling better right away, others may take many months.

And welcome to the site! :)

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

It is great that you had the test done as now you know what you are reacting to and what you cannot eat, many of us here have had to guess and figure things out thru trial and error. I am one of the many here who have had neurological issues, I do hope that you are getting good care from your physician. My nuero issues ahve definately improved but the progress has been very slow. I think for me, the biggest help is consistency with the diet. For me I got better to a point going gluten-free but after a year I was still having health issues and by brain was not thinking like I knew it should so I went grain free and it was the answer. A year ago I may have had a hard time going grain free but after a year gluten-free I found it quite simple to take out the other grains so keep that in mind if you find things don't clear up for you by taking gluten out of your diet.

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    • Ugh!  So, you have early stages of celiac disease and that was after being gluten light?  It is a shame that your doctor is not comfortable about giving you a formal diagnosis because you don't have enough damage!  Time for a new GI.  You can also as for another pathologist to read your biopsies, but seriously....... Have a conversation with your current doctor about the reasons why he is hesitating.  He would rather you continue to become more ill or improve your health?   Are you going to be scarred for life with a celiac disease diagnosis? Maybe he is one of those people who think it is impossible to live with wheat, rye or barley!   I don't get it! 
    • Thanks for the comments. With Dr. Google, I have seen mast cell disorder pop up.  It seems like I need to eliminate some basics before heading in that direction. So, another question...is it possible that symptoms of celiac need time to "build up" over time? For instance,  I started reintroducing gluten and coffee last week to prepare for my GI appt.  However, nothing really seemed to happen except a little knee crankyness (which I can easily attribute to hiking).  Yet, yesterday I had a huge bagel at work, had itchy forearms, and then had two huge hives appear later.  Today, I had another bagel and in a few hours I had a few red fingers that were itchy and numb feeling in the tips.   I know histamine intolerance is a possibility, but wouldn't that show up as an extremely large hive with my allergy skin test? Also, I had to go into work today and yesterday. I'm wondering if that environment could contribute to the issue (I'm a high school teacher).  
    • Hi Fidel, The original poster hasn't been on the site for several years, so you may not get a response from them. But welcome to the forum!  
    • False positive or negative?  I was diagnosed with Coeliac and the more rare Dermatitis Herpetiforma.  I know that symptoms like youre describing could be a whole variety of conditions.  I have a friend who has ulcerative colitis whose symptoms are similar to what you are describing.  You could have ulcers, but keeping it real i have to say youre also describing opiate withdrawl.  So if youve been on pain killers prescibed or not that could be it also.  Best of luck
    • Hi Megan, Regarding dairy, celiac disease damages the villi that make the lactase enzyme that digests milk sugar (lactose).  So sometimes people can't digest dairy well when they first start the gluten-free diet.   Over time that may change as you heal.  The ability to digest dairy doesn't always come back, but it may. Throwing up can be caused by excess gas in the stomach.  That's pretty common when starting the diet.  Sugar and carbs will make it worse.  Udi's bagels are made of various flours so they are full of carbs.  Carbs are turned into sugar in the body and that feeds the bacteria, hence the gas. You could be reacting to various foods, so eliminating one problem food is not going to fix all the problems.  I think it would be more helpful to start by following the tips in my earlier post than to  try a full fledged elimination diet at this point.  Elimination diets can take a while to do. If you can stick to eating meats, vegetables, nuts for now that is a good thing.  No processed foods (like Udi's) or other baked goods.  This is probably the fastest way to get better and learn what is safe to eat.  Once you are feeling better for a few weeks then you can try adding in one new food a week and see how it goes.  The gluten-free diet is a lifetime commitment so you may as well start out right and take your time.  Whole foods are a good way to go at the beginning.  If you cook your own food you know what is in it.  That's important to know for us.  Avoiding any processed food with more than 3 ingredients is also good.  The fewer ingredients you are eating the simpler it is to figure out a problem. I wouldn't worry about the idea of the throwing up thing making you react to dairy.  Celiac is known to cause a problem with dairy intolerance.  
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