Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Another Newbie
0

7 posts in this topic

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

0

Share this post


Link to post
Share on other sites


Ads by Google:

42

I don't even know how to respond to your post. It hurts my heart to imagine the situation you are in.

There are people here with multiple allergies who can provide information and support. Im still a newbie myself but have learned so much on this forum. I wish you all the luck in the world. And WELCOME 

0

Share this post


Link to post
Share on other sites

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

I think the trick is finding the things you react to? It sounds like you're on top of it? Best wishes for much improved health!

Those gluten-free tags sure help narrow down the list of things we have to read the labels on? ;)

0

Share this post


Link to post
Share on other sites

Welcome to the site!

Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting point to improve things now! Getting used to the gluten-free diet may take a bit of effort but it gets to be normal feeling after awhile. Anyway, consider a whole foods diet and do lots of reading and ask questions. We are here to help and had lots of questions ourselves when starting out. Again, welcome! :)

Here are a few threads to get you started:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

What's For Breakfast Today?

http://www.celiac.co...180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

0

Share this post


Link to post
Share on other sites

I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

0

Share this post


Link to post
Share on other sites




I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Hi Victoria,

Did your doc do the celiac antibody panel for you? The antibodies are one of the 2 standard tests. An endoscopy can only see for about 5 feet of the small intestine, so if you had damage at 5 and 1/2 feet they wouldn't see it. The antibody tests are not 100% reliable just like the endoscopy isn't 100% reliable. But the antibody tests are a simple blood draw and they make sense to do. If you want to do them you need to keep eating gluten until the blood is drawn. Usually the celiac antibody tests are done first and then the endoscopy.

As far as time to heal goes, it varies a lot. Some start feeling better right away, others may take many months.

And welcome to the site! :)

0

Share this post


Link to post
Share on other sites

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

It is great that you had the test done as now you know what you are reacting to and what you cannot eat, many of us here have had to guess and figure things out thru trial and error. I am one of the many here who have had neurological issues, I do hope that you are getting good care from your physician. My nuero issues ahve definately improved but the progress has been very slow. I think for me, the biggest help is consistency with the diet. For me I got better to a point going gluten-free but after a year I was still having health issues and by brain was not thinking like I knew it should so I went grain free and it was the answer. A year ago I may have had a hard time going grain free but after a year gluten-free I found it quite simple to take out the other grains so keep that in mind if you find things don't clear up for you by taking gluten out of your diet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,665
    • Most Online
      3,093

    Newest Member
    tridoc927
    Joined