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Another Newbie
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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

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I don't even know how to respond to your post. It hurts my heart to imagine the situation you are in.

There are people here with multiple allergies who can provide information and support. Im still a newbie myself but have learned so much on this forum. I wish you all the luck in the world. And WELCOME 

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

I think the trick is finding the things you react to? It sounds like you're on top of it? Best wishes for much improved health!

Those gluten-free tags sure help narrow down the list of things we have to read the labels on? ;)

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Welcome to the site!

Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting point to improve things now! Getting used to the gluten-free diet may take a bit of effort but it gets to be normal feeling after awhile. Anyway, consider a whole foods diet and do lots of reading and ask questions. We are here to help and had lots of questions ourselves when starting out. Again, welcome! :)

Here are a few threads to get you started:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

What's For Breakfast Today?

http://www.celiac.co...180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

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I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Hi Victoria,

Did your doc do the celiac antibody panel for you? The antibodies are one of the 2 standard tests. An endoscopy can only see for about 5 feet of the small intestine, so if you had damage at 5 and 1/2 feet they wouldn't see it. The antibody tests are not 100% reliable just like the endoscopy isn't 100% reliable. But the antibody tests are a simple blood draw and they make sense to do. If you want to do them you need to keep eating gluten until the blood is drawn. Usually the celiac antibody tests are done first and then the endoscopy.

As far as time to heal goes, it varies a lot. Some start feeling better right away, others may take many months.

And welcome to the site! :)

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I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

It is great that you had the test done as now you know what you are reacting to and what you cannot eat, many of us here have had to guess and figure things out thru trial and error. I am one of the many here who have had neurological issues, I do hope that you are getting good care from your physician. My nuero issues ahve definately improved but the progress has been very slow. I think for me, the biggest help is consistency with the diet. For me I got better to a point going gluten-free but after a year I was still having health issues and by brain was not thinking like I knew it should so I went grain free and it was the answer. A year ago I may have had a hard time going grain free but after a year gluten-free I found it quite simple to take out the other grains so keep that in mind if you find things don't clear up for you by taking gluten out of your diet.

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    • So far I've had no problems with gluten-free Cherrios and I've been eating them since they started producing the gluten-free line. Generally I will have some reaction to gluten if there is contamination in the product I'm eating. But I'm sure someone has gotten a bad batch or is simply very sensitive to trace amounts of gluten. It's up to each individual to decide whether you want to chance trying them. The article mentioned by squirmingitch sheds light on the problem with anything listed as gluten-free. Contamination can occur at any point in the harvest or processing, and testing may miss it. I also eat Chex, Nature's Path cereals and have tried other brands w/o any problems. I do miss gluten-free Rice Krispies, they made for a nice addition to meat loaf, shame they discontinued the item.
    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
    • I won't say I will never eat out but I can't see me eating out for the foreseeable future. Even then, I will most likely only eat at a dedicated gluten free place. I am extremely sensitive to the tiniest amount of gluten and it's just not worth the risk to me. Eating out is playing Russian Roulette as far as I'm concerned and I'm not ready to play that game yet.
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