Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Another Newbie


42missy42

Recommended Posts

42missy42 Newbie

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustNana Apprentice

42

I don't even know how to respond to your post. It hurts my heart to imagine the situation you are in.

There are people here with multiple allergies who can provide information and support. Im still a newbie myself but have learned so much on this forum. I wish you all the luck in the world. And WELCOME 

Link to comment
Share on other sites
Bubba's Mom Enthusiast

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

I think the trick is finding the things you react to? It sounds like you're on top of it? Best wishes for much improved health!

Those gluten-free tags sure help narrow down the list of things we have to read the labels on? ;)

Link to comment
Share on other sites
GFinDC Veteran

Welcome to the site!

Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting point to improve things now! Getting used to the gluten-free diet may take a bit of effort but it gets to be normal feeling after awhile. Anyway, consider a whole foods diet and do lots of reading and ask questions. We are here to help and had lots of questions ourselves when starting out. Again, welcome! :)

Here are a few threads to get you started:

FAQ Celiac com

Open Original Shared Link

What's For Breakfast Today?

Open Original Shared Link

What Did You Have For Lunch Today?

Open Original Shared Link

What Are You Cooking Tonight?

Open Original Shared Link

Link to comment
Share on other sites
  • 2 weeks later...
VICTORIAARTIST Newbie

I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Link to comment
Share on other sites
GFinDC Veteran

I have colitis and finally had a small intestine biopsy for celiac disease. It was negative. My colitis is in remission and I am pain free, but not free of that awful diarrhea and constipation. I have been told it was IBS like half of the rest of the world. My doctor just suggested I may have a gluten sensitivity. I am 2 days gluten free and my diarrhea continues. I also am sensitive to dairy, and have to watch out for my colitis to rear its's ugly head. Anyone know how long it will take gluten free for my symptoms to subside? I would really appreciate anyone sharing their experience of their first 2 weeks gluten free. This is my first goal, one day at a time.

Hi Victoria,

Did your doc do the celiac antibody panel for you? The antibodies are one of the 2 standard tests. An endoscopy can only see for about 5 feet of the small intestine, so if you had damage at 5 and 1/2 feet they wouldn't see it. The antibody tests are not 100% reliable just like the endoscopy isn't 100% reliable. But the antibody tests are a simple blood draw and they make sense to do. If you want to do them you need to keep eating gluten until the blood is drawn. Usually the celiac antibody tests are done first and then the endoscopy.

As far as time to heal goes, it varies a lot. Some start feeling better right away, others may take many months.

And welcome to the site! :)

Link to comment
Share on other sites
AVR1962 Collaborator

I found out 4-5 days ago (through a rather expensive stool test) that I'm gluten, egg and chicken sensitive.

I found out a week or two ago that I'm anaphylactic towards apples, tomatoes and potatoes, and mildly allergic to oranges, peaches, bananas and lamb.

I've also been allergic to dairy and beef since birth. (A lot of allergies for a 20 yr old!)

I've struggled with IBS, CFS and depression for the last 4-5 years, and was not very surprised when the testing (included a gene test) results told us my sensitivities have some pretty serious neurological ramifications, which may (probably) just explain a lot of my general ill-health and mental health issues.

Suffice it to say I am now 4 or 5 days gluten free and quite happy to find these forums and learn from you longer-time GFD'ers.

Yesterday my sister, mom (who're helping me get my diet in order) and I went to the local Natures Fare market-They have green labels for everything gluten free! I was pleasantly surprised at how many green labels were on the shelf (of course I still have to read the ingredients for the other allergens, but that's much easier!)

It is great that you had the test done as now you know what you are reacting to and what you cannot eat, many of us here have had to guess and figure things out thru trial and error. I am one of the many here who have had neurological issues, I do hope that you are getting good care from your physician. My nuero issues ahve definately improved but the progress has been very slow. I think for me, the biggest help is consistency with the diet. For me I got better to a point going gluten-free but after a year I was still having health issues and by brain was not thinking like I knew it should so I went grain free and it was the answer. A year ago I may have had a hard time going grain free but after a year gluten-free I found it quite simple to take out the other grains so keep that in mind if you find things don't clear up for you by taking gluten out of your diet.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,053
    • Most Online (within 30 mins)
      7,748

    BethRhoda
    Newest Member
    BethRhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
    • Sobiha
      Yes, it could be. Anti histamines help with the symptoms but I don't really like to take them long term.  
    • Scott Adams
      There is a product call Quinoa Flakes that might be a good substitute for oats.
×
×
  • Create New...