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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed
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49 posts in this topic

I just got diagnosed with Celiacs yesterday. I am still feeling very overwhelmed by the whole thing. They called me at about 4:00 in the evening and said my EGD confirmed that I have Celiacs and that I need to be on a gluten free diet and am welcome to stop by the clinic to pick up information about the new diet. Well, I am a nurse at a hospital and have plenty of access to patient education. I had to go to work that night and did not have time to go to the grocery store and had no gluten-free options at the house. At work, the only gluten-free options in the cafeteria that I could find was a salad. I am also a full-time student working on getting my Master's and had to come home after work to study and do school work. Still, no time to go to the store yet. I feel like I don't have the time or money for this complete life-style change. I feel silly for being so upset about not getting to have gluten anymore, but I never realized how many of my favorite things have gluten (Mini-Wheat's cereal, cookies, brownies, blueberry scones, and so on). I also have read from sources that you should be dairy-free, at least in the beginning of the gluten-free diet? No more milk or cheese?! I guess I just wanted to vent...

Any tips on quick, easy meals and breakfast foods? What are easy foods to take to work? And how do you handle going to eat at other people's houses?

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Gee Eff has put the links for some food threads here lke what's for dinner:

I'll probably lose my Celiac membership card for saying this but - I didn't stop eating dairy. I didn't drink milk but I still ate cheese & yogurt. I tried not to just eat large amounts of cheese but a slice on my sandwich or some on my chili was fine. You can try it for a few weeks with dairy & see how it goes.

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Olivia,

Welcome. The people here understand how overwhelming it is when diagnosed with celiac (no s) disease. I'm just 8 weeks in. I'm still eating dairy. The only products I use that are special Gluten Free are Udis bread for toast in the morning, Crunchmasters crackers which are way better than Triscuits or Wheat Thins for dip and spreads and the rigatoni from Bionaturae that is great with my pasta sauce.

Go simple. Meat, poultry, fish, fruit, veggies, rice, potatoes, etc. And be patient with yourself. You are going to give yourself an online crash course and be an expert in a week!

What are your main symptoms?

The only other advice I have is get your thyroid tested. Celiac and Hashimoto's are connected. Have your vitamin levels checked. Malabsorption may have robbed you of Vitamin D, the B vitamins especially B12, folic acid, iron etc.

And keep coming here. This board has taught me more than every other source combined. The members are terrific. You will feel right at home! :-)

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Kareng,

LOL same here. But after researching I conclude that dairy is fine for some Celiacs. Lactose intolerance is an uncomfortable nuisance for most people, not a real health issue if you are cautious and not super sensitive. Yes, I know, some folks really suffer as they are quite ill from even small amounts. Not minimizing anyone's pain.

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Welcome to the Forum!

Don't think about what you cannot eat--think about what you can eat :) . Fresh meats, veggies, fruits, nuts, eggs, fish, etc.

Karen was lucky she could eat cheese, but yes, many of us had to give it up for a while at first.

I can give you some ideas that I wrote up for my family if you wish.

Get your printer ready! ;)

Dietary concerns

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I only had to lay off dairy for a couple weeks before I could tolerate it. Having said that; I have dh & then had to go off dairy b/c of the iodine content only. I'm back on iodine & do fine with dairy. Not so with soy. I have a feeling soy will be a no-no for me for life. Olivia, you may want to keep track of how soy affects you as many celiacs cannot tolerate soy.

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Kareng,

LOL same here. But after researching I conclude that dairy is fine for some Celiacs. Lactose intolerance is an uncomfortable nuisance for most people, not a real health issue if you are cautious and not super sensitive. Yes, I know, some folks really suffer as they are quite ill from even small amounts. Not minimizing anyone's pain.

Yes, it is true that dairy is fine for most celiacs when the villi regrow. but some can never tolerate it again. :( I hope I am not one of them. I continue to try dairy products and find they give me a little grief in large amounts.

Most celiacs come to the realization that it is best to give up dairy --just for the first few months-- because lactase is produced in the tips of the villi and if there is insufficient lactase, it is a real problem. The continuing digestive problems, diarrhea and bloating is more than a nuisance--it causes major pain, dehydration, loss of work, etc.-- and causes someone to think the gluten-free diet is "not working".

That is the number one concern on here from newbies, I think...why isn't this working? And all the veterans chime in "dump the dairy!" :lol:

(It has nothing to do with being super sensitive, it has to do with the lactase insufficiency.)

Lucky for you that you can tolerate it so soon after DX!

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Irish

*on my knees, much bowing and scraping*

I'm not worthy...

What an amazing, brilliant, generous post! You are a scholar and a gentleman, Sir.

I'll bet you just made Olivia's day. Pssst-Olivia (and saved your untold hours of on your own info gathering)

I am thrilled with the info regarding buckwheat cereal. I am ordering some today. And I would NEVER have though about Kozy Shack Rice PUDDING....WHOOPEE.

Thank you so much. (Ever seen an old lady do a happy dance?)

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I have a feeling soy will be a no-no for me for life.

Maybe not! Many secondary food intolerances clear up after being gluten-free for a while and healing the gut.

Never say never! (although soy is not the world's greatest food, but it is IN everything and makes it hard for those of us who have had to avoid it)

For instance, I eat mayo now and have no problem and I have had soy lecithin in vitamins without issue. I am in no hurry to eat tofu (blech) :lol:

I had an off- the -chart (severe)intolerance (IgG) to soybean in 2010. Now, it looks like maybe we can be friends. :lol:

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Irish

I didn't realize that the dairy issue could be so important for a newbie. I sure don't want to steer someone wrong. I know I am lucky.

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What an amazing, brilliant, generous post! You are a scholar and a gentleman, Sir.

Thank you so much. (Ever seen an old lady do a happy dance?)

Everytime I look at myself dancing in the mirror. :D

You're a newbie aren't ya? ;):lol: You do not know me yet...but

I am a chick, sweetie. A warrior princess.

I have posted this puppy a few times. I am thinking about putting a copyright on it. (kidding!) :lol:

Glad it helps!! Eat up, people!!

Cheers, IH

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Irish

I didn't realize that the dairy issue could be so important for a newbie. I sure don't want to steer someone wrong. I know I am lucky.

You didn't, hon!

There is no "one size fits all" with this thing. EVERYBODY is different.

If anyone can have dairy without issue, that's FANTASTIC!!

Pass the ice cream, Nana! :D

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Irish Warrior Princess

ROTFLMWBO. (wrinked)

Yes, I'm a newbie. I have a good feel for you as a person from reading lots of your posts. It's odd actually that I got the mistaken impression you were a dude! Shoulda known a wise woman voice when I heard it. It's always laced with wit and a wink. :-)

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Maybe not! Many secondary food intolerances clear up after being gluten-free for a while and healing the gut.

Never say never! (although soy is not the world's greatest food, but it is IN everything and makes it hard for those of us who have had to avoid it)

For instance, I eat mayo now and have no problem and I have had soy lecithin in vitamins without issue. I am in no hurry to eat tofu (blech) :lol:

I had an off- the -chart (severe)intolerance (IgG) to soybean in 2010. Now, it looks like maybe we can be friends. :lol:

Great to know IH! Thanks! Yes, I'm not a fan of soy anyway BUT it IS in everything. I do tolerate the little bit in my gluten-free mayo but am careful to be stingy when spreading it on. I'm a big mayo fan & it's been hard to control my desire to liberally douse the bread with mayo. Such a fan of mayo that I can (could) eat it with a spoon like other people eat peanut butter!

And I'm with nana bowing & scraping for the "list". Many of those things I have discovered but there are quite a few gems in that list I had not discovered yet. Thank YOU! I have saved it to my computer titled, "gluten-free - Everything you ever wanted to know".laugh.giflaugh.giflaugh.gif

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I Just want to say Coming from a Newbie- This is the most informative thread I have read on here.

Irish Heart - Thank you so much for taking the time to type all of your information up!! it is so helpful And I wish I would've had your info a few months ago when I started on this journey :)

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Wow thank y'all! This is very helpful! Thanks for such a detailed response, IrishHeart! I hope my grocery stores have all of the options y'all have mentioned. I have never really noticed the gluten-free products, but I have also never looked for them. I plan of staying away from dairy for now, at least until my follow-up appointment with my GI doctor in May. I am almost excited to start working on a grocery/meal list and go shopping (almost). Right now I am living off the eggs, meats, and veges we have at home. I am really hating our pantry that is so full of breads and cereals. I told my husband I was going to put some caution tape over the door ;). Thanks again for the help, I really needed to pull myself together and stop feeling sorry for myself!

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Great to know IH! Thanks! Yes, I'm not a fan of soy anyway BUT it IS in everything. I do tolerate the little bit in my gluten-free mayo but am careful to be stingy when spreading it on. I'm a big mayo fan & it's been hard to control my desire to liberally douse the bread with mayo. Such a fan of mayo that I can (could) eat it with a spoon like other people eat peanut butter!

Quick note on the soy in mayo...my mom found a Hellman's mayo that doesn't have soy for my daughter, it's made with canola oil and it tasted like the regular Hellman's.

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Quick note on the soy in mayo...my mom found a Hellman's mayo that doesn't have soy for my daughter, it's made with canola oil and it tasted like the regular Hellman's.

Ooooooooooo, To me, if it isn't Hellman's it isn't mayo.smile.gif Could you ask your mom which one it is please? I looked at all of them in the store the other day & couldn't find one w/o soy so maybe my store doesn't carry that particular one of Hellman's but if I know which one it is then I will find a store that carries it!

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"gluten-free - Everything you ever wanted to know".laugh.giflaugh.giflaugh.gif

Oh hon, it is not everything you want to know, :lol: but it is a start for some who are so scared and feeling lost. The links to the safe/unsafe foods and cross contamination issues /hidden gluten are ones I found the most important. I made a few rookie mistakes the few first months myself. :rolleyes:

For the real deal goodies, not boxed/packaged stuff, check out the recipe threads on here--these folks are amazing!

There is no need for any celiac to feel deprived on this diet.

Honestly, I have adapted all my recipes and I am a bit of a gourmet and do not find that gluten free means "Boring." Not at all.

The one thing I find difficult (and makes me frustrated and sad sometimes) is the loss of total spontaneity. We can't just eat any old place on the road, but everything can be worked around. It just takes planning.

;)

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Wow thank y'all! This is very helpful! Thanks for such a detailed response, IrishHeart! I hope my grocery stores have all of the options y'all have mentioned. I have never really noticed the gluten-free products, but I have also never looked for them. I plan of staying away from dairy for now, at least until my follow-up appointment with my GI doctor in May. I am almost excited to start working on a grocery/meal list and go shopping (almost). Right now I am living off the eggs, meats, and veges we have at home. I am really hating our pantry that is so full of breads and cereals. I told my husband I was going to put some caution tape over the door ;). Thanks again for the help, I really needed to pull myself together and stop feeling sorry for myself!

It's okay to mourn and feel sad, shocked and go through a whole gamut of emotions. But, please do not worry about eating.

We can help!

You're going to be okay! ;)

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I Just want to say Coming from a Newbie- This is the most informative thread I have read on here.

Irish Heart - Thank you so much for taking the time to type all of your information up!! it is so helpful And I wish I would've had your info a few months ago when I started on this journey :)

oh, sorry, hon! I have posted it from time to time to other threads started by Newbies. I wonder sometimes if it TMI?

I should probably put it somewhere on my profile page.

I wrote it up for my large extended family ---but no one seems to want it :unsure: and no one seems to think they need it.

(denial...not just a river in Egypt...) :lol:

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Squimingitch

LOL

We could start a fan club....but Irish would probably be mortified. I'm thinkin' that we can honor her and Skylark and ...so many others on here whose names I cant recall, by asking questions, doing independent research, sharing our findings and experiences and most of all my being supportive of other newbies.

I'm almost 2 mos into this thing, about 2 weeks on this site. How 'bout you? :-)

Uhhhh...skooch over, your bowing is upstaging my scraping!

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Alex, I have used the Beat Foods (Hellman's in the east). It's good! I love Mayo and ONLY Best Foods. (Hellman's where you live)

If it's not on your grocer's shelf, betcha could order it online!

Happy slathering. :-)

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Squimingitch

LOL

We could start a fan club....but Irish would probably be mortified. I'm thinkin' that we can honor her and Skylark and ...so many others on here whose names I cant recall, by asking questions, doing independent research, sharing our findings and experiences and most of all my being supportive of other newbies.

I'm almost 2 mos into this thing, about 2 weeks on this site. How 'bout you? :-)

Uhhhh...skooch over, your bowing is upstaging my scraping!

All right, knock it off, you two sillies! :lol: (mortified, hell no! I was more mortified you thought I was a dude.)

But, this is Olivia's thread.

Olivia--what else do you need? Squirmy and Nana are here to do your bidding. :) ... see how nicely they are bowing?

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