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Newly Diagnosed


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#16 OliviaB

 
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Posted 12 April 2012 - 04:48 PM

Wow thank y'all! This is very helpful! Thanks for such a detailed response, IrishHeart! I hope my grocery stores have all of the options y'all have mentioned. I have never really noticed the gluten-free products, but I have also never looked for them. I plan of staying away from dairy for now, at least until my follow-up appointment with my GI doctor in May. I am almost excited to start working on a grocery/meal list and go shopping (almost). Right now I am living off the eggs, meats, and veges we have at home. I am really hating our pantry that is so full of breads and cereals. I told my husband I was going to put some caution tape over the door ;). Thanks again for the help, I really needed to pull myself together and stop feeling sorry for myself!
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Colonoscopy and EGD with biopsies: 4/9/2012
Diagnosed with Celiac Disease: 4/11/2012
Gluten-Free since 4/11/2012

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#17 alex11602

 
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Posted 12 April 2012 - 04:54 PM

Great to know IH! Thanks! Yes, I'm not a fan of soy anyway BUT it IS in everything. I do tolerate the little bit in my gluten-free mayo but am careful to be stingy when spreading it on. I'm a big mayo fan & it's been hard to control my desire to liberally douse the bread with mayo. Such a fan of mayo that I can (could) eat it with a spoon like other people eat peanut butter!


Quick note on the soy in mayo...my mom found a Hellman's mayo that doesn't have soy for my daughter, it's made with canola oil and it tasted like the regular Hellman's.
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#18 squirmingitch

 
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Posted 12 April 2012 - 04:59 PM

Quick note on the soy in mayo...my mom found a Hellman's mayo that doesn't have soy for my daughter, it's made with canola oil and it tasted like the regular Hellman's.


Ooooooooooo, To me, if it isn't Hellman's it isn't mayo.Posted Image Could you ask your mom which one it is please? I looked at all of them in the store the other day & couldn't find one w/o soy so maybe my store doesn't carry that particular one of Hellman's but if I know which one it is then I will find a store that carries it!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#19 IrishHeart

 
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Posted 12 April 2012 - 05:03 PM

"gluten-free - Everything you ever wanted to know".Posted ImagePosted ImagePosted Image



Oh hon, it is not everything you want to know, :lol: but it is a start for some who are so scared and feeling lost. The links to the safe/unsafe foods and cross contamination issues /hidden gluten are ones I found the most important. I made a few rookie mistakes the few first months myself. :rolleyes:

For the real deal goodies, not boxed/packaged stuff, check out the recipe threads on here--these folks are amazing!

There is no need for any celiac to feel deprived on this diet.

Honestly, I have adapted all my recipes and I am a bit of a gourmet and do not find that gluten free means "Boring." Not at all.

The one thing I find difficult (and makes me frustrated and sad sometimes) is the loss of total spontaneity. We can't just eat any old place on the road, but everything can be worked around. It just takes planning.
;)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#20 IrishHeart

 
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Posted 12 April 2012 - 05:06 PM

Wow thank y'all! This is very helpful! Thanks for such a detailed response, IrishHeart! I hope my grocery stores have all of the options y'all have mentioned. I have never really noticed the gluten-free products, but I have also never looked for them. I plan of staying away from dairy for now, at least until my follow-up appointment with my GI doctor in May. I am almost excited to start working on a grocery/meal list and go shopping (almost). Right now I am living off the eggs, meats, and veges we have at home. I am really hating our pantry that is so full of breads and cereals. I told my husband I was going to put some caution tape over the door ;). Thanks again for the help, I really needed to pull myself together and stop feeling sorry for myself!


It's okay to mourn and feel sad, shocked and go through a whole gamut of emotions. But, please do not worry about eating.

We can help!

You're going to be okay! ;)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#21 IrishHeart

 
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Posted 12 April 2012 - 05:13 PM

I Just want to say Coming from a Newbie- This is the most informative thread I have read on here.
Irish Heart - Thank you so much for taking the time to type all of your information up!! it is so helpful And I wish I would've had your info a few months ago when I started on this journey :)




oh, sorry, hon! I have posted it from time to time to other threads started by Newbies. I wonder sometimes if it TMI?

I should probably put it somewhere on my profile page.

I wrote it up for my large extended family ---but no one seems to want it :unsure: and no one seems to think they need it.
(denial...not just a river in Egypt...) :lol:
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#22 JustNana

 
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Posted 12 April 2012 - 05:19 PM

Squimingitch

LOL

We could start a fan club....but Irish would probably be mortified. I'm thinkin' that we can honor her and Skylark and ...so many others on here whose names I cant recall, by asking questions, doing independent research, sharing our findings and experiences and most of all my being supportive of other newbies.

I'm almost 2 mos into this thing, about 2 weeks on this site. How 'bout you? :-)

Uhhhh...skooch over, your bowing is upstaging my scraping!
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#23 JustNana

 
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Posted 12 April 2012 - 05:27 PM

Alex, I have used the Beat Foods (Hellman's in the east). It's good! I love Mayo and ONLY Best Foods. (Hellman's where you live)

If it's not on your grocer's shelf, betcha could order it online!

Happy slathering. :-)
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#24 IrishHeart

 
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Posted 12 April 2012 - 05:27 PM

Squimingitch

LOL

We could start a fan club....but Irish would probably be mortified. I'm thinkin' that we can honor her and Skylark and ...so many others on here whose names I cant recall, by asking questions, doing independent research, sharing our findings and experiences and most of all my being supportive of other newbies.

I'm almost 2 mos into this thing, about 2 weeks on this site. How 'bout you? :-)

Uhhhh...skooch over, your bowing is upstaging my scraping!


All right, knock it off, you two sillies! :lol: (mortified, hell no! I was more mortified you thought I was a dude.)

But, this is Olivia's thread.

Olivia--what else do you need? Squirmy and Nana are here to do your bidding. :) ... see how nicely they are bowing?
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#25 JustNana

 
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Posted 12 April 2012 - 05:28 PM

It's called Best Foods Canola!
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#26 squirmingitch

 
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Posted 12 April 2012 - 05:29 PM

Squimingitch

LOL

We could start a fan club....but Irish would probably be mortified. I'm thinkin' that we can honor her and Skylark and ...so many others on here whose names I cant recall, by asking questions, doing independent research, sharing our findings and experiences and most of all my being supportive of other newbies.

I'm almost 2 mos into this thing, about 2 weeks on this site. How 'bout you? :-)

Uhhhh...skooch over, your bowing is upstaging my scraping!


LOL!Posted ImagePosted Image
Nana, I joined Nov. of 2011 & was gluten-free 10/11 or so I thought.Posted Image but the good people on here helped me out right from the beginning. I have learned MUCH. There is always more to learn though. Bits of wisdom here & there. I have dh (dermatitis herpitiformis; the skin manifestation of celiac) & I recently had a "meltdown?" of frustration. They jumped right in & gave me support & helped me to figure out the problem. I was essentially ODing (in a manner of speaking) on salicylates. Saved my sanity.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#27 JustNana

 
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Posted 12 April 2012 - 06:03 PM

Olivia

The old Irish chick is right.

Right now, what are you most apprehensive about? Do you think going gluten-free is going to be too hard? Are you afraid you'll give up all the things you love and not feel better? Are you concerned your family and friends are going to think you're weird?

All this and much more?

Go ahead, let it out. We're unshockable and non-judgmental.
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#28 OliviaB

 
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Posted 12 April 2012 - 06:11 PM

All right, knock it off, you two sillies! :lol: (mortified, hell no! I was more mortified you thought I was a dude.)

But, this is Olivia's thread.

Olivia--what else do you need? Squirmy and Nana are here to do your bidding. :) ... see how nicely they are bowing?



LoL Thanks. At the moment I don't really know what else I need. I'm sure I will have plenty of more specific questions later.
  • 0
Colonoscopy and EGD with biopsies: 4/9/2012
Diagnosed with Celiac Disease: 4/11/2012
Gluten-Free since 4/11/2012

#29 squirmingitch

 
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Posted 12 April 2012 - 06:13 PM

Olivia, it's pretty overwhelming at first. I think everyone experiences it. I certainly did. You can't imagine giving up your favorite foods. For me it was biscuits --- I have always made my own. And there were a number of other things. And I did miss biscuits like crazy at first. Already I don't even think about them. And you wonder what in the world you will eat. IrishHeart has given you a stellar list to start!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#30 JustNana

 
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Posted 12 April 2012 - 06:27 PM

squirmingitch

I have Dermatitis Herpetiformis too. And also very recently diagnosed Hashimoto's. (Autoimmune hypothyroidism) With a growth! Oh yippee. A biopsy was negative but it bears watching. I was put on the standard low dose T4 only Levolyx. This may be a battle. My FT3 is low TSH is high, I'm tired itchy, crabby, my eyebrows are falling out, my hips are killing me, I am %#! exhaustedand I want to kick a cat. And I have insomnia.

Aside from that, being gluten free (as well as a novice can be) for several weeks has provided some itch relief and completely cleared up any gastro symptoms, which were never my big issue.

I'm happy to meet you. How long have you had the DH stuff? Any improvement since going gluten-free?
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