Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac Means No Coffee?

moose07

By moose07
in Coping with Celiac Disease

Recommended Posts

moose07 Apprentice
moose07
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 79
  • Created
  • Last Reply
kareng Grand Master
kareng
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Link to comment
Share on other sites
Monklady123 Collaborator
Monklady123
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

Moose

Say what?

Monklady, I have written my will, gathered my kin and sharpened my hari-kari knife.

This will NOT stand.

Plus I ain't buyin' it. The whole gluten free community is so big now that we are a marketing force! (That's a good thing). If coffee had been discovered to be dangerous to celiacs it would make the 6:00 AND 11:00 news.

Let not your heart be troubled.

Link to comment
Share on other sites
psawyer Proficient
psawyer
Posted

If coffee had gluten I would have been dead years ago. :ph34r:

Even if it isn't "gluten," I consume enough of it that if it was problematic, I would certainly know by now. Enjoy your coffee!

Link to comment
Share on other sites
Bubba's Mom Enthusiast
Bubba's Mom
Posted

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

I'm with you! I can live without bread..but they better not try to take my morning coffee away. :angry::ph34r:

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

Hey Bubba's mom

How's it goin?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hey Bubba's mom

How's it goin?

Goin' good as long as they don't try prying my coffee cup out of my hand! LOL :D

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

I read that goofy blog.

Sorry, but when they start saying they know what causes MS...blah blah blah - my BSometer sounds an alarm.

Are these sincere but gullible people or just trolls?

Ugh

Link to comment
Share on other sites
OliviaB Newbie
OliviaB
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

Link to comment
Share on other sites
pricklypear1971 Community Regular
pricklypear1971
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

I suggest not taking gluten-free advice from the general public (this board is not the general public).

My FIL thought I potatoes had gluten in them, and cookies didn't....and some people think all cheese has gluten in it...

So, my point is, get used to heart attacks. And get used to hearing some incredibly stupid, uninformed stuff.

And get used to laughing at people who "would die if they couldn't eat bread". I mean seriously, it's funny. I tried the polite smile a few times, but now I just give in and laugh. Obviously, they don't get it. But you will, soon. And if you don't, yet, deliver a nice frozen loaf of gluten-free bread to one of those idiots and watch their face. And then ask them if they could give it up or die.

But I digress...

Link to comment
Share on other sites
larry mac Enthusiast
larry mac
Posted

The first thing I do in a case like this (outlandish claim) is see what they're selling. It doesn't take long. Sarah the healthy home economist is selling product links and advertising.

"Please contact Sarah at thehealthyhomeeconomist.com for a Media Kit.

Please Note: The Healthy Home Economist is part of the Real Food Media online magazine. We have paid sponsors. Unfortunately, this precludes us from doing unpaid promotions or reviews for free product."

Ie, she doesn't talk about anything she's not getting paid for.

The exciting and important news about a so-called coffee/gluten connection was revealed to her at a paleofx12 conference ( an alternative health and nutrition "disipline" based on evolutionary study (or somesuch) where she saw dr. david clark speak. He's not really a doctor, he's a chiropractor. Thus the titles of functional this and functional that in his bio. He's also selling stuff. Books and whatnot.

There's always people out there trying to make a living duping the gullible.

Try not to be the gullible!

best regards, lm

.

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

Olivia,

I swear the people on this site have heard and seen it all...ignorant public, thoughtless friends and family, even dumbazz doctors. They are skeptical but open minded. You are Sooooo lucky you found this forum. It is THE best forum I have ever read, bar none.

Link to comment
Share on other sites
dani nero Community Regular
dani nero
Posted

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

Link to comment
Share on other sites
lynnelise Apprentice
lynnelise
Posted

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Link to comment
Share on other sites
moose07 Apprentice
moose07
  • Author
Posted

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Sorry that I don't spend my entire life on this board. Did you actually read what I wrote? I was asking if anyone else had heard of this notion. I never said I believed it.

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

No need to apologize.

:-)

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

No need to apologize.

:-)

At least not on the OP's end.

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Hi Moose,

Please re-read the other thread and see what we all think of this "theory". :rolleyes:

Honestly, none of us see any reason why you should worry about coffee. Okee dokee?!

Best wishes,

IH

Link to comment
Share on other sites
JustNana Apprentice
JustNana
Posted

Moose

I have sent you a private message, but want to publically apologize to you for my rude behavior. I completely misread the intent behind your thread. I was disrespectful and totally out of line. I have fought a tendency to be mouthy and judgmental for years and as you see I am not always successful.

This was the worst place to exhibit that ugly trait and I am truly sorry.

Link to comment
Share on other sites
moose07 Apprentice
moose07
  • Author
Posted

JustNana,

Thanks for the apology.

Everyone else, thanks for the adivce. I'm glad other people on here are good at researching all this stuff.

Link to comment
Share on other sites
stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Link to comment
Share on other sites
Monklady123 Collaborator
Monklady123
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Well, I'm not a doctor, but I would say that probably you're getting the pains from the coffee itself -- i.e., the caffeine, or the acid, or whatever else is in coffee. Not from gluten, which is not in coffee. Lots of people who have "stomach trouble" (as the doctors like to call any number of things) cannot drink coffee.

My entirely unmedical opinion is that all sorts of things bother us while we're healing, and that it can take a long time. I was doing okay with milk, then got glutened (through my own stupidity), and then couldn't have cereal with milk for the next week or so.

Anyway, just my thoughts. :)

Link to comment
Share on other sites
cougie23 Explorer
cougie23
Posted

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together! Hell even shampoo isn't safe...I tryied NEXUS and had a HORRIBLE reaction...my son looked at the lable, and said...you know mom...this has wheat in it! GASP! :ph34r:

Just goes to show...READ THOSE LABLES!

( and contrary to befief...you don't HAVE to ingest the shampoo to react to it...I'm living proof!I got sick to my stomache,naushous,dizzy and my hair went limp and oily...not to mention my whole body was ITCHY!!!)But thats another thread! :ph34r::D

They BETTER NOT MESS WITH MY COFFEE!!! :DB)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    2. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    3. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    4. Smith-Ronald
      - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    5. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Lymph nodes

      By Smith-Ronald · Posted

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...