Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Dh & Probiotics - Sals Or Iodine


  • Please log in to reply

53 replies to this topic

#16 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 15 April 2012 - 12:56 PM

Fresh peeled pears are OK too. :)

Sue Dengate says amines are the slowest to clear, taking 3-4 weeks in some people. That's why the loooooong elimination.



I know--and I do have those on the list, I just failed to type the word "peeled", so I added that word.

I ate a LOT of those. :rolleyes:

I am not sure amines are Squrimy's problem? but she can try it.

None of us like these special diets, but I did it for a month and felt better. :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


Celiac.com Sponsor:

#17 Skylark

 
Skylark

    Glutenologist

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,490 posts
 

Posted 15 April 2012 - 01:17 PM

I felt better in some ways, worse in others. Lectins don't seem to be very good for me and I was eating a lot of beans, lentils, and permitted grains. On top of that, soy milk was the only "safe" milk I could find for my coffee and soy and cruciferous veggies (cabbage, brussels sprouts) are hard on thyroid patients. :lol: What a mess. I'm still getting over the hypothyroid fatigue.

My mind cleared incrementally but I think the Migrelief my Dr. started me on has more to do with it.
  • 0

#18 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 15 April 2012 - 01:22 PM

I felt better in some ways, worse in others. Lectins don't seem to be very good for me and I was eating a lot of beans, lentils, and permitted grains. On top of that, soy milk was the only "safe" milk I could find for my coffee and soy and cruciferous veggies (cabbage, brussels sprouts) are hard on thyroid patients. :lol: What a mess. I'm still getting over the hypothyroid fatigue.

My mind cleared incrementally but I think the Migrelief my Dr. started me on has more to do with it.


The Thyroid is a tricky organ. <_< I am delighted mine is "behaving" now. It was wonky for a long time.

I should clarify I did not really eat the beans (I was avoiding legumes) or lentils (I do not like lentils at all).

The list was more of a reference for her.

Soy is out for me so I just had NO milk at all....bummer. :(
IH does not like black coffee....bah!

It seems when we try to balance one thing, something else "pops up"...maddening, isn't it? :blink:
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#19 Skylark

 
Skylark

    Glutenologist

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,490 posts
 

Posted 15 April 2012 - 01:32 PM

It seems when we try to balance one thing, something else "pops up"...maddening, isn't it? :blink:

Yeah, I'm kind of over the specialty diet thing. I'm just avoiding the things I know get me. Migraine triggers and too many beans/grains. I'm kind of beat down because nothing is really working and I can't figure out why my good days are good or my bad days are bad. :(
  • 0

#20 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 15 April 2012 - 01:49 PM

Yeah, I'm kind of over the specialty diet thing. I'm just avoiding the things I know get me. Migraine triggers and too many beans/grains. I'm kind of beat down because nothing is really working and I can't figure out why my good days are good or my bad days are bad. :(



I hear you. I tried all kinds of elimination diets. Nothing in particular worked for long and I was miserable when I felt deprived.

I have one rule now:
If something makes me feel lousy, I don't eat it. :)

No rhyme or reason as to why I do well for a few days or so, then don't. Still have rotten joint/nerve/muscle pain and occasional migraines and histamine- type responses to God knows what food and everyone just says "Be patient." yeah, yeah....

Easy for them to say. :rolleyes:

I just focus on how far I have come. Keeps me from going utterly bonkers. :lol:
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#21 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts
 

Posted 16 April 2012 - 06:46 AM

Most excellent info. ALL of you & I greatly appreciate it! Call me hardheaded --- go ahead --- but I think I'm going the low sal first & then try the other special diets if I continue to have problems. BUT --- I found Chobani PLAIN yogurt today!!!!!!!!!!!!!!!!!!!!!!! YAY!!!!!!!!!!!Posted Image
I'm doing pretty good w/o the sals & I'm getting iodine now (enough but no ODing on it) so I'm going to run with this program for a while & see where it takes me. No itchies lately ---- 3-4 days now. I'm smiling!Posted ImagePosted ImagePosted Image

I know where to find those other diets if I need them though.Posted Image
  • 1

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#22 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 16 April 2012 - 12:27 PM

BUT --- I found Chobani PLAIN yogurt today!!!!!!!!!!!!!!!!!!!!!!! YAY!!!!!!!!!!!Posted Image
I'm doing pretty good w/o the sals & I'm getting iodine now (enough but no ODing on it) so I'm going to run with this program for a while & see where it takes me. No itchies lately ---- 3-4 days now. I'm smiling!



YYYYAAAAAAAAAAAAAAAAAYYYYYYYYYYY---I am doing the happy dance for you!!!!! ;) :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#23 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts
 

Posted 16 April 2012 - 12:41 PM

Woooooooo, I tried the plain Chobani & yeow! it's sour! Pucker up. I ought to put it on a baked potato & I think I will.Posted Image I did grab some vanilla flavored --- I can't find vanilla on any of the sals lists & I also grabbed a container of mango --- it's in the moderate range of sals.
Interesting that it says it has 2 times more protein than regular yogurts.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#24 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 16 April 2012 - 12:56 PM

Woooooooo, I tried the plain Chobani & yeow! it's sour! Pucker up. I ought to put it on a baked potato & I think I will.Posted Image I did grab some vanilla flavored --- I can't find vanilla on any of the sals lists & I also grabbed a container of mango --- it's in the moderate range of sals.
Interesting that it says it has 2 times more protein than regular yogurts.


Tart indeed! :P
I added a bit of stevia to it. Otherwise, it is just like sour cream to me. :lol: :lol: Good on taters!

Mango is one of my favorite fruits EVER. I ate so many of them in FLa last month (along with other sals )and I may have overloaded my system. When I get glutened ---or overdo the sals, etc.-- I BURN in my skin. From head to toe--a deep radiating burning sensation no one could explain to me. (until my DX) It's horrible.

You guys get itchy and scabby. I get itchy and oozey little sores on my scalp and this insanely intense burning in my skin --so bad I could not wear clothing at times. It made my life living hell. I had it for nearly 4 years until it subsided. I asked the doc about this and he said it is just like a pre-cursor to the blistering. The derma layers are affected, but I do not erupt. I hate the burning....ARRGH!!

So, I feel for you guys with DH; I really do. :(

BTW

I think you may notice....the sals websites are never the same :rolleyes: in their lists of high-low foods.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#25 Skylark

 
Skylark

    Glutenologist

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,490 posts
 

Posted 16 April 2012 - 01:00 PM

Woooooooo, I tried the plain Chobani & yeow! it's sour! Pucker up. I ought to put it on a baked potato & I think I will.Posted Image I did grab some vanilla flavored --- I can't find vanilla on any of the sals lists & I also grabbed a container of mango --- it's in the moderate range of sals.
Interesting that it says it has 2 times more protein than regular yogurts.

Glad you found some yogurt that will work! For what it's worth, Failsafe diet allows vanilla flavor. It also allows natural maple syrup. I bet that would take the edge off plain yogurt. I like plain Fage better than Chobani. Grab it if you ever see it becasue it's really mild and good.
  • 0

#26 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts
 

Posted 16 April 2012 - 02:42 PM

Tart indeed! :P
I added a bit of stevia to it. Otherwise, it is just like sour cream to me. :lol: :lol: Good on taters!

Mango is one of my favorite fruits EVER. I ate so many of them in FLa last month (along with other sals )and I may have overloaded my system. When I get glutened ---or overdo the sals, etc.-- I BURN in my skin. From head to toe--a deep radiating burning sensation no one could explain to me. (until my DX) It's horrible.

You guys get itchy and scabby. I get itchy and oozey little sores on my scalp and this insanely intense burning in my skin --so bad I could not wear clothing at times. It made my life living hell. I had it for nearly 4 years until it subsided. I asked the doc about this and he said it is just like a pre-cursor to the blistering. The derma layers are affected, but I do not erupt. I hate the burning....ARRGH!!

So, I feel for you guys with DH; I really do. :(

BTW

I think you may notice....the sals websites are never the same :rolleyes: in their lists of high-low foods.


YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#27 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts
 

Posted 16 April 2012 - 02:46 PM

Glad you found some yogurt that will work! For what it's worth, Failsafe diet allows vanilla flavor. It also allows natural maple syrup. I bet that would take the edge off plain yogurt. I like plain Fage better than Chobani. Grab it if you ever see it becasue it's really mild and good.


Looks like I'll be eating a lot of vanilla yogurt then. Thanks! I've never cared for maple --- I know -- weird --- but I may just have to learn to like it. You know, I was so excited to find the Chobani that I didn't even look any farther. I will look & see if I can find Fage. Thanks Skylark.



  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#28 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 16 April 2012 - 03:20 PM

YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.


The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#29 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,341 posts
 

Posted 16 April 2012 - 04:14 PM

The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)


What an appropriate term "Victory Vacation". Brings tears to my eyes.



  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#30 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 17 April 2012 - 05:38 AM

What an appropriate term "Victory Vacation". Brings tears to my eyes.


Yeah, we cried, too--for joy...as I walked on the beach. At one point, I could not walk the length of my driveway or get in/out of the shower without assistance. I had such extreme exhaustion from anemia, shortness of breath, vertigo, ataxia and horrid joint, nerve and muscle pain from loss of muscle mass. I was told to get a scooter, take medications, live with it. I refused. I knew there had to be an answer for the dozens of symptoms that had evolved.

Never say die, squirmy girl! ;)

Healing happens.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: