Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newbie!
0

10 posts in this topic

So I was recently diagnosed...like Tuesday of this week through bloodwork. Just started gluten free on Wednesday. I've read about sooooooo many things I didn't realize on this forum and am very appreciative to everyone who takes time to post a question or an answer as I'm sure there are many others (like me) who have the same question. I'm excited to start feeling better after YEARS of issues that were all being treated separatly and turn out to be mostly stemming from Celiacs. I figured I'd say hi and thanks to all who post!

0

Share this post


Link to post
Share on other sites


WELCOME ChuGotItDood 

You are ver resourceful to have this board so soon. Its wonderful! I've been here for 13 days and am grateful for every one of them.

So, 3 days gluten free, huh? Good for you. Are you totally confused, worried, sad? Or thrilled to pieces to learn of a disease with all those diverse symptoms that you've been suffering from? Probably both.

I can already tell you are going to do well. You have an excellent attitude and seem pragmatic. In other words a terrific addition to the forum. Do not hesitate to ask questions no matter how silly they seem to you. Also feel free to rant, vent and complain. There are lots of extremely knowledgeable and empathetic people here to help you.

Best of luck on your journey!

0

Share this post


Link to post
Share on other sites

Well Thanks! I'm happy to know that I'm not breaking piece by piece and it's all related and how to fix it, but I'm not happy about how I fix it. I love bread. =( I'm only really upset tho that my 5 yr anniversary at work is in a couple weeks. I was supposed to have a vanilla cake with whipped cream icing. Now my boss is going to get a gluten and lactose free cake tho. I'm lucky to have understanding friends and coworkers! Even after 3 days of going gluten free I can tell its going to be a change for the better! =D

0

Share this post


Link to post
Share on other sites

So I was recently diagnosed...like Tuesday of this week through bloodwork. Just started gluten free on Wednesday. I've read about sooooooo many things I didn't realize on this forum and am very appreciative to everyone who takes time to post a question or an answer as I'm sure there are many others (like me) who have the same question. I'm excited to start feeling better after YEARS of issues that were all being treated separatly and turn out to be mostly stemming from Celiacs. I figured I'd say hi and thanks to all who post!

Hello and welcome! Be sure to read around the board a bit. There's tons of useful info that you won't find all in one place anywhere else...and it's posted with a smile! :D

e sure to ask any questions that come up.

0

Share this post


Link to post
Share on other sites

Welcome Suzy!

It's great to know who to feel better eh? Don't be disappointed to much if it is a bit of a rocky orad to start out. It can take several months to get used to the diet and eliminate the hidden gluten they put in things. Some people also have withdrawal symptoms for a bit, and some people have stronger reactions to gluten after being off it for a while.

You might want to try limiting dairy, sugar and ,carbs, in your diet for now. and adding some probotics and digestive enzymes too.

Here are a few threads to get you started:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

What's For Breakfast Today?

http://www.celiac.co...180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

0

Share this post


Link to post
Share on other sites

Maybe this thread can offer some suggestions?

Welcome to the Forum! :)

0

Share this post


Link to post
Share on other sites

Newbie here as well. celiac free since March 19 2012 and have seen great improvements in that short period of time. Doing without wheat I thought would be a problem for me, but eating wheat and poisoning my body is so much worse!I am also soy intolerant and a diabetic. That really puts a lot of limits on what you can eat. I try to eat natural foods. No worries about what secret ingredients they might contain,

0

Share this post


Link to post
Share on other sites

celiac free since March 19 2012

Doing without wheat I thought would be a problem for me, but eating wheat and poisoning my body is so much worse!

Hi mamajchis,

I think you may have meant to say gluten free?( If you were celiac- free you wouldn't want to be hanging around with us. :) )

There is more to being gluten free than just avoiding wheat. Gluten is also in rye, barley and cross-contaminated oats.

Cheers,

IH

0

Share this post


Link to post
Share on other sites

Keep that positive attitude as it will pay off huge! knowing that you can be feel "normal" and healthy again by diet alone will make it easy(no pills and side effects). Having understanding and supportive people around you is even better.

Make sure to utilize the knowledgeable folks and information on this forum. They are awesome! Good luck!

0

Share this post


Link to post
Share on other sites

Yes! Welcome! I have twin daughters with Celiac...we now celebrate by making ice cream cakes! I take a springform pan and we crumble yummy gluten-free cookies for the bottom layer, then add a layer of ice cream (usually lactose free vanilla), smear on a layer of chocolate fudge sauce, then add another layer of ice cream. The girls love decorating the top. We stick it in the freezer for a few hours or overnight...Everyone loves our gluten free ice cream cakes!

and @ Minnesota Celiac--where is that climb? We just returned from climbing in Joshua Tree.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,691
    • Total Posts
      914,445
  • Topics

  • Posts

    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
    • 3 months gluten-free still feeling cramps
      First of all, your doctor does not seem to be celiac savvy.  It is so easy for a GI doctor to miss patches of intestinal damage on an endoscopy because the small intestinal wall, if spread out is the size of a tennis court!   How many samples were taken and submitted to a pathologist?  A visual look from the GI often results in nothing!  For example, my endoscopy visual was recorded as normal.  But my biopsies revealed moderate to severe intestinal villi damage (Marsh Stage IIIB).  GI's are supposed to take four to six tissue samples.  I would suggest getting copies of all your lab/procedure reports.  Don't trust me.  Here's the research: http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ http://www.cureceliacdisease.org/living-with-celiac/guide/diagnosis Next, three months of eating gluten free is not very long.  The reality is that there is a steep learning curve to going gluten free.  You can get "glutened" by kissing someone who just consumed gluten.  You can get it from a shared toaster, coated frying pan, wooden spoon, etc.  Gluten can be hidden in prescription medications, etc.  Do you EVER eat out?   I can tell you that it took me a year to feel pretty good and another to feel really normal!  My learning curve was not so steep since my hubby had been gluten-free for 12 years prior to my diagnosis, so I knew the drill.   You could have something else besides celiac disease.  Like SIBO, Crohn's, etc.  You might consider going back to your GI for another celiac antibodies test to see if you are diet compliant  before looking into other illnesses.   You could have developed intolerances (lactose is a huge one).  These can be identified by keeping a food diary.  They develop because your gut has been damaged (or is continuing to be damaged by gluten).  You might consider digestive enzymes (use certified gluten-free ones) and stick to whole well-cooked foods (including fruit) for a month or so.  I can tell you that I could not eat eggs for years.  Now I eat them daily.  Same for hard-to-digest things like nuts and crunchy fresh veggies!   Check out our Newbie 101 section pinned under the "Coping" section of this forum.  Review it to be sure you really are gluten free.  Then give yourself some time to heal.   I hope you feel better soon! 
    • High-Protein Plant-Based Foods
      The top 8 food allergies in Canada are eggs, milk, peanuts, tree nuts, seafood, sesame, soy and wheat. If you have a food allergy and feel limited by it, it's a good idea to explore plant-based options. Plants offer so many benefits—they alkalize your body, reduce inflammation, beef up your vitamin, mineral, phytonutrient, antioxidant and fiber intake, and much more! View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,729
    • Most Online
      1,763

    Newest Member
    Churpy
    Joined