Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Possible Trip To London
0

6 posts in this topic

So, since the Polish doctors are rather stumped by my case of abdominal pain at the moment (actually they've been stumped for almost a year!) there is talk of sending me to London to see some specialists there (including getting a HIDA scan since it seems that "no one does those anymore in Krakow...we use MRIs" and I have a severe claustrophobia issue not to mention surgical staples that they weren't sure would be good for going in the machine.)

I'm wondering if it would be better to stay in a hotel (having to eat out) or a short-term apartment. How's the general awareness of gluten-free eating in London? Am I better off preparing my own meals? I know it would be cheaper, right?

Any opinions? Anyone living in London now? Visited recently?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (http://www.italiancotto.co.uk/) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

0

Share this post


Link to post
Share on other sites

p.s. Preparing your own food would definitely be cheaper - London is horribly expensive, sadly. Also, if you join the Leon and La Tasca mailing lists just before your visit, they may send you discount vouchers :)

0

Share this post


Link to post
Share on other sites

Wow, India, thanks so much. This is very helpful!

0

Share this post


Link to post
Share on other sites

Wow, India, thanks so much. This is very helpful!

I'll add my 2 cents worth.....London is pretty good with gluten-free and I would highly recommend a flat rental because you'll also have more room for the same price as a hotel. There is a phenomenal Whole Foods Market in Kensington, a couple of blocks from the Kensington High St. tube station that has tons of gluten-free foods and about the best selection of veggies and meats in central London. I'm not saying it's cheap but you'll have no trouble finding whatever you need there.

For restaurants, I like Cafe Rouge because they have done a super job with me and I have eaten there at least 6 times on various trips to London. Good French peasant food done simply and well. It's a chain and there are a few sprinkled around the city. For a chain, they are excellent.

As for Cotto.....they are on South Bank side of the Thames and I feel kind of guilty saying this because they were super nice people but.....the food is overpriced and, quite frankly, not as good as what I have made at home. It's run by first generation Italians and yes, they have all the Italian foods everyone loves but I was not crazy about their red sauce and the pizza is very, very pricey. Not worth it in my opinion. We spent almost $100.00 on a meal there and we each got a dish (2 of us) and I ordered a take away pizza to take back to our flat. We also had 1 drink each. Between the price of the food and service charges and tips, it was too expensive.

London is very expensive anyway and it annoys me to pay all the service fees and taxes they are charged in the UK. I am sure rents are astronomical in London, which is reflected in their pricing also. We heard rave reviews about the place and the owners were sweethearts but for what we paid, the food was just not up to snuff. I hate dissing a gluten-free eatery but I am being truthful.

It would be better for you to rent because breakfast can be eaten in to save money. You can also cook dinner in and eat out as a treat. That's what I do. But as far as people looking at you like you have 3 heads when you mention Celiac, it didn't happen and I have traveled there 3 times since diagnosis. Never had a problem at the vast majority of places I walked into.

Good luck with any testing and I hope your issues are resolved soon! Try to enjoy yourself a bit in London because it is a fantastic city, rich in history. I love it there...I just wish it weren't so expensive!

0

Share this post


Link to post
Share on other sites




Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (http://www.italiancotto.co.uk/) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

I have never heard of Leon, India, but thank you for this tip! I'll add it to my list.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,646
    • Total Posts
      921,590
  • Topics

  • Posts

    • Previous studies have indicated an increase in celiac disease rates in the United States, but these studies have been done on narrow populations, and did not produce results that are nationally representative. View the full article
    • No worries!!! 

      Yes I've been completely gluten free for over a year now, except when I get glutened from restaurants etc. My 'traces symptoms' have always been major bloating and lots of bathroom breaks but now during my gluten challenge so far I've had some super crazy symptoms... varying from loose stools to severe constipation, bloating 24/7, shortness of breath, rash, joint pains, mood swings, brain fog, headaches and some sharp pains similar to brain freeze but worse... the list goes on, but I'm determined to have a definite result! 
    • Ennis_TX - Your post rings true with me. I was only diagnosed in May, but from May through.... basically two weeks ago, I was out of my mind. I completely understand when you describe it. I had zero self control. I retired from the Army after 21 years and had always had pride in myself that I could handle just about anything thrown my way. That was until this disease. I found myself sobbing uncontrollably, not getting out of bed till late afternoon, hiding in the bedroom from my own family, missing work, not being able to make simple decisions, I was getting at most, 3 hours of sleep a night. I would sit up in bed and literally scream out loud in frustration. I asked my wife several times to bring me to the VA Psyc. ward (which she talked me out of). I had no pleasure or happiness in my life even though I have a very supportive wife of 32 years, and two ideal kids with three grandkids. I had NO reason to feel the way I did, but yet, there I was. And like you mentioned, I too had a "Bucket List" per say.  To top it all off, I had this horrible muscle pain in my legs and arms. Joints a little, but the muscles were in constant pain. One month ago they diagnosed me with Fibromyalgia. At this point I am not willing to accept that diagnosis.  They started me on Gabapentin and these last two weeks I have actually started feeling less pain in the muscles and my mind is bouncing back too. Although the muscle pain came back a bit Sunday, and has me a little concerned. I keep telling myself it has only been 4 months gluten-free, and that it will take time. But I have to admit, I do not have much patience and I want to start feeling better now.   I ran into an old Army friend a few weeks back, and he had been diagnosed in 2009. He told me everything he went through and other than diarrhea and an inflamed throat, his biggest symptoms were depression/anxiety and brain fog. He said his wife was so worried she sold all of his guns. He would sometimes find himself in the backyard just curled up in the grass wondering when it would end for him. Absolute craziness. When I shared the issues I was having he could relate 100%. He said he hasn't met anyone else that went through the same things as him and it was therapeutic for us both. He told me of some places that were Celiac friendly, and we agreed to let each other know when something new hits the market, or any other good news via text. Back in May I searched for a celiac support group near by, but no luck. I stumbled on this forum and it has helped me tremendously. Stories like yours helped to insure me I was not losing my mind. Which, I might add, I told many VA & civilian Psychiatrists that indeed I was. Thanks for your post, and I hope nothing but the best for you, here forward. Dharwood
    • It is enough for the endoscopy, but not for the blood panel.  It could be worth trying for the blood test, but there is a greater chance of it being negative.  I assume you have been gluten-free for a while.  I admire that you were able to do the gluten challenge!  (I guess I should have pulled up your previous posts, but I was busy getting my kid to school.)
    • The doctor suspected celiac specifically, and he said 3-4 weeks would be enough... I understand that there are multiple recommendations varying from 3 weeks to 3 months but from what I've read I think 4 weeks will most probably not be enough for a positive result in the case that I am celiac. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined