Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help! Dont Understand This!
0

7 posts in this topic

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

It's hard to know what shape your intestines were in if you weren't scoped before going gluten-free? If you have flattening of the villi, they won't absorb what you eat.. and you lose weight. It's possible you aren't eating as many carbs too? It takes a while to heal and absorb what you consume.

When in the healing phase I recommend smaller amounts of food..but eat more often. It doesn't strain your digestive system.

If you eat before bed you might get acid reflux? It's best to have your evening snacks an or two before bedtime.

0

Share this post


Link to post
Share on other sites

It's hard to know what shape your intestines were in if you weren't scoped before going gluten-free? If you have flattening of the villi, they won't absorb what you eat.. and you lose weight. It's possible you aren't eating as many carbs too? It takes a while to heal and absorb what you consume.

When in the healing phase I recommend smaller amounts of food..but eat more often. It doesn't strain your digestive system.

If you eat before bed you might get acid reflux? It's best to have your evening snacks an or two before bedtime.

thanks! do you know if most people's villi usually heal naturally on their own? would a doctor give anything to help them heal?

i wasnt scoped before going gluten free...i started with the nutrition side of it and started eating gluten free... immediately i felt better and have continue to eat gluten free for four months... so I wont be able to know how my intestines were beforehand...

0

Share this post


Link to post
Share on other sites

thanks! do you know if most people's villi usually heal naturally on their own? would a doctor give anything to help them heal?

i wasnt scoped before going gluten free...i started with the nutrition side of it and started eating gluten free... immediately i felt better and have continue to eat gluten free for four months... so I wont be able to know how my intestines were beforehand...

Villi heal on their own when the gluten is eliminated from the diet, in the case of celiac disease. There is no other treatment or medicine.

Do you have Celiac?

An endoscopy does not "see" villous atrophy. A biopsy is done to assess villous atrophy.

Because you have been gluten-free for four months, a biopsy for diagnosing celiac disease at this point will render invalid results.

The GI doctor can explain more of this to you.

0

Share this post


Link to post
Share on other sites

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

Michelle...I was always the skinny Celiac and ended up weighing 97 pounds at diagnosis. It was 6 months before I started to gain any weight at all. However, I have topped out at 110-112 and have not been able to gain any more weight but here's why.....I eat a mainly whole foods diet and you don't gain a whole lot of weight eating fruits, veggies and protein. The carbs are what make people gain. I also exercise hard, at the gym with a trainer, twice a week and the rest of the time I rarely am sitting. I am always on the go.

For food, I eat 3 squares a day and 3 snacks. I eat right before going to bed. Eating healthy, more often, will boost metabolism. It's when you go longer between meals that it slows metabolism down. I also weight train and that is a real calorie burner. I kind of like the fact that I can eat whatever I want and not worry about too much weight gain. I noticed that once I started becoming very active again, I needed to eat more.

I don't know how active you are but 4 months on the gluten-free diet is not long enough because you aren't going to be healed in such a short span of time. I would try and eat more gluten-free bread because that stuff is fattening and will help. Peanut butter, dried fruit or any other calorie dense foods will help. If you can tolerate dairy,

try milkshakes. I make protein shakes with almond milk and they are very filling.

It may take awhile but all of a sudden, you'll start to gain. Just go for the calorie dense stuff and eat whenever you like! :D

0

Share this post


Link to post
Share on other sites




Michelle...I was always the skinny Celiac and ended up weighing 97 pounds at diagnosis. It was 6 months before I started to gain any weight at all. However, I have topped out at 110-112 and have not been able to gain any more weight but here's why.....I eat a mainly whole foods diet and you don't gain a whole lot of weight eating fruits, veggies and protein. The carbs are what make people gain. I also exercise hard, at the gym with a trainer, twice a week and the rest of the time I rarely am sitting. I am always on the go.

For food, I eat 3 squares a day and 3 snacks. I eat right before going to bed. Eating healthy, more often, will boost metabolism. It's when you go longer between meals that it slows metabolism down. I also weight train and that is a real calorie burner. I kind of like the fact that I can eat whatever I want and not worry about too much weight gain. I noticed that once I started becoming very active again, I needed to eat more.

I don't know how active you are but 4 months on the gluten-free diet is not long enough because you aren't going to be healed in such a short span of time. I would try and eat more gluten-free bread because that stuff is fattening and will help. Peanut butter, dried fruit or any other calorie dense foods will help. If you can tolerate dairy,

try milkshakes. I make protein shakes with almond milk and they are very filling.

It may take awhile but all of a sudden, you'll start to gain. Just go for the calorie dense stuff and eat whenever you like! :D

thanks!! ahh i really want milkshakes..but I am still somewhat sensitive so I am laying off the dairy...maybe one once in a while I might try....and i was also thinking of trying gluten free protein shakes..i guess kinda similar to the milkshakes idea...they have a bunch of calories....

i just want to make sure that everything is going well on the inside of my body...because I was doing good the first two months..and then all of sudden starting dropping weight the last two....

0

Share this post


Link to post
Share on other sites

thanks!! ahh i really want milkshakes..but I am still somewhat sensitive so I am laying off the dairy...maybe one once in a while I might try....and i was also thinking of trying gluten free protein shakes..i guess kinda similar to the milkshakes idea...they have a bunch of calories....

i just want to make sure that everything is going well on the inside of my body...because I was doing good the first two months..and then all of sudden starting dropping weight the last two....

Michelle, thank you for your post because seriously, this is my life right now. I've been diagnosed celiac for 11 months now. 9 of those eleven months I maintained my weight perfectly fine--although I should say I think I was eating more than my usual amount. I was severely anemic before diagnosis and probably really malnourished and so when I first was diagnosed and went gluten free, I was suddenly hungry ALL the time. I probably ate twice as much as I usually do, plus cookies and ice cream, and didn't gain an ounce but didn't lose it either.

Now, suddenly from March to April I lost 8 pounds. I have NO idea how it happened, I don't exercise, and was pretty freaked out about it because as with you I am not big to begin with. I was 118 to 120 before and now I am 111-ish. It really upsets me. I went out and bought ice cream and chocolate bars, and I try to eat at least one sugar a day, but unfortunately (or not) all the rest of my food is SUPER healthy. I don't know about you, but I've noticed most Gluten Free food to be very low fat. So it's high fiber cereal for breakfast, a sandwhich for lunch and stirfry for dinner, plus yogurt and nuts to snack on. I keep telling myself "you will not be able to gain weight eating edame beans and yogurt!" but it's hard for me to know how to supplement by diet with higher fat foods. I hate being this thin though. I recently talked to my doctor about this, and he said I'm still in the safe zone in terms of weight so he's not too worried, but if I really wanted, I could try drinking 'an instant breakfast' shake on top of my 3 meals a day. It's an extra 300 calories per meal. Hopefully it will work! Dr also said don't weigh yourself every day because that will stress you out. Good luck gaining weight!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,568
  • Topics

  • Posts

    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50 to be optimal, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low. Edit: Also my blood pressure was low when my ferritin level got very low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,648
    • Most Online
      3,093

    Newest Member
    Mileenabug
    Joined