Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help! Dont Understand This!
0

7 posts in this topic

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

It's hard to know what shape your intestines were in if you weren't scoped before going gluten-free? If you have flattening of the villi, they won't absorb what you eat.. and you lose weight. It's possible you aren't eating as many carbs too? It takes a while to heal and absorb what you consume.

When in the healing phase I recommend smaller amounts of food..but eat more often. It doesn't strain your digestive system.

If you eat before bed you might get acid reflux? It's best to have your evening snacks an or two before bedtime.

0

Share this post


Link to post
Share on other sites

It's hard to know what shape your intestines were in if you weren't scoped before going gluten-free? If you have flattening of the villi, they won't absorb what you eat.. and you lose weight. It's possible you aren't eating as many carbs too? It takes a while to heal and absorb what you consume.

When in the healing phase I recommend smaller amounts of food..but eat more often. It doesn't strain your digestive system.

If you eat before bed you might get acid reflux? It's best to have your evening snacks an or two before bedtime.

thanks! do you know if most people's villi usually heal naturally on their own? would a doctor give anything to help them heal?

i wasnt scoped before going gluten free...i started with the nutrition side of it and started eating gluten free... immediately i felt better and have continue to eat gluten free for four months... so I wont be able to know how my intestines were beforehand...

0

Share this post


Link to post
Share on other sites

thanks! do you know if most people's villi usually heal naturally on their own? would a doctor give anything to help them heal?

i wasnt scoped before going gluten free...i started with the nutrition side of it and started eating gluten free... immediately i felt better and have continue to eat gluten free for four months... so I wont be able to know how my intestines were beforehand...

Villi heal on their own when the gluten is eliminated from the diet, in the case of celiac disease. There is no other treatment or medicine.

Do you have Celiac?

An endoscopy does not "see" villous atrophy. A biopsy is done to assess villous atrophy.

Because you have been gluten-free for four months, a biopsy for diagnosing celiac disease at this point will render invalid results.

The GI doctor can explain more of this to you.

0

Share this post


Link to post
Share on other sites

I am naturally thin to begin with and have always wanted to gain weight...so when I found out I had to go gluten free...I figured I would gain weight..since I would be properly absorbing food and not eating things I was allergic to. But, the opposite has happened and i have lost weight..HOW??? i dont understand. I am eating healthy foods (because I have to) constantly...I dont understand why I wouldnt be gaining weight..at least a little.

Has anyone had this happened when they went Gluten-Free? I started in January this year...was about 115...now I am down 5-10 pounds...How was I not losing weight when I was eating all the foods I was allergic to, but now that I am eating foods good for body...im losing weight??? doesnt make sense.

I've been going to a nutritionist..but clearly that isn't working..so I am going to GI doctor soon to get things inside checked out...

-In the meantime...do you think it would be better to eat 3 big meals a day rather than many small ones...ive ususally just been eating breakfast, lunch, and dinner in good size portions..would that slow my metabolism?

and do you think I should eat before bed..would that help?? any advice in the meantime (before I see a doc within the next couple of weeks) would be awesome!

thanks!!! i hate gluten!!!

Michelle...I was always the skinny Celiac and ended up weighing 97 pounds at diagnosis. It was 6 months before I started to gain any weight at all. However, I have topped out at 110-112 and have not been able to gain any more weight but here's why.....I eat a mainly whole foods diet and you don't gain a whole lot of weight eating fruits, veggies and protein. The carbs are what make people gain. I also exercise hard, at the gym with a trainer, twice a week and the rest of the time I rarely am sitting. I am always on the go.

For food, I eat 3 squares a day and 3 snacks. I eat right before going to bed. Eating healthy, more often, will boost metabolism. It's when you go longer between meals that it slows metabolism down. I also weight train and that is a real calorie burner. I kind of like the fact that I can eat whatever I want and not worry about too much weight gain. I noticed that once I started becoming very active again, I needed to eat more.

I don't know how active you are but 4 months on the gluten-free diet is not long enough because you aren't going to be healed in such a short span of time. I would try and eat more gluten-free bread because that stuff is fattening and will help. Peanut butter, dried fruit or any other calorie dense foods will help. If you can tolerate dairy,

try milkshakes. I make protein shakes with almond milk and they are very filling.

It may take awhile but all of a sudden, you'll start to gain. Just go for the calorie dense stuff and eat whenever you like! :D

0

Share this post


Link to post
Share on other sites




Michelle...I was always the skinny Celiac and ended up weighing 97 pounds at diagnosis. It was 6 months before I started to gain any weight at all. However, I have topped out at 110-112 and have not been able to gain any more weight but here's why.....I eat a mainly whole foods diet and you don't gain a whole lot of weight eating fruits, veggies and protein. The carbs are what make people gain. I also exercise hard, at the gym with a trainer, twice a week and the rest of the time I rarely am sitting. I am always on the go.

For food, I eat 3 squares a day and 3 snacks. I eat right before going to bed. Eating healthy, more often, will boost metabolism. It's when you go longer between meals that it slows metabolism down. I also weight train and that is a real calorie burner. I kind of like the fact that I can eat whatever I want and not worry about too much weight gain. I noticed that once I started becoming very active again, I needed to eat more.

I don't know how active you are but 4 months on the gluten-free diet is not long enough because you aren't going to be healed in such a short span of time. I would try and eat more gluten-free bread because that stuff is fattening and will help. Peanut butter, dried fruit or any other calorie dense foods will help. If you can tolerate dairy,

try milkshakes. I make protein shakes with almond milk and they are very filling.

It may take awhile but all of a sudden, you'll start to gain. Just go for the calorie dense stuff and eat whenever you like! :D

thanks!! ahh i really want milkshakes..but I am still somewhat sensitive so I am laying off the dairy...maybe one once in a while I might try....and i was also thinking of trying gluten free protein shakes..i guess kinda similar to the milkshakes idea...they have a bunch of calories....

i just want to make sure that everything is going well on the inside of my body...because I was doing good the first two months..and then all of sudden starting dropping weight the last two....

0

Share this post


Link to post
Share on other sites

thanks!! ahh i really want milkshakes..but I am still somewhat sensitive so I am laying off the dairy...maybe one once in a while I might try....and i was also thinking of trying gluten free protein shakes..i guess kinda similar to the milkshakes idea...they have a bunch of calories....

i just want to make sure that everything is going well on the inside of my body...because I was doing good the first two months..and then all of sudden starting dropping weight the last two....

Michelle, thank you for your post because seriously, this is my life right now. I've been diagnosed celiac for 11 months now. 9 of those eleven months I maintained my weight perfectly fine--although I should say I think I was eating more than my usual amount. I was severely anemic before diagnosis and probably really malnourished and so when I first was diagnosed and went gluten free, I was suddenly hungry ALL the time. I probably ate twice as much as I usually do, plus cookies and ice cream, and didn't gain an ounce but didn't lose it either.

Now, suddenly from March to April I lost 8 pounds. I have NO idea how it happened, I don't exercise, and was pretty freaked out about it because as with you I am not big to begin with. I was 118 to 120 before and now I am 111-ish. It really upsets me. I went out and bought ice cream and chocolate bars, and I try to eat at least one sugar a day, but unfortunately (or not) all the rest of my food is SUPER healthy. I don't know about you, but I've noticed most Gluten Free food to be very low fat. So it's high fiber cereal for breakfast, a sandwhich for lunch and stirfry for dinner, plus yogurt and nuts to snack on. I keep telling myself "you will not be able to gain weight eating edame beans and yogurt!" but it's hard for me to know how to supplement by diet with higher fat foods. I hate being this thin though. I recently talked to my doctor about this, and he said I'm still in the safe zone in terms of weight so he's not too worried, but if I really wanted, I could try drinking 'an instant breakfast' shake on top of my 3 meals a day. It's an extra 300 calories per meal. Hopefully it will work! Dr also said don't weigh yourself every day because that will stress you out. Good luck gaining weight!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined