No One Thinks It's A Big Deal....
Posted 15 April 2012 - 12:37 PM
I won't have a definite answer until see my doctor (who has been on holiday, so it is taking forever!), and I am worried sick since I have been called back I am prepared for the the test results to be positive (as I was told they would not call me if they were clear). However, everyone just has this attitude that it is no big deal if it's positive.
Am I just being over sensitive? I just want to get my results so I know what is going on, but I am worried that if it is positive that people are going to carry on treating it like it is 'nothing' and not get exactly what going gluten free means...
Has anyone else had this sort of reaction?
Posted 15 April 2012 - 03:01 PM
I feel for you. I really do. And I hope that you have some people in your life who understand just how hard this diagnosis and lifestyle can be.
Posted 15 April 2012 - 04:15 PM
You found a great place by joining this forum. The University of Chicago has a good site too.
The first couple of months are very tough, no doubt about it. You have to read labels and plan and give up habits, make changes. Grocery shopping is rough at first.
Life just stuck a major fork in your road, but it's not necessarily a bad thing. At least you know what you're facing, and so many people go undiagnosed for so many years, ending up with even more autoimmune diseases.
You'll find out who your true friends are. Fair weather friends may fly away. That bummed me out at first, but in a way it's a blessing to find out now. (Funny, it seems like the formerly neediest friends bailed on me.) Luckily, by getting on an even keel with your diet some of the former anxiety about things in general seems to fade away.
Wish you well, take it one step at a time and try to focus on what is most important first. (Your health always comes first.)
As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!
Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.
Posted 15 April 2012 - 04:51 PM
Some people will see the light once they see what it takes to be gluten free. Most people don't understand until they see it/live it how many things gluten is in and what it takes to protect yourself from cross contamination.
Some people won't get it and you'll have to learn to let their comments roll of your back or leave them behind as you move forward.
We've been fortunate. Our family and friends have really tried to understand what we need to do to keep our daughter gluten free. If they thought we were over the top, then they've done a good job of keeping their mouths shut.
On a family trip, we stayed with some friends who did an outstanding job. We planned the menu and for the most part (with the exception of stuff like hot dog buns and morning toast) both families ate gluten free. There were meals of meat/potatos/veggies but also (gluten-free) pasta and pancakes. Afterwards, my friend asked her daughters what they thought of the experience and they responded that it wasn't as hard to eat gluten free as they thought it would be. She reminded them that they only had to do it for a week and my daughter has to do it for the rest of her life . . . that really brought the message home. I think that's the part that most people can't grasp. You can do anything for a few days . . . it's the "rest of your life" part that makes it a big deal.
That being said . . . it does get much much easier. You get your routines down, your favorite recipes converted, and your safe eating options when you are out of the house. My daughter was diagnosed over 5 years ago. The changes in quality and availability of food has improved significantly in that time. I expect it will only get better.
Experience is what you get when you didn't get what you wanted.
Posted 15 April 2012 - 05:41 PM
Posted 15 April 2012 - 11:54 PM
I have finally got a cancellation appointment, so will be getting my test results tomorrow! I would be lying if I said I was not very worried about what the day may bring, but I do feel a bit more positive about the fact that I have support here, if nothing else....so thank you all for that, you have no idea how much it means to me
Posted 16 April 2012 - 05:26 AM
Posted 16 April 2012 - 10:11 AM
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