Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dh Playing Games?
0

14 posts in this topic

I'm starting to get a little confused about my DH because it has changed ever since I went low sals and iodine. Perhaps it's not even DH? It feels like it's playing a game sometimes! I know I got glutened recently but I've had no blisters at all this time.. just lots of dryness and burning.

It used itch in many places all over my body but mainly my nose and scalp, the rash itself though would show up on one finger only, and it would wake me up at night from excessive itching and burning sensation.. My finger would feel like it's throbbing.

Lots of tiiiiiiiny blisters that release water would show up on the finger, then the skin would get really dry and irritated and would break up.

Now if it shows up, I itch in many places (nose, scalp, hands, feet, and arms), but no blisters anymore, and my finger would not itch. It would just get seriously and hopelessly dry and the skin would be very pink and covered with mall hard lines that go in the same direction. It would ache and burn like crazy but nothing else. No matter how much I put cream on my finder it still gets dry again.

  • Has anyone ever had a similar rash that would change behavior like this? Could this be something other than DH?
  • Edit (The following point is already covered in a different post, so no need to respond to it :-) The post is at ):
    I'm curious to know about ALL the different shapes and forms of DH, so can anyone who has had DH at any point please describe what it looked/ felt like if you fee up for it? :-)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Go to the DH forum, click on a permanent post at the top. A link will describe DH in many forms.

Yes, DH changes.

Yes, it looks different on different people.

Sounds like your hand is trying to heal. You need a water resistant barrier on that finger - like Vaseline. Multiple times a day. I have THE SAME THING ON MY FINGER. Wear gloves when washing dishes/cooking. Cover it with a band aid to keep it from getting irritated.

The other itchy spots- itch without rash, occur to me when I've been in contact with an irritant - usually topical gluten but it's different for everyone. Even seasonal allergies do it. It's like a DH "threat". Iodine did that to me (sushi).

It could be anything - sals, iodone, amines....it could just be part of healing.

0

Share this post


Link to post
Share on other sites

Go to the DH forum, click on a permanent post at the top. A link will describe DH in many forms.

Oh I completely missed that! Go figure, I always miss the biggest buttons on pages too :-)

THanks! I'll edit my post

0

Share this post


Link to post
Share on other sites

Yes, DH changes.

Yes, it looks different on different people.

Sounds like your hand is trying to heal. You need a water resistant barrier on that finger - like Vaseline. Multiple times a day. I have THE SAME THING ON MY FINGER. Wear gloves when washing dishes/cooking. Cover it with a band aid to keep it from getting irritated.

The other itchy spots- itch without rash, occur to me when I've been in contact with an irritant - usually topical gluten but it's different for everyone. Even seasonal allergies do it. It's like a DH "threat". Iodine did that to me (sushi).

It could be anything - sals, iodone, amines....it could just be part of healing.

Thanks for the feedback Prickly :-) although you'd probably wish it wasn't the case but you're the DH queen :-)

I'm glad to know that the intense and painful burning means is the dying face of my DH lol! Thanks again!

0

Share this post


Link to post
Share on other sites

Thanks for the feedback Prickly :-) although you'd probably wish it wasn't the case but you're the DH queen :-)

I'm glad to know that the intense and painful burning means is the dying face of my DH lol! Thanks again!

Well, the burning means one of two things to me: starting or stopping. Since its been there a while I'm betting on stopping.

I noticed mine tried to heal then I get careless and don't use gloves or don't moisturize then it comes back. So baby it. Mine also is changing how it looks. Ugh. I thought it was eczema/psoriasis but now it looks like herpes. I'm betting DH. It's not whitlow herpes or it would have spread across to my other finger, I think.

0

Share this post


Link to post
Share on other sites




Well, the burning means one of two things to me: starting or stopping. Since its been there a while I'm betting on stopping.

I noticed mine tried to heal then I get careless and don't use gloves or don't moisturize then it comes back. So baby it. Mine also is changing how it looks. Ugh. I thought it was eczema/psoriasis but now it looks like herpes. I'm betting DH. It's not whitlow herpes or it would have spread across to my other finger, I think.

Its hard for me not to wash my hands since I'm also obsessive compulsive, but I'll try really hard to take extra pampering measures.

Doesn't herpes type a only show on lips or nose?

0

Share this post


Link to post
Share on other sites

Its hard for me not to wash my hands since I'm also obsessive compulsive, but I'll try really hard to take extra pampering measures.

Doesn't herpes type a only show on lips or nose?

I'm not sure of type a but herpes whitlow is what is supposed to show up on hands (and feet, elbows?).

Of you can stand a band aid on it I think it helps tremendously, with a bit of salve.

0

Share this post


Link to post
Share on other sites

Dani, yes, dh mutates. I swear it mutates just to frustrate us! Just when you think you have it figured out it goes & does something different on you. Your finger does sound like it's in a healing phase. Covering it will help like Prickly says. And then you may get slapped in the face (figuratively) when dh blisters pop back up on the finger. Darn stuff is vexing. But hopefully you have been gluten-free long enough that it's just not reacting that badly to the glutening. Maybe the antibodies are leaving your skin quickly. I sure hope so. Then again, the dh may leave your finger alone for months but decide to show up as blisters (or itchies w/o blisters) somewhere else on your body.

0

Share this post


Link to post
Share on other sites

Dani, yes, dh mutates. I swear it mutates just to frustrate us! Just when you think you have it figured out it goes & does something different on you. Your finger does sound like it's in a healing phase. Covering it will help like Prickly says. And then you may get slapped in the face (figuratively) when dh blisters pop back up on the finger. Darn stuff is vexing. But hopefully you have been gluten-free long enough that it's just not reacting that badly to the glutening. Maybe the antibodies are leaving your skin quickly. I sure hope so. Then again, the dh may leave your finger alone for months but decide to show up as blisters (or itchies w/o blisters) somewhere else on your body.

I'm glad others have had the same DH character changes.. I was starting to think maybe it was never DH because the blisters were gone.. err not that I'm not glad they're not showing up, and I hope they don't decide to make an appearance months later because that would make me think I'm being glutened!

Thanks for the advice you two! I didn't expect the rash to start improving so rapidly :-) My finger's skin is less stiff today.

0

Share this post


Link to post
Share on other sites

I think that's what's so tricky about this dh stuff. It can make an appearance (or not) at any time glutened or not until all the antibodies are out of your skin. Makes it darn hard to know if you've been glutened!

Now, in my particular case, I have few (external) GI issues from celiac. The last time I was glutened, I had terrible sudden onset of cramps before running to the bathroom where the cramps got worse to the point you can't hardly catch your breath & I will not explain the TMI that followed. And this happened once or twice a day for the next 3 days. Now, as weird as it sounds, I am hoping this is how I will react from now on when I get glutened b/c at least then I will KNOW I had been glutened you see. Of course, the dh followed but at a much slower pace, many days later. If I have to depend on the dh alone then it will be almost a case of anyone's guess type of thing. But if my sign is going to be GI symptoms presenting then I won't have to question a possible glutening or cc; you follow my thought process?

And yes, when dh starts improving, it can be lightning quick! (or not)huh.gif

0

Share this post


Link to post
Share on other sites

I think that's what's so tricky about this dh stuff. It can make an appearance (or not) at any time glutened or not until all the antibodies are out of your skin. Makes it darn hard to know if you've been glutened!

Now, in my particular case, I have few (external) GI issues from celiac. The last time I was glutened, I had terrible sudden onset of cramps before running to the bathroom where the cramps got worse to the point you can't hardly catch your breath & I will not explain the TMI that followed. And this happened once or twice a day for the next 3 days. Now, as weird as it sounds, I am hoping this is how I will react from now on when I get glutened b/c at least then I will KNOW I had been glutened you see. Of course, the dh followed but at a much slower pace, many days later. If I have to depend on the dh alone then it will be almost a case of anyone's guess type of thing. But if my sign is going to be GI symptoms presenting then I won't have to question a possible glutening or cc; you follow my thought process?

And yes, when dh starts improving, it can be lightning quick! (or not)huh.gif

Yeah I get what you mean. I know that many people consider the GI symptoms a curse but they do have one advantage: If you've been glutened, you can tell. Did you not get GI symptoms in the beginning?

0

Share this post


Link to post
Share on other sites

Hindsight being 20/20 the short answer is yes. Now that I have learned about celiac I can look back & see the correlation between events & celiac. To summarize: I had celiac since childhood & believe I went into remission until teen years & experimentation with beer which I HATED. I used to tell my friends it felt like a garden rake had been used on the lining of my stomach after drinking beer. YES! I absolutely had GI/bathroom symptoms then. And then when my hubs & I got married we pretty much ate a lot of whole foods b/c they were cheaper than junk & processed. Hubs hates sandwiches so we didn't do much bread at all. He also didn't care for breakfast pastry so we didn't do much of that. I would from time to time have GI symptoms like what the beer did to me. Those may well have been times when I had cake or cookies & such. Then about 8? years ago I began to have more along the lines of GI stuff but not to the extent that I was really concerned about it. I DID have a lot of major indigestion or actually what I would describe to my hubs --- "it feels like I don't have ANY acid rather than too much in my stomach". I used to call it NON digestion rather than indigestion. And I got horrid bloat; such that there were 3 occasions when I came a hair's breadth from calling 911 in the middle of the night. I talked to docs about this & they blamed it on menopause. Then about 4 or 5 yrs. ago I began to get one or two tiny itchy blisters. They would resolve in 1 to 3 days. And then more & more in more places & then the big major outbreak which covered my entire torso. And the rest is history.

0

Share this post


Link to post
Share on other sites

Hindsight being 20/20 the short answer is yes. Now that I have learned about celiac I can look back & see the correlation between events & celiac. To summarize: I had celiac since childhood & believe I went into remission until teen years & experimentation with beer which I HATED. I used to tell my friends it felt like a garden rake had been used on the lining of my stomach after drinking beer. YES! I absolutely had GI/bathroom symptoms then. And then when my hubs & I got married we pretty much ate a lot of whole foods b/c they were cheaper than junk & processed. Hubs hates sandwiches so we didn't do much bread at all. He also didn't care for breakfast pastry so we didn't do much of that. I would from time to time have GI symptoms like what the beer did to me. Those may well have been times when I had cake or cookies & such. Then about 8? years ago I began to have more along the lines of GI stuff but not to the extent that I was really concerned about it. I DID have a lot of major indigestion or actually what I would describe to my hubs --- "it feels like I don't have ANY acid rather than too much in my stomach". I used to call it NON digestion rather than indigestion. And I got horrid bloat; such that there were 3 occasions when I came a hair's breadth from calling 911 in the middle of the night. I talked to docs about this & they blamed it on menopause. Then about 4 or 5 yrs. ago I began to get one or two tiny itchy blisters. They would resolve in 1 to 3 days. And then more & more in more places & then the big major outbreak which covered my entire torso. And the rest is history.

Rake stabs! That sounds so painful I don't like to even think about it. I only had such pain twice in my life and they were due to food poisoning. I never want to ever feel that pain again :-( Talk about a VERY pricy gluten-alarm!

Summing everyone's symptoms up, it seems that antibodies can't make up their mind. They can't decide how they want to react!

Your hubs seems like a healthy eater :-) Mine thrives on sandwiches, pasta, and any type of processed carb possible ;-(

0

Share this post


Link to post
Share on other sites

Rake stabs! That sounds so painful I don't like to even think about it. I only had such pain twice in my life and they were due to food poisoning. I never want to ever feel that pain again :-( Talk about a VERY pricy gluten-alarm!

Summing everyone's symptoms up, it seems that antibodies can't make up their mind. They can't decide how they want to react!

Your hubs seems like a healthy eater :-) Mine thrives on sandwiches, pasta, and any type of processed carb possible ;-(

I think you summed it up quite nicely = antibodies don't have a clue!

Nah, my hubs is a meat & potatoes guy. he doesn't eat nearly enough veggies. I grew up eating very balanced I think. Lots of veggies & fruits in there.

And thank goodness I've (fingers crossed) never had food poisoning! Hubs has & like you is deathly afraid of it ever happening again.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,115
    • Most Online
      1,763

    Newest Member
    3boymommy
    Joined