Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

2 Yr Old Dh?
0

16 posts in this topic

I'm not sure my link to these pictures will work, but I will try. My 10 yr old son is being tested for Celiac. He has all the classic signs. However, my 2 yr old has a rash that concerns me, after reading about DH. Does anyone have any thoughts if this looks like DH. It is extremely itchy, and he cries when he can't 'get to it' to itch it. He seems to get it on both sides of his body at the same time. If my link to the photos doesn't work, any advice on how to upload photos from an iPhone would be great.

http://instagr.am/p/JdrhbmsjYS/

http://instagr.am/p/JdrbsJsjYO/

0

Share this post


Link to post
Share on other sites


Ads by Google:

There's no reason it couldn't be.

Find a dermatologist that is knowledgeable about biopsying for DH and get one.

0

Share this post


Link to post
Share on other sites

Awwwwwwwww POOR BABY! Breaks my heart. It sure looks like a lot of my dh does at times. I echo Prickly --- find a derm who is knowledgeable about dh & the biopsy procedure & get it done. And if he's still eating gluten you can go to the GI doc of your 10 yr. old & get this little one tested too.

It's eerie how on his back the rash is bilateral. I have a lot of dh that does exactly that.

0

Share this post


Link to post
Share on other sites

Aww poor baby :-( I hope it doesn't burn as well! Do you have any diagnosed celiacs in the family? Maybe you should test both children.

0

Share this post


Link to post
Share on other sites

Thanks for your comments everyone. We don't have any diagnosed celiacs in the family, but lots of gastrointestinal issues and autoimmune disorders. I had always assumed that he just had eczema. It has always flared up and then subsided. But then a couple weeks ago when my 10 yr old was tested, I started doing research on celiac disease. What struck me was the symmetry of the rash. He also has some under his armpits on both sides. Today he told me his back hurts. He has been lactose intolerant since he was 12 months too.

I took him to his doctor today to show him the rash. I asked if it could be DH but he really didn't know much about it at all. He asked me to tell him about DH and then he said to wait until we get the results for my other son, and if he's positive then all 4 of my kids will be tested. So I guess the waiting game continues for now.

0

Share this post


Link to post
Share on other sites




Can you call his doctor & ask if you can use benzocaine 20% on him? It stops the itch --- really! It won't make the rash go away but it will give him relief. He can't touch it & then touch his eyes. It's the ingredient in Solarcaine, Bactine & Orajel & maybe a few other things. But I wouldn't use it unless his doc says it's okay. I'm not a doctor & that's a baby we're talking about so I would check first.

Otherwise, witch hazel helps to cool & stop the itch for a while. Moisturizing helps. I think too it helps to cut off the air to the rash so coat it with Vaseline & see what relief comes of that. If I have a single spot or a group close together I will put Vaseline or ointment on it & cover it with a band-aid --- it helps a lot but when it's widespread like in the photos it's pretty hard to cover the entire area with a bandage.

Ice packs help. NO hot baths. Use as cool of water as he can stand b/c heat just irritates it & it reddens & itches like the very devil.

GI issues & AI disorders in the family is a big clue.

0

Share this post


Link to post
Share on other sites

I can ask his doctor about that. He gave me a cortisone cream to put on it. Will that help? We slather him with cream daily. Like I said, it comes and goes (but never really goes completely away). It just seems to be really bad lately. And he's always itching it.

0

Share this post


Link to post
Share on other sites

Most people with dh have said cortisone cream helps only minimally. I tried it & it did zilch for me. I tried everything under the sun & the things I listed were the only things that gave me any kind of relief at all. One thing you can do right now is to make sure that whatever you're using on him topically is gluten free. And that includes shampoos, soaps etc... powders --- everything. If it is dh then topical gluten can cause problems like eating gluten. NO oatmeal derived stuff either.

Call his doc tomorrow & ask about the benzocaine. And I will warn you that if he wants to prescribe oral steroids there is a big consequence to pay when he goes off them if it is dh. It will likely flare like you won't believe!

There are lists on this site for gluten free shampoos, lotions etc... Use the search box for the site.

0

Share this post


Link to post
Share on other sites

Topical , oral, and injectable steroids will invalidate Celiac testing.

1

Share this post


Link to post
Share on other sites

Topical , oral, and injectable steroids will invalidate Celiac testing.

How long do those take (oral steroids) to get out of your system? My derm. wants to prescribe Decadron for me.

0

Share this post


Link to post
Share on other sites

Wow, there is so much to learn. I will research what ingredients are in all the products I use on him.

And Prickly, it would invalidate a skin biopsy, but not the blood test right? (I wouldn't do the oral or injectable steroids)

0

Share this post


Link to post
Share on other sites

Great point Prickly!

0

Share this post


Link to post
Share on other sites

I have no idea if topicals would invalidate a biopsy or blood test, but I would assume it would.

I don't know for how long, I assume it would depend on dose and length of use. I'd guess a few months would be the guideline, since it supposed to help send ai into remission (similar to going gluten-free).

Think about it, they treat refractory Celiac with steroids.

0

Share this post


Link to post
Share on other sites

I'm not sure my link to these pictures will work, but I will try. My 10 yr old son is being tested for Celiac. He has all the classic signs. However, my 2 yr old has a rash that concerns me, after reading about DH. Does anyone have any thoughts if this looks like DH. It is extremely itchy, and he cries when he can't 'get to it' to itch it. He seems to get it on both sides of his body at the same time. If my link to the photos doesn't work, any advice on how to upload photos from an iPhone would be great.

http://instagr.am/p/JdrhbmsjYS/

http://instagr.am/p/JdrbsJsjYO/

Hi Momma4,

I have / having head to toe DH the past 11 months. My son (9y/o) is having loads of itchy/scratchy that is calming with gluten-free diet.

The photos I have seen that you posted are very indicative of gluten intolerance. Read as much as you can about getting the tests done. There is a very high 'negative' result from tests for people who have DH.

Can you find a dermatologist in your area who has experience with DH?

0

Share this post


Link to post
Share on other sites

When I showed the doctor the rash, he said he wanted to wait until we get results for my 10 yr old son. Its been a month and we are still waiting. He doesn't want me using anything but cortisone cream at this point. We don't have a dermatologist locally (she retired last year), so I will have to travel an hour and a half away to see one. That's ok though, as we will have to travel to the same location to se a pediatric GI anyway. He's still itching, but it seems to be lessening a bit.

0

Share this post


Link to post
Share on other sites

When I showed the doctor the rash, he said he wanted to wait until we get results for my 10 yr old son. Its been a month and we are still waiting. He doesn't want me using anything but cortisone cream at this point. We don't have a dermatologist locally (she retired last year), so I will have to travel an hour and a half away to see one. That's ok though, as we will have to travel to the same location to se a pediatric GI anyway. He's still itching, but it seems to be lessening a bit.

I was prescribed with cortisone when I showed my DH to the doctor.. that was because my doc had no idea what the rash was, and didn't bother to do any testing. It did help temporarily but the blisters and the dry skin kept coming back.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,620
  • Topics

  • Posts

    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined