Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Frustrated
0

9 posts in this topic

I am new here but diagnosed with celiac 2 years ago. I have had my ups and downs, rebelling the diagnosis as such. I am an RN and love research so when I first got diagnosed I went crazy with research. I have been more lax lately on asking questions and making sure when eating out its gluten-free. I have totally paid the price. I am currently a total mess health wise and being super strict to try and get back to where I was. I just feel so restricted when I am this strict. Plus when you feel so crappy its hard to want to cook every meal you eat. I was/am kind of a foodie. Love to cook and very into wine. I struggle everyday to stay on this diet and be happy. It seems like every time I think I am doing well I get glutened, usually from something I thought was safe like a latte or whatever. Any advice on how to be happy and still stay on the right track?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I understand where you're coming from--I also rebelled against this diet at first. It took me probably close to four years before I realized that I was negatively affecting my health by not being truly careful with my diet. I even used to occasionally "cheat." It finally took a very nasty experience with Dermatitis Herpetiformis combined with the inability to absorb iron (had to get weekly infusions for two years) to convince that I needed to make a change. There is no easy path to health, I'm afraid. Over time, though, it becomes habit, and you can enjoy eating again through accepting the fact that food preparation and daily cooking must become part of your life. I've identified a few restaurants where I feel safe, and there are even a few places where I can buy food that will last me for nearly a week (a ham or turkey breast from Honeybaked Hams or a couple of rotisserie chickens from Whole Foods).

Believe me, eventually the cravings go away...and cooking becomes a way of life. I'm no longer unhappy with my gluten-free diet and enjoy the good health it brings me. Remember, gluten can makes us feel depressed, so the longer you stay away from it, the happier (and more accepting) you'll become.

0

Share this post


Link to post
Share on other sites

I am so sick this time, I am sure from cross contamination. I didn't knowingly eat gluten but as I said I have eaten out a bunch and I do ask questions but prob not enough. It's time to really take this seriously cause I know that I am risking my health. I have goals I am sure I am not achieving because I am getting glutened too often. I am no where near where I would like to be with riding my horse. I feel tired all the time. After work I have a hard time doing regular chores at home. GI symptoms, brain fog, fatigue, joint pain, etc. These are all signs that I am on a bad road but instead I can't just grow up and do what I am supposed to. I think its time for a total over haul. Thanks for letting me vent. I know what I should do, all of you are such an inspiration to me. I just need to really be strong and stick with it and heal my body.

0

Share this post


Link to post
Share on other sites

Sorry you are having a hard time of things...You may be a person who can not tolerate eatinig out even when the place states it has gluten-free. There are some who are VERY sensitiveto the slightest amounts of gluten.

Another is it is something else making you ill. ie: sulphites or tannins in wine..

Your body is telling you its not happy .I would suggest a very basic diet for a month or so to let your body heal.. Or an elimination diet to find out what other foods may be causing you problems...

I also would stay away from the major allergens...soy, milk & so on.

Do you take digestive enzymes & probiotics?If not you should. Digestive Gold is a good enzyme, many good probiotics.

Have you had

your bllodwork done forthethyroid? Not just the TSH but Free T-3 FreeT-4, Total T-3, reverse T-3, most docs will only check the TSH so youmay need to be pushy about getting the other tests done.B-12, & Vitanim D levels as well..

I also would check A1C& glucose

You want to rule out any other things. If everything else is good then you can settle down into it being celiac & gluten issues..& how sensitive you may be.

Plus there are many gluten-free foods that are available that are very good & tasty...no one should ever feel food deprived with the gluten-free diet ....( plus feeling deprived causes depression)

One needs to stay positive,by following the gluten-free lifestyle we find health & happiness being once again able to live & enjoy life..I understand you are not quite there yet but like all on here ,we have been where you are at.. You too will get there but it will take some time, healing & determination on your part.

Don't stress yourself out because you have no energy to clean house & such. Just do what you can do , let your body heal itself without pressure...Don't try to be wonder women......I wanted that one time years ago when I first got dx's , couldn't do it until after I let my body heal & then I got my life back...

You control the illness don't let it control you..You be the winner..

blessings

mamaw

0

Share this post


Link to post
Share on other sites

Thanks for your support. I started on probiotics. I had it easy when I was first diagnosed. After a few years of stomach battles. Bam!! I found the answer and I eliminated gluten and things got better fast. Then a lot of my symptoms that I thought were lupus were celiac. I was low on b12 and calcium and vit d. So started on them all. Been good about d and b12. My thyroid is good. No diabetes. I have lately got glutened several times in a row. Scared to eat out or at someone else's house. Started with my mil glutening me even after I asked questions. Now so sick and I can't eat anything without pain. Feel like I'm barely getting by with work. Grrrrr!!! Eating mild and only from home, lots of water and probiotics is what I'm doing. Any more ideas?

0

Share this post


Link to post
Share on other sites




It doesn't have to be that hard to cook right now. Pop some frozen veggies in the nuker & a game hen in the oven. No standing & measuring, stirring etc... Chicken too -- especially a whole one; it will give you more than one meals worth of food. Don't make a sandwich to take to work, just wrap some cold chicken up in foil & grab a piece of fruit. Go whole foods & skip all the spices & don't try to bother with sauces & gravies yet.

0

Share this post


Link to post
Share on other sites

Follow your foodie impulses, but focus on cooking your own food. You can make fabulous meals gluten-free. When I'm tired I rely heavily on my crockpot and Dutch oven. I don't eat out much, and there are only a couple friends I trust to cook for me. One has severe soy allergies so she "gets" CC. The other is just brilliant and has text-messaged me to double-check ingredients.

I cook lazy but tasty foods when I'm tired. Whenever I have some energy I cook in batches and freeze leftovers so I always have gluten-free "TV dinners" on hand. That way there is no temptation to eat out when I'm too tired to cook and do chores. If I'm making muffins or quick bread I double the recipe and freeze some. My freezer is my way of coping.

I often dump a package of skinless chicken, whole mushrooms, a sliced onion, a little pressed garlic, wine (well that's out now for me but it tastes good), some random dried herbs, salt, and pepper into the dutch oven, maybe a can of tomatoes, chopped carrots and celery if I have the energy, and put it in the oven 45 minutes to an hour. I don't even brown the chicken when I'm tired. What comes out? Yummy chicken with leftovers for lunch and the next night's dinner! Rice in the rice cooker, steamer veggies in the microwave and I'm good to go.

I'll also crockpot cook stuff. Put a pot roast or chicken in the liner the night before and put the liner in the fridge. In the morning, pull the liner out, set in the crockpot on low. Come home to a nice, warm dinner when you're tired after work.

0

Share this post


Link to post
Share on other sites

Using my crockpot in the am. Good idea!! I forget it's there. Thanks. You guys are awesome!! I should have joined this site 2 years ago. Been kinda a lonely road so far.

0

Share this post


Link to post
Share on other sites

Well you're not alone anymore! Welcome to the site.smile.gif

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,316
  • Topics

  • Posts

    • Good to know, I'm allergic to sulfa as well but have taken doxycycline for a different reason without problems. I'll be storing this idea for future reference....hopefully unneeded !
    • i hope you tipped that waitress well????
    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined