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Question About Digestive Enzymes.


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19 replies to this topic

#1 Girl From Indy

 
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Posted 17 April 2012 - 05:46 AM

I have seen digestive enzymes mentioned as a possible treatment for gluten side effects. I went to the er last night and the doctor there had never heard of them. What are they? Do they help? Do you have to take them with probiotics? Are they safe for advance celiac?
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Diagnosed Celiac stage 4 through biopsy, May 2011.
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#2 Bubba's Mom

 
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Posted 17 April 2012 - 06:34 AM

I have seen digestive enzymes mentioned as a possible treatment for gluten side effects. I went to the er last night and the doctor there had never heard of them. What are they? Do they help? Do you have to take them with probiotics? Are they safe for advance celiac?

Digestive enzymes are supplements you take to help break down and digest food. With Celiac disease, sometimes we aren't producing enough enzymes on our own. They also help break down the food so your already stressed digestive system doesn't have to work as hard, and hopefully you can absorb the vitamins/minerals better?

You don't have to take them with Probiotics. You take them when you eat.

I think the theory with enzymes when glutened, is that the enzymes will break down the food faster so it leaves your system faster? Again, they have to be taken when the food is eaten.
They can't be used as a way to consume gluten safely, rather they are used when you are not 100% sure if there could be cc...like when dining in a restaurant.
If you are feeling the symptoms of a glutening..it's probably too late to take them and have them do any good.
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#3 Girl From Indy

 
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Posted 17 April 2012 - 08:15 AM

I got gluten on Saturday, quite by accident. My reaction is so severe I end up in the hospital every time. However, the hospital yesterday could not help me at all. Even told me celiac can only affect digestion. I have no filter organs left, so it seems to really bother my heart and lungs now. I guess I was hoping there was some magic enzyme that would stop all the side effects.

I do a papaya enzyme with meals. Any suggestions?
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Diagnosed Celiac stage 4 through biopsy, May 2011.
Gluten Free since April 2010.

#4 Bubba's Mom

 
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Posted 17 April 2012 - 03:19 PM

I got gluten on Saturday, quite by accident. My reaction is so severe I end up in the hospital every time. However, the hospital yesterday could not help me at all. Even told me celiac can only affect digestion. I have no filter organs left, so it seems to really bother my heart and lungs now. I guess I was hoping there was some magic enzyme that would stop all the side effects.

I do a papaya enzyme with meals. Any suggestions?

I got glutened by cc in January. It made my heart throw a few weird PVC's and I got real weak..and confused. I had no idea it was from gluten at the time, I'm just guessing it was in hind sight? I thought I was having a stroke, or heart attack or something.
I went to the ER and they noted the odd heart beats, but there wasn't really anything they could do. They kept me overnight and for the next day "for observation". I'm afraid there isn't really anything they can do if you get glutened?
It's scary isn't it? :o
I wonder if they gave us a short burst of steroids if it would abort a full blown gluten attack? :unsure:
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#5 Michelle L

 
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Posted 17 April 2012 - 04:38 PM

hey! i use a product called "Gluten Flam". I think its pretty good. They include digestive enzymes amylase, glucoamylase, cellulase and also aloe vera to help calm your system. They are made specially for gluten intolerance and do not contain dairy, gluten, eggs.

i would recommend them for you to try. they are from apex energetics...a pretty well known brand. just go on google and type in "order gluten flam" and you should get various websites from which to buy them and can read more about them and check out the personal reviews if youre interested!

hope this helps!
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#6 Ninja

 
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Posted 17 April 2012 - 08:36 PM

I use Digest Spectrum by Enzymedica. I've used it after I've been glutened or cc'd and it seems to help.. granted it doesn't nearly take away the symptoms, but it does help. :) Ideally, you'd anticipate a potential glutening and take one beforehand though.. :)
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#7 nursenation2

 
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Posted 17 April 2012 - 10:36 PM

Has anyone tried this as a method to eat out?? I have had so many bad experiences I am down to trusting one place and right now not even willing to go there. Just so scared to eat out.
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#8 rosetapper23

 
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Posted 18 April 2012 - 09:57 PM

I received an e-mail yesterday from celiac.com with this article:

http://www.celiac.co...sure/Page1.html

It describes a product called CeliacAid that supposedly digests gluten in the stomach so that it never causes a reaction in the small intestine. It's supposed to be taken daily to protect celiacs against cross-contamination and occasional "glutenings." I don't know if it really works and plan to contact the forum administrators to see if this product is on the up and up. I hope it is, but I'm desperate to find something that might protect me against cross-contamination.
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#9 Skylark

 
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Posted 18 April 2012 - 10:39 PM

Lotta claims, no science, no real explanation of what the product is. I wouldn't waste my money.

The enzyme preparation that might be worth getting is Biocare Glutenzyme. It has the gluten protease from barley that Alvine is investigating. Problem is, you will probably have to order the product internationally because of the Alvine patents.
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#10 JustNana

 
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Posted 20 April 2012 - 01:43 PM

I read the advertisement and my hackles rose. I wouldn't waste my money either.

Skylark, please correct me if I'm wrong, but it isn't like being lactose intolerant, is it? Celiacs have an auto immune problem. The body sees gluten in the intestine as the enemy and attacks it. Wouldn't even well "digested" gluten have to pass into the small intestine and cause the reaction? You always explain things in a way that is easy to understand.
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#11 Ninja

 
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Posted 20 April 2012 - 01:50 PM

Edited
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#12 Skylark

 
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Posted 21 April 2012 - 08:59 AM

I read the advertisement and my hackles rose. I wouldn't waste my money either.

Skylark, please correct me if I'm wrong, but it isn't like being lactose intolerant, is it? Celiacs have an auto immune problem. The body sees gluten in the intestine as the enemy and attacks it. Wouldn't even well "digested" gluten have to pass into the small intestine and cause the reaction? You always explain things in a way that is easy to understand.

Let's see if I can explain.

  • The part of your immune system that causes celiac does not react to fully digested foods. It reacts to longish peptides, usually around 15-20 amino acids.
  • Gluten is very difficult to fully digest, which is part of why it can interact with your immune system.
  • For some unknown reason people with celiac have permeable intestines that let the undigested bits of gluten interact with the immune system and trigger autoimmunity. We may also be missing some gut bacteria that might help digest gluten; this is unclear.
  • If you could somehow fully digest gluten, you could make it so it doesn't interact with your immune system.
  • Enzymes that can actually break down gluten are few and far between. DPP-IV products that are touted to break down gluten have been tested and found to be largely ineffective.
  • A pair of enzymes has been discovered (one from barley and one from Aspergillus niger) that together can fully digest gluten in a test tube.
  • Alvine Pharmaceuticals has patented them and is doing clinical trials.
  • In the first clinical trial the enzymes didn't work well enough or fast enough that you could eat a bagel but they might be helpful with small amounts of gluten CC.

Make sense? Biocare Glutenzyme has the barley enzyme Alvine is working with, but I don't think it has the other one.
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#13 JustNana

 
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Posted 21 April 2012 - 12:58 PM

Yes indeedy Skylark, makes perfect sense. Thanks for the concise response. 
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#14 celiacswife

 
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Posted 26 April 2012 - 06:08 AM

Lotta claims, no science, no real explanation of what the product is. I wouldn't waste my money.

The enzyme preparation that might be worth getting is Biocare Glutenzyme. It has the gluten protease from barley that Alvine is investigating. Problem is, you will probably have to order the product internationally because of the Alvine patents.


Is there anything available in the US that is worth taking? On a related (maybe) note, my husband (the celiac) seems to get minor illnesses (cold, cough)more often than the rest of the family. He takes some supplements, (multi-vitamin, extra vitamin C, fish oil) I wonder if some enzyme supplement would enhance his ability to fight off these illnesses?
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#15 Bubba's Mom

 
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Posted 26 April 2012 - 06:34 AM

Is there anything available in the US that is worth taking? On a related (maybe) note, my husband (the celiac) seems to get minor illnesses (cold, cough)more often than the rest of the family. He takes some supplements, (multi-vitamin, extra vitamin C, fish oil) I wonder if some enzyme supplement would enhance his ability to fight off these illnesses?

Probiotics! They help in all sorts of ways. I'm including a link which tells some of the things that they help with.
http://www.medicinen...otics/page3.htm
In general, they improve the function of the immune system enough to fight off those common viruses
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