Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Having A Gluten Reaction
0

6 posts in this topic

Hi all,

I am new to this board but I am in need of some support!

About 3 weeks ago I vacationed in Vancouver BC and thought I was doing well at staying away from gluten. Yet some how it must have snuck in... I have been sick ever since.

I have been really good at staying away from gluten since I was diagnosed about a year ago. The last 4 months have been really good. I have actually been feeling better than I have for a very long time. And now this. I am still not sure what symptoms I can "blame" on celiacs and if maybe I am dealing with something else so I was hoping you all could share your experiences with me.

So it has been over 3 weeks and my symptoms seem to be getting worse instead of better. I was on a retreat this past weekend in which I could not leave my cabin due to fear of being too far from the toilet. I have had not apetite for the past 3 days. Some days I'll eat a bannana, or some days I will have a little more.

It seems to get worse instead of better. I ended up taking imodium AD so I could stand the 7 hour car ride home. Next week I am supposed to leave for a vacation of a lifetime to Mexico and I am afraid I will be nothing but sick the entire time.

Do you have any advice? Words of wisdom? Tricks that help ease the symptoms?

Do you find that your symptoms are worse if you have been with out gluten for a very long time?

I appreciate your listening and support!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Of course I can't tell you for sure what's going on, but I can tell you that feeling bad for three weeks and symptoms getting worse after what might have been no more than contamination is HIGHLY unusual. Most people wouldn't react to a small exposure for more than a couple of days (yes, I know there are exceptions -- I've had people tell me they react for a month). My guess would be that you're either still accidentally ingesting gluten somehow, or, more likely, something else is going on. I would see my doctor.

If you're not taking a probiotic, you should try it.

richard

0

Share this post


Link to post
Share on other sites

help - I have been gluten-free for over 1 year and I haven't had any problems. last week I bought the calcium vit I always buy and I started to have stomach distress. Now I have dh rash all over and it is way itchy. I went to the doctor and he took 2 biopsies. He just wanted to confirm it was dh. I know that it is - it looks just like the pictures on the web. I will be even more careful now. Before I always thought that if I accidentally got some gluten it wouldn't be a problem. But I guess since I have been careful in the past I am now getting bad reactions. :rolleyes:

0

Share this post


Link to post
Share on other sites

Richard,

What is a "probiotic"?

0

Share this post


Link to post
Share on other sites

A probiotic promotes the growth of beneficial microorganisms in your gut. These then help with digestion. Dr. Cynthia Rudert of Atlanta says she recommneds probiotics for ALL new celiac patients. The one she named is Culturelle but I'm sure the folks at a natural foods store can help with others.

richard

0

Share this post


Link to post
Share on other sites




Thank You!

I am a little clueless on medications and vitamins and what not that we are able to take... Its nice to have a little input. :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined