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Celiac Or Something Else?
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Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

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Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

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Yes, insist on celiac testing. Your symptoms are pretty typical.

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Start working with a gastroenterologist. You have symptoms for Celiac, but also another short list of disorders too. If you are Celiac, there is another short list of possible disorders that are higher odds for a Celiac too. Some of these need to be diagnosed by an endoscopy with biopsy. (This would be a good idea to see what damage GERD has done or if it could be Eosinophilic Esophagitus.)

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So I went to my new doctor today, and she was awesome! She ordered just one Celiac test for me, the tTG-IgA. Is that one generally pretty accurate? I'm still new to all of this Celiac terminology, haha. My doctor also referred me to an allergist (because I have a whole lot of other food problems going on) and said that we'd figure out what to do gluten-wise after I get my tTG-IgA results back. I think she said that whether it was conclusive or not, she'd refer me to a gastroenterologist. So I'm very hopeful at the moment that my problems are on the way to being solved!

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No, having only one celiac test is not accurate at all and TTG-IgA is lacking in sensitivity. It only picks up maybe 80% of people with celiac disease. Most of the research articles I've read lately suggest DGP-IgG along with the TTG-IgA. If you're positive on either you are very likely celiac.

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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