Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Withdrawl Symptoms...
0

12 posts in this topic

I have been 100% gluten-free since Friday when I was in the hospital with gallstones and my gluten flare up was so bad!! The worse it has been since having my son in Jan. Since I have been gluten-free free I have had some wierd things go on. Overall, I feel better, but I am exhausted like I was run over by a truck, I am super hungry all the time like I have never eaten before, I get so irritable like I am PMSing 24/7, and I have super BAD gas...

I looked this up and I read about gluten withdrawl...could this be it? What were your symptoms??

HELP!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Pretty much everything you just said! I had withdrawl my first week and I was hungry ALL the time. Nothing filled me up and I felt emotional. After the first week it has gotten better. I've been gluten free almost 8 weeks now and I still have days where I feel like I'm detoxing or withdrawing yet. Some days I have super low energy and muscle aches and I've had emotions that come and go. And some days I'm hungry all day long. I've been drinking lots of water and it helps and my doctor has me on supplements (B complex, Iron, multi).

0

Share this post


Link to post
Share on other sites

Hang in there....I've only been gluten-free for about a month now but I had the horrible moodiness too!! I kept thinking to myself.....what the heck is wrong with my...lol.

I had horrible headaches and mood swings with the withdrawals but I know it affects everyone different. Hopefully they go away soon :)

0

Share this post


Link to post
Share on other sites

Ugh. I really feel like my emotions are going crazy right now! It's pissing me off to say bluntly! I just want to feel better. Hopefully, the withdrawals will go away soon...they have to eventually right?! I am glad I am not the only one. I am also dealing with gallstone pain, which is not helpful at all! Anyone, not get the 'celiac' diagnosis, but know that is what you have? Also, anyone able to still use products containing gluten (i.e; shampoo, lotion, etc)??

0

Share this post


Link to post
Share on other sites

I had bad temper & anxiety & depression from the gluten. Then when I went gluten-free those things continued through the withdrawal period & were at times worse then when I was eating gluten PLUS the brain fog sets your nerves on edge b/c it's SOOOOO hard to think & suddenly you have all these new rules to follow. AND 24/7 famished, eating, out there feeling, feeling like my knees will buckle, feeling like I'm trembling but put my hand out & they were steady --- the trembling feeling is inside the body not an outward appearance. It's all part & parcel of gluten withdrawal. Everyone is different but that's pretty much the big picture. How long does it last? Now that is really subject to the individual. Mine went on for a month & then waned some & then came back but less than before & then & THEN & THEN ---- I got accidentally glutened --- & then it began all over again. Sigh. But I made it. You can too! I'm feeling so much better now. And looking forward to feeling better & better as time gluten-free goes on. and i have more energy! YAY!

Hang in there & don't hesitate to speak up if you have questions.

0

Share this post


Link to post
Share on other sites




squirmingitch - has your symptoms finally subsided? I've been dealing with the same thing. I'm incredibly moody, extremely tired, insomnia, when I do sleep I'm still tired, my appetites all over the place, my brain is foggy and this week ive been so nauseas. I've been gluten free for 3.5 months now. And what really gets me is that I was silent. I didn't have symptoms, at least not extreme ones before I was diagnosed. And now I just feel so awful like all the time. I keep trying to keep my head up because I know eventually it has to stop but I really don't know how much more I can take. I'm litterally trying to keep myself from crying right now. I've tried asking my doctor and nutritionist but they're no help. They just say wait and see and they'll see me in a few months. I don't want to feel like this for a few more months. Sorry to rant on, I just needed someone to listen.

0

Share this post


Link to post
Share on other sites

Owlmuse, rant anytime you want. We all do it, we all have been there, & we all understand.

Are you taking any vitamins? Have you had your vitamin/mineral levels tested? Have you had your thyroid checked?

And finally, what kind of foods are you eating? Are you positive there is no cc? Are you & have you been eating processed foods even though they are gluten-free?

Details, details.... they will help to determine.

0

Share this post


Link to post
Share on other sites

Hang in there, I've had all your symptoms and more. In addition to that my bones hurt from the inside, like something was sucked out of them, however I was on pain meds every day for 7 years also. Could have been withdrawal pain from that in the bones and not from the gluten. Anyways, it is NORMAL for a lot of people to get worse at first. That may be a strange comparison, but think about someone, who's addicted to drugs. Just like gluten for us, they know they will feel better, once they are off the drugs. Yet they feel like crap the first few weeks/months off of the drugs. It took me 6 months, SIX!!!, off of gluten for my guts to heal and make the pain go away and with it the fatigue, depression, anemia, etc. etc. It took your body soooo many years to "poison" yourself. It may have been from birth as it was silent, so nobody can say for sure, not even the doctors. I went glutenfree 5 days before I turned 27 and it took me 6 months to half decently recover (some symptoms took longer). If you were older, when you were diagnosed chances are it may take longer than that. Doctors are not always right in regards to celiac, but yours are right, when they say wait and see. I know it's hard, but have patience my friend. You can come back here and rant anytime you want. You can go to any of our profiles and look at our first few posts. I'm sure they didn't look any different than yours.

0

Share this post


Link to post
Share on other sites

Wow thank you both do much for responding! It's really nice to get reassurance and understanding. My parents and brother try (most of the time) but they don't understand.

As to squirmitch's questions. I'm a 24 year old female and was diagnosed in January. I have had my vitamins levels tested and was iron deficient so I'm taking a supplement for that as well as a multi vitamin. I have a thyroid condition, that's how I was diagnosed actually. Had it for years now and pushed my endocrine doc to do extra labs as I've been feeling so bad he says it's fine. I'm trying really really hard to stay gluten free. I haven't slipped on purpose and as far as I know haven't been glutened by accident but I'm silent so I may not know if I was. I do live with my family who does eat gluten. I'm really paranoid though and try really hard to keep everything clean and seperate but there is only so much I can do. The night before I went gluten-free I did my best to 'de-gluten' the kitchen i boxed anything made of wood cleaned out a cabinet just for gluten-free food, got rid of the wheat flour, put everything through the dishwasher and washed out the drawers and most of the cabinets. I also designated (some i bought new) hard to clean things like a collender, pizza cutter etc gluten-free so my parents and brother wont use it, unless cooking for me. I eat mainly things labeled gluten free or naturally gluten free. There are some products I've had that maybe werent labeled gluten-free but the ingredient list looked ok and or I googled it to double check. I have eaten out a bit but only to places that have a gluten-free menu, thankfully there are quite a few in my area.

Stef-the-kicking-cuty - thank you for posting that it took you so long too! I was starting to get nervous because everyone seemed through the gluten withdrawl symptoms in days or weeks not months. I was becoming scared that it would be perminent. I guess I just had it bad. ALL my favorite foods had gluten in them so maybe I fed the addiction too much and it just takes longer than most?

0

Share this post


Link to post
Share on other sites

I know my daughter went through withdrawal for months, and like you, she was a silent celiac. Perhaps there is a correlation? Rest assured, it gets better!

0

Share this post


Link to post
Share on other sites

I have been 100% gluten-free since Friday when I was in the hospital with gallstones and my gluten flare up was so bad!! The worse it has been since having my son in Jan. Since I have been gluten-free free I have had some wierd things go on. Overall, I feel better, but I am exhausted like I was run over by a truck, I am super hungry all the time like I have never eaten before, I get so irritable like I am PMSing 24/7, and I have super BAD gas...

I looked this up and I read about gluten withdrawl...could this be it? What were your symptoms??

HELP!!

First thoughts are was the food you recieved in the hospital completely Gluten Free ? Is their kitchen aware of cross-contamination and the possible effects on Coeliacs.

Gluten withdrawl is very real.

http://www.livestrong.com/article/246282-gluten-free-diet-and-withdrawal-symptoms/

0

Share this post


Link to post
Share on other sites

Wow thank you both do much for responding! It's really nice to get reassurance and understanding. My parents and brother try (most of the time) but they don't understand.

As to squirmitch's questions. I'm a 24 year old female and was diagnosed in January. I have had my vitamins levels tested and was iron deficient so I'm taking a supplement for that as well as a multi vitamin. I have a thyroid condition, that's how I was diagnosed actually. Had it for years now and pushed my endocrine doc to do extra labs as I've been feeling so bad he says it's fine. I'm trying really really hard to stay gluten free. I haven't slipped on purpose and as far as I know haven't been glutened by accident but I'm silent so I may not know if I was. I do live with my family who does eat gluten. I'm really paranoid though and try really hard to keep everything clean and seperate but there is only so much I can do. The night before I went gluten-free I did my best to 'de-gluten' the kitchen i boxed anything made of wood cleaned out a cabinet just for gluten-free food, got rid of the wheat flour, put everything through the dishwasher and washed out the drawers and most of the cabinets. I also designated (some i bought new) hard to clean things like a collender, pizza cutter etc gluten-free so my parents and brother wont use it, unless cooking for me. I eat mainly things labeled gluten free or naturally gluten free. There are some products I've had that maybe werent labeled gluten-free but the ingredient list looked ok and or I googled it to double check. I have eaten out a bit but only to places that have a gluten-free menu, thankfully there are quite a few in my area.

Stef-the-kicking-cuty - thank you for posting that it took you so long too! I was starting to get nervous because everyone seemed through the gluten withdrawl symptoms in days or weeks not months. I was becoming scared that it would be perminent. I guess I just had it bad. ALL my favorite foods had gluten in them so maybe I fed the addiction too much and it just takes longer than most?

Owlmuse, then the only things I can say other than this may just be the way you withdraw is:

Quit ANY processed foods. gluten-free or not; they are still processed foods & "junk" foods. They may be keeping you feeling lousy. Even though you are a silent celiac or maybe BECAUSE you are a silent celiac -- it's harder for you to tell if/when you've been glutened or cc'd or eating something that makes you feel rotten. You don't have a gauge so to speak so you're going to groping around in the dark more than most. The only way to sidestep that is to go whole foods for a couple months as well as the following:

Don't eat out for a good long while --- at least a month or two. Even though places have gluten free menus there are numerous celiacs who can attest that's only 1/2 the battle. So many places do not understand cc issues.

I'm hoping you feel much better soon!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,120
    • Total Posts
      919,471
  • Topics

  • Posts

    • I thought I would update you all.  I started to eat gluten shortly after this post.  I was miserable by the time I had my EGD.  The doctor gave a diagnosis after the EGD was completed, duodenitis, gastritis and hiatal hernia.  I had abnormal mucosa of the whole stomach and severe inflammation.  The biopsy results came back today, they stated early stages celiac disease.  I wonder what it would've shown if I wasn't on a gluten free diet for two years?  My doctor said he still wants me to come in for a talk, he doesn't really know if he should call it celiac disease since it's early stages....  WTH!  I've really got to find a doctor that specializes in Celiac Disease...    
    • thank you for the info, its very helpful to hear from someone else who has it and knows a lot about it. When you say I may be eliminating one problem vs 3, what would you think the other problems could be? It's frustrating because I even buy Uldis gluten-free bagels and what not and I still find myself reacting sometimes to that, I don't use butter but just gluten-free peanut butter, but like I said I don't know for sure if its from that or maybe something else. I have read on this site about a couple others that have had issues with uldis breads so could be that. but like you said I guess it can also just take awhile to get better. I read the other day that a lot of throwing up can put stress on your small intestine which can maybe cause your body to react to dairy, do you know anything about that or if that's true?
    • Thanks for the reply!  Yeah, I really should have gotten testing done before the elimination diet.  I had asked my previous doctor, but she didn't want to do it.  I was transitioning to a new insurance and couldn't get a doctor's appointment for awhile, so I thought I would just do the elimination diet.  After all, it might not have been gluten.  (<--that was my thought process...) Hindsight is 20/20.  I felt pretty good during those 3 weeks gluten free, and was not expecting how bad it would be when I added it back in.  Anyway, I found a new doctor and I think she would totally be willing to test me again 9 weeks out. I think she would also be willing to order the endoscopy if I brought her research and really pushed for it. Now that I know how good feeling good feels... I just can't see staying on gluten for another 9 weeks.  I honestly don't know how I would survive.  Even if it's not Celiac, and it's ONLY the wheat allergy... it's making my life absolutely miserable. Thanks again for the reply!  I think I'll go in Friday for the blood test and take it from there.
    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,159
    • Most Online
      1,763

    Newest Member
    Anns
    Joined