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Could I Be Suffering From Cd?
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4 posts in this topic

I am new to this website and was wondering is anyone had any advice for me or if anyone can relate to any of the symptoms and things I have experienced.

I came across this website through a search engine. I have been suffering for about nine months with many different symptoms which my doctors are trying to pass off as an anxiety disorder (don’t buy it). Recently one of the doctors I’ve been seeing suggested that I may have celiac disease. I am about to go for a screening on Tuesday.

The symptoms I have been struggling with are:

Bloating after meals

Bad gas

Constipation and or diarrhea (no in-between)

Sweats (especially after eating)

Mental fog 2-3 hours after meals

Burning sensation in throat

Bone and muscle aches

Fatigue

Headaches in front of head almost behind eyes

Anemia

Issues with balance

Abdominal pain

Weakness

Hands swell

Major weight gain (30 pounds since April)

Unable to loose weight through exercise

Nervous and anxious at times

Irritable

also about any where from 3-5 hours after meals I experience what appears to be a hypoglycemic attack (dizzy spells, hunger, trembling, loss of concentration, cold sweats, palpitations, fatigue) I have been checked for hypoglycemia and have been assured that that is not the case, however this problem is quickly corrected with a glass of orange juice. <_<

I have been reading a lot about celiac disease since I heard about it a week ago and have read that it causes malabsorbtion of nutrients. Could this be causing my symptoms? Could I be suffering from malnutrition? These attacks after meals are also signs of insulin resistance. I also read that Celiac disease has a bad effect on the pancreas and that it causes the body to store alot of fat and quickly use up energy.

If anyone has any advice for me or has had any similar experiences I would appreciate a response

Thanks :D

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Ummm, yes! Many of those symptoms are classic slgns of celiac disease. Good thing you're getting tested! It could also be something else but it definitely warrants a test for celiac disease!

I, too, had those weird hypoglycemic attacks but mine weren't helped with the ingestion of sugar. ???? Odd, right? They got better after I was gluten free for awhile.

Whatever you do, do NOT try the gluten free diet until a doctor diagnoses you with celiac disease through a biopsy. You need gluten in your system in order for the test to be accurate. Plus, after all you've been through, it will be worth it in the end for a correct diagnosis.

good luck and don't hesitate to ask us any questions. There is no topic off limits!

Jennifer:)

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The symptoms I have been struggling with are:

Bloating after meals

Bad gas

Constipation and or diarrhea (no in-between)

Sweats (especially after eating)

Mental fog 2-3 hours after meals

Burning sensation in throat

Bone and muscle aches

Fatigue

Headaches in front of head almost behind eyes

Anemia

Issues with balance

Abdominal pain

Weakness

Hands swell

Major weight gain (30 pounds since April)

Unable to loose weight through exercise

Nervous and anxious at times

Irritable

also about any where from 3-5 hours after meals I experience what appears to be a hypoglycemic attack (dizzy spells, hunger, trembling, loss of concentration, cold sweats, palpitations, fatigue) I have been checked for hypoglycemia and have been assured that that is not the case, however this problem is quickly corrected with a glass of orange juice.  <_<

I have been reading a lot about celiac disease since I heard about it a week ago and have read that it causes malabsorbtion of nutrients. Could this be causing my symptoms? Could I be suffering from malnutrition?

<{POST_SNAPBACK}>

I've had every symptom you listed except the poor balance and the weight gain. The "attacks" you describe are exactly what I've been experiencing the last couple weeks. Its only happened about 3 times though. I just started a topic titled "extreme hunger" asking this same question. I do have malabsorption and was only dx'd a couple weeks ago. I was thinking it was caused by the malabsorption but I'm curious if it means my body is healing or if its a bad sign. I feel fine after I eat something.

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Thank you for your responses.

Has anyone noticed any problems with their blood pressure in relation to celiac disease ?

Danijela

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    • The tests you provided can not provide any information pertaining to celiac disease.  You must be consuming gluten daily for 8 to 12 weeks in order for any of the celiac blood tests to work.  Only 2 to 4 weeks for the intestinal biopsy.  But both, yes, both are needed for a celiac diagnosis because many other things can cause intetinal villi damage.  Why isn't your doctor following the standard algorithm for diagnosis.  Does he even suspect celiac disease?   Got to head to school.  More later!  
    • I've been eating gluten for 4 weeks now, as recommended by my doctor, to test for Celiac. Today I got 'some' of my blood test results back, although not all... I have my biopsy test scheduled for tomorrow morning, but I don't know if I should go through with it or not if the other results are not back by morning (which would show a clear positive or negative)... The results I got so far have a few alarming numbers...

      My platelets are marked as High, being 484 x10^9/L but what I found more confusing was that my ESR is a Low 5mm (with average rate being 10 - 14)... 

      My Ferritin (Serum) is 36 ng/mL which I think is low(?)

      I'm no doctor, and I know that the best thing to do is ask a doctor, but I'm quite sure that if I go for my biopsy appointment tomorrow my specialist would insist on me taking it, even if the other results are not back by then. I'm sure it's not a pleasant experience and would like to avoid going through with it unless it is necessary. 

      Also, I took my blood test after eating gluten for only 3 weeks (since that was a week ago), and if my blood tests result as negative, I'm thinking about trying to keep eating gluten for another 4 weeks and test again then... if that comes positive, I'll then want to have the biopsy test done.

      What do you make of the above numbers? Any connections with celiac? Or with something else? 
    • The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests.  Not all celiacs test positive to the common Screening TTG.   The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching all celiacs.  Here is a link to the University of Chicago's celiac website.  When I was diagnosed three years ago, this site recommended just the TTg (as did the American GI Association).  Now they have expanded the list of celiac tests.   http://www.cureceliacdisease.org/screening/ Luckily, my GI must have just attended a GI conference and he ordered the complete panel for me.  ($400). It paid off.  Only my DGP IGA was positive and the rest of the blood panel (including the popular TTG test) was negative.  My biopsies revealed some severe intestinal damage.  My new health provider only allows PCP/GP doctors to only order the TTG.  So, if I want the follow-up testing to see if I have improved or had a gluten exposure, I must go to my New GI.  Yep, it is all about the money!   Keep eating gluten and make sure your  GI takes four to six samples during the endoscopy.  Maintain copies of all your results.   Your symptoms?  Yes, there are over 300 celiac disease symptoms.  celiac disease does not just affect the gut, but mis-informed and those who do not keep up with the latest in medical, do not seem to know that!   Do not give up!  
    • It's great to hear from you, Nightsky.  Glad to also hear of your steady progress.  Living gluten free is definitely a learning process, and even the baby steps are times to celebrate.  Wish you all the luck in the world as you continue to heal for the glutenization.  
    • Hi Nicky, When you first go gluten-free your symptoms often do change.  Feeling better or worse is possible.  The healing process is a major change in our gut and that means a big change in the gut flora is likely,  which can cause symptoms by itself.  Additionally the immune system doesn't stop making antibodies on a dime.  the immune system keeps working  to defeat the gluten invaders until it is darn good and ready to take a break. You really shouldn't start the gluten-free diet until all testing is completed.  That includes a full celiac disease panel and an endoscopy with biopsy samples.  It's much easier to complete testing while still a gluten eater than it is to stop gluten and go  back on it for testing later.
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