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Balance And Falling
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Looks like Sherry Lynn's may well have been the first, but others have sprung up. That's awesome!

Just to clarify: Sherry's is not just a bakery. They offer full meals, baked goods and products. Her equipment was all new, never used in a restaurant before. Pristine :lol: No one can bring any food or beverages in--not even the employees. :) No CC here!!

I started looking at the links you provided--thanks.

The one in Colorado (yum)and the one on Cape Cod (YUM again--and I could get to that one, at least!) sure appear to be totally gluten-free full menus restaurants!?

Thanks for posting, Joe.

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Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

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Thank you to everyone who posted on this topic. It was a great resource and of great comfort to me. Much appreciated.

:)

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Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Hello Lady Eowyn,

Thank you for sharing (which is always great)! Hope you feel better soon.

:)

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What a great conversation. It's nice to have people to relate to! So many "atypical" issues here that are simply "just" Celiac. I feel like I'm always looking for more answers to fix my fatigue, aches, brain fog... I will continue to do so, but more than likely what I need is time-time to eat good, nutrious food. Time to rest. Time to understand my body and know that "more exercise to get in shape" isn't always the right answer! Some days I can only walk a few minutes at a time. Others more than an hour!

Last night I was teaching/directing my Tuesday night music group (adults)... There was a point in time (happens periodically!) when I just couldn't make my mouth say what my brain wanted it to! Fortunately, they've seen it before and we can generally just laugh about it. It's like oral ataxia...my tongue and lips just can't quite get their balance. :) (yes, I just made that up!) It's funny because most of them are at least twice my age, yet we have many of the same body-is-betraying-me type of experiences. In my case, however, I'm VERY hopeful that it is a temporary condition. What a painstakingly slow process recovery is for some of us!

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

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And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

:D:D:D

I often say patience is the only good thing that came out of my years of illness.

I had the speech problem also. I used to be a chef and I had helpers that were suppposed to do my pulls for orders. By the time I could actually ask for what I needed I could pull it myself three times. I couldn't even tell you what a fork was if you held it up in front me. I am so glad that did resolve for the most part after I had been gluten free for a while.

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Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Truer words were never spoken!!! I was always patient with students, children, the elderly....but after all I have faced in the last 5 years, I have the patience of a saint now.

I have a PhD in patience. I have a gold medal in patience...ok, you get it. :lol: :lol: :lol:

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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