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Balance And Falling
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32 posts in this topic

Looks like Sherry Lynn's may well have been the first, but others have sprung up. That's awesome!

Just to clarify: Sherry's is not just a bakery. They offer full meals, baked goods and products. Her equipment was all new, never used in a restaurant before. Pristine :lol: No one can bring any food or beverages in--not even the employees. :) No CC here!!

I started looking at the links you provided--thanks.

The one in Colorado (yum)and the one on Cape Cod (YUM again--and I could get to that one, at least!) sure appear to be totally gluten-free full menus restaurants!?

Thanks for posting, Joe.

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Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

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Thank you to everyone who posted on this topic. It was a great resource and of great comfort to me. Much appreciated.

:)

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Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Hello Lady Eowyn,

Thank you for sharing (which is always great)! Hope you feel better soon.

:)

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What a great conversation. It's nice to have people to relate to! So many "atypical" issues here that are simply "just" Celiac. I feel like I'm always looking for more answers to fix my fatigue, aches, brain fog... I will continue to do so, but more than likely what I need is time-time to eat good, nutrious food. Time to rest. Time to understand my body and know that "more exercise to get in shape" isn't always the right answer! Some days I can only walk a few minutes at a time. Others more than an hour!

Last night I was teaching/directing my Tuesday night music group (adults)... There was a point in time (happens periodically!) when I just couldn't make my mouth say what my brain wanted it to! Fortunately, they've seen it before and we can generally just laugh about it. It's like oral ataxia...my tongue and lips just can't quite get their balance. :) (yes, I just made that up!) It's funny because most of them are at least twice my age, yet we have many of the same body-is-betraying-me type of experiences. In my case, however, I'm VERY hopeful that it is a temporary condition. What a painstakingly slow process recovery is for some of us!

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

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And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

:D:D:D

I often say patience is the only good thing that came out of my years of illness.

I had the speech problem also. I used to be a chef and I had helpers that were suppposed to do my pulls for orders. By the time I could actually ask for what I needed I could pull it myself three times. I couldn't even tell you what a fork was if you held it up in front me. I am so glad that did resolve for the most part after I had been gluten free for a while.

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Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Truer words were never spoken!!! I was always patient with students, children, the elderly....but after all I have faced in the last 5 years, I have the patience of a saint now.

I have a PhD in patience. I have a gold medal in patience...ok, you get it. :lol: :lol: :lol:

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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