This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Reporting in regarding my Nov. appointment with the new GI doc. It was EXCELLENT! I was interviewed by both the specialist and by her Fellow. Very, very good listeners. Both demonstrated great understanding of my situation. She was eager to order blood work including a full Celiac panel.
Got my results and all tests showed that I am definitely not getting any gluten. They also showed intestinal healing. YEA!!!!!!!!! Finally, I have reassurance that I am doing everything I can to get better.
I'm so glad i listened to you all and found another doc. I'm so glad I listened to you all and insisted on all the appropriate follow-up tests for a Celiac. I feel a big weight off my back. It was always in the back of my mind that it could have been my fault that I was not feeling better. :-(
She also found that my folate level was elevated and said it could be a sign of SIBO. So, instead of requiring me to take the time and effort to return for testing; we began an empiric trial of Xifaxin. I've finished the 10-day course and note some improvement--but not what I'd hoped. She wants me to give it some more time. Says some people have even more improvement a couple weeks after the course of Xifaxin.
So, thanks for your help!
Ouch! I really feel your pain. It is very frustrating, sad, and lonely when your close relatives simply do not want to hear the truth. I see that you joined in 2012 and are still having this issue. I'm guessing your Mother will never really hear you. (So very sorry.)
Only 1 of my close relatives has been tested for Celiac. The rest of my relatives simply do not want to hear it. When I try to explain Celiac to them, I can see that they are shutting down their ears and minds.
Sometimes it is best if we can just "let it go". Most likely, you've already tried your best to communicate your needs. It's easier said than done; but maybe you just need to "let it go"? Again, so sorry.
So, yesterday I ate some cookies labeled "gluten free" that contained oats (I forgot that manufacturers can use oats in gluten-free products) and promptly started experiencing an immune response. For some reason, when I eat gluten, I get constipated in addition to all the other "normal" symptoms. Today, I have been preforming a colon cleanse to flush all the gluten out of my gut.
While I was in the bathroom, my mom came home and started complaining that I ate "just a little gluten" and that I was taking too long. What really POs me is the fact that she herself has Celiac. She got lucky. Her symptoms appear much milder than either my own or my former boss (who owns a gluten free restaurant.) How can I drive it into her head that gluten, especially when you can not clear it from your system without a laxative, is both extremely painful and causes (potentially permanent) damage to my body.
I'm no expert, but I do know about the HLA DQ2 and HLA DQ8 because I just got my results for those and have been trying to look for answers. These tests are genetic markers for celiac disease. If both were negative, your GI doc would have eliminated celiac disease as a potential cause of your problem. Mine are opposite results, my HLA DQ8 is positive and the other negative.
Good luck with everything!
It has been several years since anyone posted but I am wondering how everyone's children are doing? I got pregnant with DS when I was on a gluten-free diet by chance. (I didn't yet know I had celiac disease) He was born 41 weeks at 5 lbs 14 oz and was basically immediately Failure to thrive. I gained a hefty 45lbs during pregnancy. During his first year, we had to supplement to add calories, were always on the verge of a feeding tube, etc. He is now 4 and only weighs 27lbs and is at least half a head shorter than his peers. He eats but it is minimal. We tried to do a blood test when he was younger but they have a terrible time getting blood from him. I tried gluten free as I thought this would help him but quickly threw in the towel because family wasn't on board and the fight was too exhausting. (Ex. His cousins had goldfish and they gave my DS them too.)
FFWD to now... I was not getting pregnant and after some odd symptoms I had ob and gi run some tests on me. I found out in the same week I had hypothyroid and celiac. Shortly after this and gluten free, I was pregnant with DD. I kept a gluten free diet, gained 21lbs during pregnancy, and had a daughter at 40 weeks 8 lbs 8 oz. She has been healthy as an ox and is 11 months and 20lbs.
As we still search for an explanation for my son I can't help but wonder if he has celiac too. Could my gluten diet and his own possible intolerance or disease be keeping him under 1 percentile on the charts?
Does anyone have any input?